Thanks for the reply SL.

I've had sooo many tests done in the last 9 1/2 yrs. Was dx'd with fibro in 96. My dr could of sworn I had MS. My last MRI, believe it or not, was at the beginning of this year. It was still normal. Have had 2 spinal taps...normal. Cervical mri...normal. They would not do a lumbar spine mri though....I asked them to.

All blood testing done through the years have been totally normal.

I asked my phsychologist what is causing my tremors after I do anything physical with limb. She said it's from weakness. I can't believe how fast and crazy the tremor gets.

Then I have a postural tremor in my right wrist and thumb that is there 24/7. It gets worse when stressed, excited, used that hand-arm physically.

Now I am feeling more tremors all over body when trying to eat at dinner table, when sitting in an uncomfortable chair, holding something heavy, etc.

I'm not supposed to be worrying-reading-thinking about parkinsons, but let me tell ya......something's not right. I feel like I'm going to be frozen inside my own body, with my soul yelling for someone to get me out. Each year my body gets stiffer and stiffer. My face-eyes-neck-throat-tongue get stiffer and stiffer each year and I'm scared. I'm scared because no one believes me and blames it on anxiety/depression. I want so bad to ask my dr for some sinemet (sp?) to try, but I'm to chicken to ask him. I know that he would prescribe it for me in a heartbeat. Maybe it's me. Maybe I really don't want to know......

Quote from luv2read:

Thanks for the reply SL.

I've had sooo many tests done in the last 9 1/2 yrs. Was dx'd with fibro in 96. My dr could of sworn I had MS. My last MRI, believe it or not, was at the beginning of this year. It was still normal. Have had 2 spinal taps...normal. Cervical mri...normal. They would not do a lumbar spine mri though....I asked them to.

All blood testing done through the years have been totally normal.

I asked my phsychologist what is causing my tremors after I do anything physical with limb. She said it's from weakness. I can't believe how fast and crazy the tremor gets.

Then I have a postural tremor in my right wrist and thumb that is there 24/7. It gets worse when stressed, excited, used that hand-arm physically.

Now I am feeling more tremors all over body when trying to eat at dinner table, when sitting in an uncomfortable chair, holding something heavy, etc.

I'm not supposed to be worrying-reading-thinking about parkinsons, but let me tell ya......something's not right. I feel like I'm going to be frozen inside my own body, with my soul yelling for someone to get me out. Each year my body gets stiffer and stiffer. My face-eyes-neck-throat-tongue get stiffer and stiffer each year and I'm scared. I'm scared because no one believes me and blames it on anxiety/depression. I want so bad to ask my dr for some sinemet (sp?) to try, but I'm to chicken to ask him. I know that he would prescribe it for me in a heartbeat. Maybe it's me. Maybe I really don't want to know......

Hello again,

This part troubles me, when you say you dr could've sworn you had MS. If he felt that strongly, did he send you to a neuro for accessment and if not, why not?
This last MRI was of what? And if you want an MRI of your spine get it. I have one lesion on my brain. I also want a spine MRI, and I WILL get it. You don't necessarily have to have lesions everywhere to have MS, well let me term it early MS or mild MS.

I understand your fear completely. Like I say, I know I have it, but when I HEAR it from a dr it will take a small toll on me. My husband and I are in "accepting mode" right now.
I know you're scared, but finding out will give your worried head a break. This is no death sentence. Not everyone winds up in a wheelchair. I'm NOT. I'll crawl first. Am good at it. LOL. We have to laugh luv, we have to. I have spent far too much time in my life crying, and not enough laughing.
No matter what, we are going to be OK.
Where are you? I'm in NW Indiana.

What makes you think you could have Parkinsons? I haven't really read alot about that. I will now, just out of curiosity. UH, hate when I have to think of how to spell a word!!! I was best speller from 3rd to 6th grade. Hooray, lol.

Love to you

SL
p.s. I get that thumb thing too. It taps on my space bar. Not everyday though. :wave: