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   It's not Addison's....It's Postural Orthostatic Tachycardia Syndrome (POTS) (Addison's Disease board)

26th May 2005
Hi Everyone..sorry its been a little bit. I got hospitalized for over a week again. Symptoms got increasingly worse after starting the floricef and midodrine so they sent me to another teaching regional hospital for some answers. What a waste of time that was. Basically got poked stuck and proded and was sent home with no more answers than what i went in with feeling worse than when i started. They tested for everything under the sun, ignored my low cortisol levels because i was negative when it came to the stimulation test for addison's. Took me off all my meds which made everything alot worse. The vertigo, headaches, nausea,vomitting and was constipated for 7 days before they gave me an enema and sent me home, nice eh. They insisted the vertigo and headaches were migraines sent in a neurologist who agreed with me they were not but they ignored that. Started me on partial anti seizure meds and migraine meds which did nothing of course.

They never consulted Endo and doubled my dose of florinef and midodrine and sent me home, got very ill at my parent's home yesterday afternoon, luckily had a follow up appt at my cardiologist office yesterday with the NP. She nearly flipped when she found out they totally stopped the meds and then doubled the midodrine which she said was way to high of a dose for me. Gave me more anwsers to my questions like it will takes weeks for the meds to work and i will have more bad HOURS then good hours at this point days don't count. Gave me scripts for Alavert for the verttigo may or may not help, zofran for the vomitting and lots of fiber, protein, salt and fluids in my diet will help and forget trying to work for at least the next 2 months minimum.

I'm glag your brother is improving so much goody, thats awesome. Lisa keep your chin up i know all about the bruises its unreal my arms look gross. Was never like this before. I hope your nose heals well and it will take time for the meds to wrk it will not happen over night hour by hour not day by day.

JEN
 
 

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