Hi there,

Well, yesterday was my first folfox treatment. I was feeling great until about half way though when I started vomiting, and vomiting. I took a zofran, then they gave me some ativan and something else. I pretty much feel asleep and finished the treatment. Then I had a 5-fu push, a shot for my red blood cells, then was hooked up to the pump until Friday afternoon.

Today I feel very hung over...tired, nauseus, sore throat and my tongue feels tingly. Last night I took a sip of some water that was too cold and it felt like I was swallowing glass - won't do that again. I also notice that when I bite into something something my jaw kills - not sure what that is about.

I just tried a zofran again for the nausea...helping some, I think. I'm trying to avoid taking the ativan since it makes me loopy and I am here w/the kids.

Hope you are all doing well.
cats

They give my husband some antinausea stuff in the IV before anything else. I think it is zofran. You may want to ask if they can do that to prevent it next time.

At a little over a week after treatment #3, my husband can drink small sips of cool drinks now, but still not cold.
He's 1/4 of the way through it now. It seems like his body has adapted to the poison some - he's not as miserable. He has been feeling 'pretty ok' much of the last few days.

Hang in there. When we started the 6 months, it seemed like an impossibly long time. Now he's 1/4 of the way through and it doesn't seem quite as long. (Probably because he's feeling a little better now - that makes everything better.)

Good luck!

Your post gives me such hope! I have been feeling HORRIBLE. The nausea and fatigue are really hard on me. Last night I went to sleep at 7:30 and had a hard time getting out of bed at 7 this morning. I am so nauseus it is hard to even sip water. I've been taking the zofran under my tongue and it is not helping. I can take the ativan, but it knocks me out. Thankfully I am going in to get unhooked from the 5fu today. Hopefully I'll be feeling better soon. This is a terrible feeling..... I am hopeful that it will get better as the treatments go on. One down, seven to go.

Cats

Quote from gocatsgo:

Your post gives me such hope! I have been feeling HORRIBLE. The nausea and fatigue are really hard on me. Last night I went to sleep at 7:30 and had a hard time getting out of bed at 7 this morning. I am so nauseus it is hard to even sip water. I've been taking the zofran under my tongue and it is not helping. I can take the ativan, but it knocks me out. Thankfully I am going in to get unhooked from the 5fu today. Hopefully I'll be feeling better soon. This is a terrible feeling..... I am hopeful that it will get better as the treatments go on. One down, seven to go.

Cats

Hi gocatsgo

Husband used Ondansatron tablets during the day and then used a Ondans suppository at night. This really worked well and seemed to allow him to rest better and get some good sleep without waking up feeling nauseous.
Also took steroids (will try and find out the name and post later) during the chemo weekend and this was supposed to increase the effectiveness of the anti-nausea drugs. Well actually, there was no supposed about it cos when they tried him without the steroids his nausea came back.

good luck
ktee

Gocats, I've had six Folfox treatments and six more to go. I get Kytril (I think that's spelled right in the IV on day one and Dexamethasone on day 2 (IV) and then start taking the oral zofran and oral dexamethasone on the night of day 2. My doc says the dexamethasone helps the zofran. It pretty much knocks my nausea out. I do have the extreme tiredness you spoke of though. I go to work on day 3 and for the first 2-3 days after my treatment I come home from work and crash till the next morning. as for the cold stuff, it takes me about a week as well to start to be able to drink mildly cold stuff and by the end of the second week I can drink cold things pretty well. Hang in there I know it's rough but it does get easier (or maybe we just adapt to it better)
Sam

Thank you all for your words of support...I am feeling better each day, though still a little sluggish and nauseous. I am hoping that by next treatment on Wed the 25th that they will have a better plan in place to help control the vomiting/heaving. Nothing they gave me last time seemed to have the drastic relief I was hoping for. (Tried: dexamethasone, ativan, zofran, aloxy (?), anzamet...)



Best wishes to you all!
Cats