12th May 2004
ps-I had a positive low titre ana twice, a reflexive pannel was unrevealing. I was dxd w/mild graves (if there is such a thing) they found the same time frame as ss, fm and endometriosis then breast stuff 6 months later. In that sense it felt like all at once (in between the facial weakness, 1st time found tick on dog that day, tested dog for lyme, she was okay. Had suppressed tsh w/normal t values intermittant, took tapazole one yr. About a yr later, started feeling symptoms again, ps t's were up and tsh was normal and then normal/rising (for me). Labs were abnormal, hematologist said normal for a person w/inflammatory conditions, I had 16/17 IOP that went down after started restasis for a few weeks. The palpebral is swelling again so need to start up the restasis and stick w/it (it's expensive). If I did not have a prescription plan, I'd be in trouble. Did I help here at all? I don't think so. A new rheumy thinks it's neural (said lip biopsy is needed for diffinative). I'm glad they sent you for that. To treat you right they have to know. I will be really po'd if I find out they were not giving me the right treatment. It sounds like they are doing what they should. I'm seeing a neuro, pulmo and rheumy. Good luck! Please let us know how it turns out...
