- My son 9th August 2006
... Epilepsy.
He is on his 2nd med. He was started on Trileptal . He had a horrible reaction to it. He turned into...
- Is this new Med or new eposodes 21st July 2006
... on May 10th (90 minute Status). He was fist put on Trileptal ; but it made him into a mad man! After six weeks of...
- update on bonnie and trileptal problems 4th July 2006
... anyone else has this hard of a time coming off of trileptal .
I thought I would be able to say Bonnie has been ... a little over a year. We started taking her off of trileptal the first part of June. She was only taking 75mg in ... guess not. We also thought that small of an amount of trileptal wasn't doing much, I guess not. I again think it's ... the coming off of trileptal , this happens every time, that's why I was so scared ... we were going to get her on just one med and off of trileptal . Hopefully we still will. Maybe cut it back even slower ... anyone else has this hard of a time coming off of trileptal .
Debbie...
- Sleeping problems? 27th June 2006
... has problems sleeping too. She is on lamictal and trileptal . I don't know if it is because of the meds or just...
- Auras- how long do yours last/description 18th June 2006
... and I would go unmedicated for long periods of time. Trileptal was my miracle drug - on it for ? 3 or so years, no...
- I feel so helpless 8th June 2006
... have more trouble if I don't take my meds( keppra, trileptal , neurontin) at the exact same time every day a.m....
- Katie***2 Year TLE Surgery Anniversary! 7th June 2006
... a little over a year. We started taking her off of trileptal the first part of June. She was only taking 75mg in ... guess not. We also thought that small of an amount of trileptal wasn't doing much, I guess not. I again think it's ... the coming off of trileptal , this happens everytime, that's why I was so scared ... we were going to get her on just one med and off of trileptal . Hopefully we still will. Maybe cut it back even slower ... anyone else has this hard of a time coming off of trileptal .
Debbie...
- Other medical disorders along with E 1st June 2006
... simple and complex seizures, only GM when taken off of trileptal . She has exzema since birth, allergies, asthma, her...
- Vaccine Question 24th April 2006
... thing when she wakes up in the morning. She is on Trileptal 12.5 mls per day. So my question is...She is suppossed...
- does Trileptal work ? 24th April 2006
... well my mother is the one taking Trileptal and it does not work nothing works this is driving ... or so.And last night after going up on the dose of Trileptal she had one and didnt even see it coming. This morning...
- Horrified post surgery 18th April 2006
... nothing, but was called abnormal. I started taking Trileptal . I never could reach the recommended dosage, but settled...
... nothing, but was called abnormal. I started taking Trileptal . I never could reach the recommended dosage, but settled...
- Keppra...Experienced Taker Needed 11th April 2006
... I Am New To This Board.i Am Now Taking Keppra And trileptal . The Keppra I Take Is 750mg 2xaday.and Trileptal Is...
- Anyone know about Lamictal? 7th April 2006
... reactions and I couldn't remain on them. These were Trileptal and today is the last day I am to be on Keppra :)...
- Energy Drinks and Seizures? 7th April 2006
... My neuro put me on three times the dose of Trileptal (I moved, and wound up in the ER from stress and being...
- Keppra sleep problems 5th April 2006
... milligrams of Keppra twice daily, as well as 1,800 MG's of Trileptal . I have no problems getting to sleep...Quite the...
- Needing help for my mother's seizures 25th March 2006
... Dilatin. Her levels were through the roof, now on trileptal . My questions is are people on these always dowsy...
... and Lamictal.
Others available are: Topomax, Trileptal , Dilantin, Zonegran, Zarontin, Felbatol, Gabitril...
- Anyone know Lamictal? 20th March 2006
... effects like the other ones I have tried. (Dilantin, Trileptal , Neurontin, Topamax just to name a few). With most...
- 6 years old from Timonil to Trileptal 11th February 2006
... settle down> I am so sorry it is rough! I hope that the Trileptal will help stop her seizures. Are you going down on ... the other medication as you bring up the dose of Trileptal or keeping both?
Hang in there.......
... one medication.
Carbamazepin was 300 mg/day and now Trileptal 450mg/day (150mg at the morning and 300 mg/evening ... this hyper activity 1 hour after she gets 300mg of Trileptal at evening, amount will be reduced and some other...
