7th September 2007
Hi LFH,
Thanks for the informative reply. Sounds like you do a lot of research. I've been to the Philadelphia FFC 3 times. My EBV titres are high & hormone levels are all over the place. Dr. Garabedian gave me a couple of supps, I forget right now. I'll post them next time. He put me on 3000mg valtrex but I couldn't tolerate it. I have a very weak system which is hard to accept considering I used to build houses. (I hate to say it but my illness defines me now, I've lost everything of my former self). I also get anti viral and standard IV's. It's hard to say if the IV's help because I flare up so easily and never know what sets me off. I guess I'm happy with the FFC so far. They are the only place that has a clue. I don't have much faith I will ever make a big recovery, I'm just looking to increase my quality of life which was so poor for a very long time. I've been taking supps on my own for years but they never did anything for me. Antidepressants did nothing. I actually broke down and cried a little when I first started taking cortef because I was in such bad shape for so long and the improvement was like day and night. I was functioning at 1, now I am about a 6 and occationally I have something like moments of clarity where I feel like I did before I got sick(my former self). Actually every once in a while I feel so good I almost am tricked into thinking I'm cured but CFS always shows its ugly face by the next day and I'm back to reality.
It's late and I'm getting really sleepy. I will write another post later with better info next time.
Sleepy
Thanks for the informative reply. Sounds like you do a lot of research. I've been to the Philadelphia FFC 3 times. My EBV titres are high & hormone levels are all over the place. Dr. Garabedian gave me a couple of supps, I forget right now. I'll post them next time. He put me on 3000mg valtrex but I couldn't tolerate it. I have a very weak system which is hard to accept considering I used to build houses. (I hate to say it but my illness defines me now, I've lost everything of my former self). I also get anti viral and standard IV's. It's hard to say if the IV's help because I flare up so easily and never know what sets me off. I guess I'm happy with the FFC so far. They are the only place that has a clue. I don't have much faith I will ever make a big recovery, I'm just looking to increase my quality of life which was so poor for a very long time. I've been taking supps on my own for years but they never did anything for me. Antidepressants did nothing. I actually broke down and cried a little when I first started taking cortef because I was in such bad shape for so long and the improvement was like day and night. I was functioning at 1, now I am about a 6 and occationally I have something like moments of clarity where I feel like I did before I got sick(my former self). Actually every once in a while I feel so good I almost am tricked into thinking I'm cured but CFS always shows its ugly face by the next day and I'm back to reality.
It's late and I'm getting really sleepy. I will write another post later with better info next time.
Sleepy