21st May 2007
[COLOR="Purple"]:wave: Hi Miyu!
Well sweetie I am turning 52 here in a couple of weeks...So yep some of it is good old age "now" ....
But i will say even at this age I feel soooooo much better than I have for over 20 years...:)
Don't know if you read my post at the top but I have been dealing with Lyme disease, went mis-diagnoised...and do believe I had another infection called babesisa...then on top of that...dealing with EBV, CMV. and shingles and Lord knows what ever else inbetween.
I "was" put on acylovir and zovirax for a couple of years...but those did nothing really for me.
And I still didn't understand the nightmare that "herpes" can put you through. I didn't understand that CMV, EBV, were both in the herpe family...NO ONE really ever said anything to me about why my test results for those were positive reactive one time then just positive the next. NO one really addressed the fact that I needed more than just these two meds. NO one seemed to be freakin out about me having these virus's reappearing ...Funny cause now that I have been on 7 years of anitibiotics and looking back over test oh my gosh there are some real idiot doctors out there...
I didn't really understand completely about Lyme either...Until I found this board...Well after 4 years of antibiotics and still really not knowing what I had...and the docotor that was treating me retired I had to start seaching agian. I wound up going to a doctor that treats fibro with antibiotics and he also treats Chronic Fatique.....And that is with Valtrex.
In 2000 I had these "mushy" spots appear on my head....between my scalp and skull...and they would swell up real big then go back down...they would move around up there ...first started off around my soft spot ...WEll sounds crazy but around my periods and Full Moon I would be totally out of my mind....The doctor that was treating me for lyme said he had one other patient that had these also. But her's went away with treatment...I meet another girl that had these too...I lost touch with her when she was taken to a hospital in San Fran...So went my journey trying to get doctors to help me figure out what the hell this was...Why was I going nuts...WHY THESE MUSHY SPOTS!!
Sooooo when I went and started seeing this last doctor he studies bacterias, microbacteriums and virus's. He listened...And agreed with me ...it had to be one of these or a combination of these...
I was walking around feeling like I had a hand on the right side of my head squeezing it ...kind of like in a no emotion, flat brained state...Got to the point where I couldn't feel things on my skin like hot and cold...couldn't cry or laugh anymore...Couldn't respond to people when they talked to me...Felt highly parinoid when I would go somewhere...So I stopped going places...And some other things...So....being on the Valtrex and some other combinations of antibiotics...The pressure has stopped...and now the mushy spots are at the back side of my soft spot...Warm to the touch... I can do things now..."MOST" of the time...
Yep been a real crazy time. I really wish someone had put me on something like Valtrex at the very beginning...I still truly have no idea exactly what lies under my skin. But I do know these med's keep it down...I will go back to this doctor before summer is up...Right now I just keep taking my med's.
So I've learned virus's are most likely worse than bacteria's. Bacteria's you can kill off with antibiotics...Virus's go back into remission...only to come out later in life...(in some cases).
Yes if a person has had chicken pox's then they have a form of herpes....It imbeds itself in your spine and lies there only to come out during stress or when ill....
I use to think there was only ONE kind of herpe...what a surprise there are many....
I don't understand this take a medicatiion only during break outs...In my opinion IF a person is having continual problems wouldn't they want to be on it every day?
I am not familiar with famvir.....Sounds like in the aclovir family...which from what the doctor says that I go to now Valtrex is the best one for herpes.
All you can do is try taking it each day...and for a few months...then see if it makes you feel better...Being sexually active from what I have read and been through doesn't cause the outbreaks...It is how your immune and nernous system is....
Hope my story helps....Good Luck to you ....
Hugs...
:D
Well sweetie I am turning 52 here in a couple of weeks...So yep some of it is good old age "now" ....
But i will say even at this age I feel soooooo much better than I have for over 20 years...:)
Don't know if you read my post at the top but I have been dealing with Lyme disease, went mis-diagnoised...and do believe I had another infection called babesisa...then on top of that...dealing with EBV, CMV. and shingles and Lord knows what ever else inbetween.
I "was" put on acylovir and zovirax for a couple of years...but those did nothing really for me.
And I still didn't understand the nightmare that "herpes" can put you through. I didn't understand that CMV, EBV, were both in the herpe family...NO ONE really ever said anything to me about why my test results for those were positive reactive one time then just positive the next. NO one really addressed the fact that I needed more than just these two meds. NO one seemed to be freakin out about me having these virus's reappearing ...Funny cause now that I have been on 7 years of anitibiotics and looking back over test oh my gosh there are some real idiot doctors out there...
I didn't really understand completely about Lyme either...Until I found this board...Well after 4 years of antibiotics and still really not knowing what I had...and the docotor that was treating me retired I had to start seaching agian. I wound up going to a doctor that treats fibro with antibiotics and he also treats Chronic Fatique.....And that is with Valtrex.
In 2000 I had these "mushy" spots appear on my head....between my scalp and skull...and they would swell up real big then go back down...they would move around up there ...first started off around my soft spot ...WEll sounds crazy but around my periods and Full Moon I would be totally out of my mind....The doctor that was treating me for lyme said he had one other patient that had these also. But her's went away with treatment...I meet another girl that had these too...I lost touch with her when she was taken to a hospital in San Fran...So went my journey trying to get doctors to help me figure out what the hell this was...Why was I going nuts...WHY THESE MUSHY SPOTS!!
Sooooo when I went and started seeing this last doctor he studies bacterias, microbacteriums and virus's. He listened...And agreed with me ...it had to be one of these or a combination of these...
I was walking around feeling like I had a hand on the right side of my head squeezing it ...kind of like in a no emotion, flat brained state...Got to the point where I couldn't feel things on my skin like hot and cold...couldn't cry or laugh anymore...Couldn't respond to people when they talked to me...Felt highly parinoid when I would go somewhere...So I stopped going places...And some other things...So....being on the Valtrex and some other combinations of antibiotics...The pressure has stopped...and now the mushy spots are at the back side of my soft spot...Warm to the touch... I can do things now..."MOST" of the time...
Yep been a real crazy time. I really wish someone had put me on something like Valtrex at the very beginning...I still truly have no idea exactly what lies under my skin. But I do know these med's keep it down...I will go back to this doctor before summer is up...Right now I just keep taking my med's.
So I've learned virus's are most likely worse than bacteria's. Bacteria's you can kill off with antibiotics...Virus's go back into remission...only to come out later in life...(in some cases).
Yes if a person has had chicken pox's then they have a form of herpes....It imbeds itself in your spine and lies there only to come out during stress or when ill....
I use to think there was only ONE kind of herpe...what a surprise there are many....
I don't understand this take a medicatiion only during break outs...In my opinion IF a person is having continual problems wouldn't they want to be on it every day?
I am not familiar with famvir.....Sounds like in the aclovir family...which from what the doctor says that I go to now Valtrex is the best one for herpes.
All you can do is try taking it each day...and for a few months...then see if it makes you feel better...Being sexually active from what I have read and been through doesn't cause the outbreaks...It is how your immune and nernous system is....
Hope my story helps....Good Luck to you ....
Hugs...
:D