- From Dilantin to Trileptal/Sick 17th January 2006
... Dilantin for over 25 years and recently changed to Trileptal and since the change I have been sick with nausea...
... know this is going on?
How long have you been on trileptal now? It can take a few weeks for some side effects...
- is the regression due to depakote or the seizures? 9th January 2006
... complex partial seizure Nov. 2004. His neuro put him on trileptal first, but he was still having seizures every 7-10 ... the depakote is definitely more effective than the trileptal .
However, his speech, which has always been affected ... side effects on depakote? He had zero side effects on trileptal and his mom and I are wondering which is effecting...
- Five year old newly diagnosed with partial complex seizure disorder 8th December 2005
... girl and as of yet has an unknown cause. She is on Trileptal . Anyone with some experiences or words of advise...
... first(possibly second) visable seizure. Hannah is on Trileptal and hopefully it will control them....
- Thought Topamax was enough 27th November 2005
... Phenobarbitol, Zarontin, Gabitril, Diamox, Carbatrol, Trileptal , and Valium. There are a few others.
All of these...
- No More Seizures!! 18th November 2005
... The last anti-seizure medication that I took was " Trileptal " and it worked wonders!!!! I believe it had helped...
... and it still hasn't stopped the seizures. I was on Trileptal first, and they didn't stop, and then Keppra, which...
- 8 month old has Epilepsy 10th November 2005
... worst lasting almost 5 minutes. He has been taking Trileptal for about 6 weeks now, and they have shortened, usually...
... realize how important that is.
My ped has him on Trileptal now, because he says it's the safest, with the least ... but can be bad for the body. I was really hoping the Trileptal would work.
I had mentioned in my original post...
- anyone get extra time, etc for test in school 9th November 2005
... has only had grand mals when she was taken off of trileptal quickly. She use to have 10 or more a day until the...
... now. She has been on carbatrol, keppra, dilantin, trileptal and lamictal ( with different combinations). I do ... not like her on the trileptal , we are very slowly getting her off. The seizures...
- New diagnosis 27th July 2005
... was eventually put on keppra (after a little time on trileptal ) and keppra has worked out well for her. Dilantin...
- Topomax 27th July 2005
... too. But I also did it on Dilantin but worse and on Trileptal too. On Dilantin, I didn't even know my own name...
- topomax 25th July 2005
... more seizures with Dilantin too.
I was also on Trileptal and did ok for a bit. Then I started having horrible...
- Why oh why does this happen??? 21st July 2005
... my daughter after having a reaction to Dilantin and Trileptal . She supposedly has some scarring on her brain that...
- Unusual Seizures at Nighttime 21st July 2005
... trip No. 2. I had approximately 5 more seizures. Trileptal didn't work at all. Now on Lamictal. Anyway I went...
- Depakote and Trileptal interactions 17th July 2005
... going to see how he does once he's completely off the trileptal and on depakote only. My brother-in-law is a neuro ... current neuro went with D as the second drug after the trileptal didn't work. Some studies have shown that your chances ... treating epilepsy. Given the low side effects I thought trileptal was a good first choice. But I really really wish ... said above, Nick's were only once every few weeks on trileptal and now weekly during the trileptal weaning/depakote...
- Stress Seizure Disorder? 16th June 2005
... done. (No health insurance)
Neuro changed me to Trileptal and then I wanted to kill myself. He wouldn't change...
... one since he ignored you saying you feel suicidal on trileptal !! I am so glad your pcp is so good and does listen...
- invasive monitoring and epilepsy surgery 12th June 2005
... doing WADA test. I have been on Lamictal, Keppra, Trileptal , Zonegran, I know I've been on at least one other...
- Is this SPS - need advice badly! 10th June 2005
... with the dr finally settling on Lamictal (Topamax and Trileptal had too many side effects). She is a little girl ...
- Coming up on one year, reflection & Epi visit...Katie 2nd June 2005
... all of this we are suppose to start decreasing her trileptal to hopefully get her off of it, then she would only ... good as far as seizures go, but I do want her off of trileptal .
I know this makes her sound bad, but she really...
- Employment and Seizures 1st June 2005
... I am on 2000mg Keppra in the morn and at night and Trileptal as well and am possible getting surgery. I understand...
- new here...looking for support, info, etc. 31st May 2005
... located in the RTL area...He is currently weaning off of TRILEPTAL and onto LAMICTAL to try to control the seizures....
