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   Chronic Pain Undiagnosed? Any Advice? (Open to All Health Related Topics board)

6th July 2004
As I was continuing my endless search on Jeeves for something that would help me find an answer I came across this site. I am new, so please bear with me.

My story. (I apologize for it being long, but I thought the details might help someone think of something that has not been tried yet)

On 6/25/03 I had car accident. My right shoulder and left knee hurt for a couple days and then the pain went away, so I never bothered going to a doctor. Around Mid August 2004, while doing yard work, a friend of mine was spraying bug repelanton his arms, and unknown to him or I, some of it got into my drink. When I took a drink, I swallowed some of it and spit the rest out.

Within 45 minutes, I got extremley nausious. When I woke up the next morning, my throat was sore and I had completley lost my voice. I went to my doctor, Strep test was neg, so she put me on antibiotics and told me to call her if it continued or got worse. After 3 days I was better, however, I began to have pain in my hands. I was helping a friend remodel a house, so I just figured maybe I was feeling the effects of age.

Within 3 weeks, the pain was now throughout my entire body. Every part that moves has pain. Neck, Shoulders, arms, hands, legs, toes, the pain is constant and sometimes spikes. I went to my doctore, she checked me for lyme, lupus, etc, and gave me more antibiotics and pain meds.

All tests came back neg, and when asked if this could be related to the car accident or the bug repelant she said no. I would have had symptoms sooner if it was related to the car accident, and I didn't drink enough of the repelant for it to do anything to me.

She tried to treat my symptoms with Loratab (didn't work) Vicadin (nada) Darvacet (nope) Percocet (very little releif), after 4 months of percoset, we decided to go the nonnarcotic route. Vioxx, Bextra, Ultracet, Soma, Nothing!

Full bone scan revealed NO Arthritis. Went to a Nerologist, had an EMG, minor carpol in both hands, but nothing that would cause all my pain. Had a spinal tap to test for Guilliam Barre Syndrome, doctor said nothing wrong there. I begged him for an mri, byut he said I didn't need one. After 3 weeks of begging him, he caved. The MRI showed a bonespur at C5-C6 with a slight impigment on the nerve. Mild dessication of L2-L3 disc. Hypertrophy in discs L5-S1. (Prior lamondectomy L5-L4 when I was 15)

Nerologist says this explains some of the pain but not all of it and not to the degree of severity that I descibe. He refers me to a pain clinic. I have 2 cervical injections (They don't help, and the second injection caused my whole upper body to lock up (Another trip to the ER)

In March, I am still without a diagnosis, getting worse, can't work and can't collect disability. Wouldn't be so bad if I was alone, but I am married and we have 3 children. Now I am dealing with major stress as well.

March 25th I get a kidney stone, I pass it 4 days later. I then go in for a Milagram. I take the medication prescibed to me, because i am alergic to Iodine, and STILL wind up getting Spinal Menengitis from the dye. This past june I got another kidney stone, this one was 5mm.

It is now july I still have the same joint and muscle pain, constant headaches, and still no diagnosis.

I am hoping that someone might tell me where to look for answers. My Doctor, neurologist, rhuemotolist etc, all say that there is no pathology for this pain. Fibro was ruled out because my pain is more in the joints then muscle.

I have never suffered pain like this before and in my 22 years in the work force I have never been unable to work due to an illness, so I know something is wrong I just don't know how to find it.

Anything you can think of would be appreciated.

Frustrated, and stressed, but still hopeful!

Thanks
6th July 2004
Thank you for your post.

I guess I can understand why some people would get "creative" to get disability in order to provide for their familes, however, my convictions don't allow me to do that.

I have taken myself off all meds. I just take 1x soma, 3 x Tylenol, and 2 simply sleep at bedtime. That gets me about 3-4 hours of sleep. But at least i'm not polluting my system as much.

I have a great support system, so my stress and depression is kept from consumming me. One thing that disturbs me is, I'm only 40 now, if this continues to go undiagnosed and untreated, what will lfe look like in 5 more years. I can hardly get around as it is now, and when I do get out, I can't stand, walk or sit from more than and hour before I have to lay down.

Thanks again for your suggestions, when I have my follow-up with my doctor I will find out about the stones and the spurs.
8th July 2004
[QUOTE=injured betty]When they couldn;t figure it out yet kept giving you pain meds and anti-biotics I would have looked elsewhere. They are called practicing physicians for a reason. It has taken years to decipher what my problems were and I had to do the digging on my own. QUOTE]

Thanks Betty. I totally agree with you.

I only take 1 soma, 3 Tylenol and a dose of simply sleep at bedtime, it's the only way i can get 4 hours of unitterrupted sleep. All of my other meds are in a box!

I would always ask the doctors "why does the left side of my head and neck hurt more when only the nerve on the right is pinched by the buldging disc?"

Their answer "I don't know"

Looking for answers on my own I came across TMJ Disorder. I go to the dentist, only to find out that I have 3 wisdom teeth that need to come out, 2 of which are laying under my jawbone.

Here's the kicker, the 2 that are under my jawbone are on the left side, which explains that pain. I have to talk to the surgeon about the TMJ disorder.

So at least I have the head pain figured out. It's only a matter of time before I get the rest of the body dianosed.

Thanks for your post!
My next move is to have my thyroid checked and then an allergist.
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