- I think my Dr is a quack! Help! 20th May 2005
... and got rid of it, and the neurologist put me on Trileptal as a precaution. At first I was fine, but he kept ... less, and I told the doctor that I believed that the Trileptal was actually causing seizures. He said that that ... neurologist and she said that the first doctor was wrong-- Trileptal CAN increase seizures in some people--and got me off ... the Trileptal . I've been seizure-free for two years now. So go...
- Vagal nerve stimulation 8th April 2005
... also not controled bye the meds. i take the 600mgs of trileptal , 200mgs of topamax,and 400mgs of zonagran a day.thats...
- new here 4th April 2005
... blood work, and fasting-blood sugar. She is now on Trileptal for 1 year and then we'll take her off it and see...
... experience. It is the doctors idea to take her off Trileptal in a year. He said that the brain remembers how to...
... blood work, and fasting-blood sugar. She is now on Trileptal for 1 year and then we'll take her off it and see...
... I was reading about trileptal and I read about your experience with your baby. Well ... we went through.
Jonathan started taking trileptal in january 2004 he was 5 years old at that moment...
- I'M BACK AGAIN.... my lovely little girl has had another.. :( 2nd April 2005
... hope her brain fogrets how to do it. We have her on Trileptal now. The doc wants to keep her on it for a year and...
- Tired of all this 13th March 2005
... different medications including: Lamictal, Keppra, trileptal , and Zonegran. The keppra completely shut my body ... also greatly increased in the month I was on it. The trileptal also gave me severe side effects and I had to go off...
... They told me my vision problems weren't from the trileptal and since I still have it sometimes and I quit the ... trileptal it is seizure related. I have trouble with flourescent...
- Kepra anyone? 12th March 2005
... this will be the sister thread to the successful " Trileptal Anyone?"
Ive been writing a lot about my recent ... experience switching from dilantin to trileptal . Well, it has been pretty unsuccessful.
Weening ... off the dilantin to the trileptal caused me to have a grand mal. This was "ok" according ...
The dr. just increased me to 900mg/2x a day of trileptal because at the already increase level of 750mg (originally ... starting me on 500mg/2x day of Kepra (along w/ the trileptal ). Apparently Kepra is a better anti-convulsant than ... trileptal with similiarly low side effects.
Is there anyone...
- Auras & pregnancy?! 10th March 2005
... getting auras 3-4 times a month…
I’m currently on Trileptal – 900mg. and since I want to get pregnant I do not...
... are pregnant)
I keep trying to avoid increasing my Trileptal (Although I still have auras 3-5 times a month)
I...
- Complex Partial Seizures and Mesial Temporal Sclerosis 10th March 2005
... week if not daily. I've been on Lamictal, Keppra, Trileptal , and Zonegran. I am scheduled to go in for a Video...
- strange possible trigger 9th March 2005
... eakthrough" gm last week due to swirching meds (dilantin to trileptal ). Has anyone heard of "breakthrough" or is that just ... Has anyone else experienced this? Since being on trileptal , I can't have more than one thing going on at the ... getting lightheaded (a sign of things to come).
Has trileptal made me so sensitive to stress/information overload...
... had you been on dilantin? How long have you been on trileptal ? It could be your body adjusting and it could be the ... isn't right yet. You might want to read the post ' Trileptal anyone'.
The only time my daughter Bonnie has had ... GM's was when she has been taken off of trileptal or lowering the dose to get off of trileptal. I guess ... I am not a big fan of trileptal . Others say it works wonderful for them. I think sometimes ... effect Bonnie's seizures. She is now on lamictal and trileptal . The goal is to get her off of trileptal completely...
- So depressed 6th March 2005
... now. I know how difficult that is for you. I feel Trileptal was the problem for Bonnie. We are trying to get her ... off of it. Bonnie takes Lamictal and Trileptal now. Hopefully we will get her off the trileptal this ... if her body gets use to this much Lamictal and the trileptal that is what she will have to stay with.
It is...
- Trileptal/Dilantin 25th February 2005
... offer.
Has many people switched from Dilantin to Trileptal and overlapped the medications? I am doing that ... Doc takes me off Dilantin or is it a side effect of Trileptal ?
Also, and this was prior to the switch and still...
- Trileptal for depression...really having seizures? 22nd February 2005
... How long have you been on Trileptal ?...
... diagnosis - especially also given the fact that the trileptal is helping you....
- Off the deep end? 20th February 2005
... Partial Complex Epilepsy. I have been on Dilantin and Trileptal , still had seizures, visual disturbances and chest...
- Trileptal vs Dilantin 16th February 2005
... was not for this type of epilepsy and he put me on trileptal . I was on the trileptal for two months when I started ... vision 2 neuro's assured me that it wasn't from the trileptal so I continued to take it. My vision eventually got ... they didn't think the vision problems were from the trileptal , felt very strongly that trileptal was a very good...
... four week plan to get off of dilantin and on to the Trileptal .
During the "weening" period, I was suppose to ... 1 in the PM, but this past sunday I increased the trileptal to two at night.
I have always taken the dilantin ... at night, so I am taking the Dilantin WITH the trileptal (neuro says it'll be no prob)
I have been very...
... Trileptal vs. Dilantin..... Don't you love it when we have ... which did nothing (or at least nothing good), then Trileptal . I want to emphazise here that everybodys different ... Now that the disclaimer has been put out there.... Trileptal was the worst drug I have ever experienced. Not to ... acting differently. One major concern I have about the Trileptal is low sodium levels. Once I finally had another ... I had low sodium levels, a rare side effect of the Trileptal . I should point out that I had to badger a doctor ... up, as he wouldn't believe that this was caused by Trileptal . (it was) The sodium levels being lowered is said ... sodium level tests on many people, and the makers of Trileptal aren't telling us to" So I think I'll stop my book ... have more questions. I have definetly researched Trileptal . (More than my doctor!)...
... the years, and like you said of your experience with trileptal , I didn't even notice them. People would point things ... monitor it after I am completely off dilantin and on Trileptal .
Again thanks for the input, hope all works out ... BTW, you mentioned you did a lot of research on Trileptal ... please feel free to share any info you think is...
... Hi Chevran
My experience with Trileptal wasn't great. I tried it after getting off Dilantin...
... Bingerbee, I'm switching from Dilantin to Trileptal because Dilantin is no longer working for me. I am...
... Currently on Trileptal , mild hair loss, short term memory becomes terrible...
... Currently on Trileptal , mild hair loss, short term memory becomes terrible ... Disorder effect mixed in.
Really? I just started trileptal and was on Dilantin. My problems with Dilantin was ... scream at them to shut up.
My Doc switch me to Trileptal for that reason. Ugh on the hair loss because my...
... seizure"
He said it was my body getting use to the trileptal . I was completely weaned off the dilantin the previous...
- Do you think my epilepsy is GONE? 13th February 2005
... found that I had epilepsy. After an ill-fated term on Trileptal (actually increased my seizures), I've been on Depakote...
- nothing is working 12th February 2005
... Keppra for a very short time. She is on Lamictal and Trileptal , trying to get off of trileptal.
Debbie...
- Does this diagnosis sound accurete to YOU? 26th January 2005
... came back, about 1-3/mo.
NOW the doc tries me on Trileptal /Tegretol mix. A month on them both, no seizures to ... usually HAS most all of the time, even BEFORE any Trileptal mix). This has occurred from a dose of 750mg/day Tegretol ... , with 600mg/day Trileptal (both cut evenly into three daily doses).
I mean ... on these pieces of data, the doc wants to up this Trileptal to as much as 2400mg/day! Gee, I thought that I WAS...
- Bonnie - poor decisions 13th January 2005
... switch to carbatrol. We have not gotten her off of the trileptal yet, still working on it. We were going to get lamictal...
... that would not effect the baby. Right now she is on trileptal and she know she can't get pregnant on that. She usually...
... wait and see. The neuro doesn't want to take her off trileptal completely until the summer. I told her our insurance ... for kids I am going to apply for. She also told me trileptal and lamictal are both very expensive, she said SHE...
- i think Gage may be progressing or having breakthroughs??? 12th January 2005
... for almost a week. Hopefully we'll get her off of trileptal eventually. Seizures are better. Haven't seen one...
... for almost a week. Hopefully we'll get her off of trileptal eventually. Seizures are better. Haven't seen one...
- What does this sound like?I need help!! 10th December 2004
... and 100 mg in the afternoon. She also takes 150 mg trileptal in morn and 300 in afternoon. We are starting to decrease ... trileptal .
She has never had the neck pain and throwing up...
... and 100 mg in the afternoon. She also takes 150 mg trileptal in morn and 300 in afternoon. We are starting to decrease ... trileptal .
She has never had the neck pain and throwing up...
- Topamax Questions 9th December 2004
... requested to come off the Top, and I started taking Trileptal . I have couple more seizures now, but I least I’m...
... Sugar, is your doc replacing the Teg with Trileptal ? They are very close in relation I recall in how...
... Hey Travis,
Yes, I am on Teg, and Trileptal at the same time. Yes, I know that they are closely ... related; I requested to try the Trileptal to get off of the Teg because I wanted to try a different...
... being a doc or pharmacist I didn't know if Teg and Trileptal would cause {problems} toxic or similar symptoms if ... being on Tri and Teg at the same time (never being on Trileptal ever).
--Travis...
- Question about tegretol 8th December 2004
... You can see if the neuro can switch you to trileptal . It is in the Tegretol family and is supposed to be...
- seziures on meds? 3rd December 2004
... for someone else, may not work at all for you.
Trileptal is used for use in children between 4-16 years of...
- Auditory Hallucinations 1st December 2004
... few GM but this latest combo of meds seem to be ok, Trileptal and Keppra.
The only problem with me, is that after...
- Help, need advice on med change 30th November 2004
... give her our decision so she can start the change to Trileptal (sp). My concern is that I will change meds for the...
- New here 20th November 2004
... is changing my medication. I was on a low dose of trileptal for seizures.
He is changing that to a much higher...
- Stonewalled again, what else is new? 12th November 2004
... Tegretol with Keppra as an adjunct, or go to Topamax or Trileptal alone (completely away from Tegretol).
Also the...
- Went to Neuro today! Dont get what he meant about eeg? 8th November 2004
... I posted earlier on this site.. about 14 yrs old trileptal . dr said NOTHING about what kind seizures look at...
- 14 yr old son new dx started trileptic 4th November 2004
... started down this road, but glad you found us here! Trileptal is a pretty good seizure med for many. It is in the...
- Trileptal and Hair Loss 27th October 2004
... I have been on Trileptal for about 4 years...the longest of any medication...
- diastat 1st October 2004
... hes told me give my son who is 6 years old 600mg of trileptal daily,weve been increasing meds since late july and...
- child with epilepsy pleasu help me 28th September 2004
... seizures during sickness since the doctor put him on trileptal hes had a hundred or more episodes now theyve given...
... seizures during sickness since the doctor put him on trileptal hes had a hundred or more episodes now theyve given...
- update on bonnie 23rd September 2004
... day again. The neuro said she didn't have enough of trileptal or lamictal in her and this is why she was having ... them. We are going to keep her on the trileptal for now and then try to wean off as the lamictal increases ... . We may have to keep her on a small dose of trileptal , I hope not.
The neuro said she probably did better...
... at 50 lamictal morn/ 50 at night, and 1/2 pill of trileptal in morn and whole at night ( I think it's 300 mg pills ... or to continue increasing lamictal and decreasing trileptal :) , don't want to mess with a good thing. I don't ... student what that meant!
I'm glad Jakes off the trileptal , that's where I want Bonnie to be, I'm so scared we...
... alone and didn't increase the lamictal or decrease trileptal . Today I get a call from the school saying Bonnie ... had to build up in her system. I gave her 1/2 of a trileptal anyway. Now I will worry all day, she's never called...
- *Katie* 3 Month Mark!!! Seizure Free! 7th September 2004
... lamictal soon. We are going to try decreasing the trileptal again over the holidays. We have the lamictal up to ... night. I was a little worried about decreasing the trileptal during exams so we are waiting for the holidays. ...
- Anyone with epilepsy on keppra and topamax? 27th August 2004
... meds that i was taking at the time.... I am also on Trileptal . I have tried Topamax.
I have found that Keppra...
- Several Minor Seizures? 25th August 2004
... people unless they're closely examining me. I am on trileptal and it's helping quite a bit. It hasn't completely...
- Seizure Surgery Experiences? 19th August 2004
... control. Medication has not helped-she is currently on Trileptal , Topamax, and Keppra.
I was wondering if anybody...
- Seizures, but not really? 6th August 2004
... neurologist diagnosed epilepsy and I've been perscribed Trileptal , it's been working great. I almost never get those...
