16th March 2006
Thank you for your replies... over the last 9 months, I have seen an opthamologist, a neuro-opthamologist, a cardiologist, a gasteroentologist, two neurologists, and two endocrinologists, I have had an MRI of my brain and a CAT scan of my adrenal glands, which both showed up normal, several different types of diabetes tests, which showed up normal, and tons of blood work, most of which showed up fairly normal.
I also had a test to see if my stomach was emptying at a normal rate, it turned out to be a little slow, so my doctor put me on Reglan, which helped a lot with the nausea, but I recently had to go off of it b/c I started having other side effects from it. They had attributed the nausea to my stomach being slow, but at this point I am beginning to wonder if it was really just covering up the nausea, and the nausea is still from another cause, b/c I know a few people who have slow stomach/digestion issues and don't have the level of nausea from it that I do.
I also had a test of my vestibular system/inner ears done, which actually showed up as being slightly abnormal, and one of my doctors said it could be the problem but there's nothing they can do about it, the others all said, no way, that's not the problem.
In the mean time, I have also been sort of inconclusively diagnosed with Poly Cystic Ovarian Syndrome, and put on glucophage to see if that helps it, but the PCOS doesn't seem to actually be the cause of what's going on with me now, my endocrinologist thinks it may just be the cause of other, past ongoing problems I'd had.
In the beginning, everyone seemed to think it was just my low blood pressure becoming more severe somehow, but I was put back on medication for that, and it didn't help- my blood pressure is supposedly in a normal range now, yet I still feel like I'm going to pass out all the time, and my vision is permanently semi-blacked out. It's like my body is stuck in about-to-faint mode somehow.
At this point I'm just not sure what else is left to be done, but I can't just give up, although I feel like all of my doctors have. They keep asking me if I'm stressed or depressed- well, I wasn't before this all happened to me, not any more stressed than the average person- but I am now!
I also had a test to see if my stomach was emptying at a normal rate, it turned out to be a little slow, so my doctor put me on Reglan, which helped a lot with the nausea, but I recently had to go off of it b/c I started having other side effects from it. They had attributed the nausea to my stomach being slow, but at this point I am beginning to wonder if it was really just covering up the nausea, and the nausea is still from another cause, b/c I know a few people who have slow stomach/digestion issues and don't have the level of nausea from it that I do.
I also had a test of my vestibular system/inner ears done, which actually showed up as being slightly abnormal, and one of my doctors said it could be the problem but there's nothing they can do about it, the others all said, no way, that's not the problem.
In the mean time, I have also been sort of inconclusively diagnosed with Poly Cystic Ovarian Syndrome, and put on glucophage to see if that helps it, but the PCOS doesn't seem to actually be the cause of what's going on with me now, my endocrinologist thinks it may just be the cause of other, past ongoing problems I'd had.
In the beginning, everyone seemed to think it was just my low blood pressure becoming more severe somehow, but I was put back on medication for that, and it didn't help- my blood pressure is supposedly in a normal range now, yet I still feel like I'm going to pass out all the time, and my vision is permanently semi-blacked out. It's like my body is stuck in about-to-faint mode somehow.
At this point I'm just not sure what else is left to be done, but I can't just give up, although I feel like all of my doctors have. They keep asking me if I'm stressed or depressed- well, I wasn't before this all happened to me, not any more stressed than the average person- but I am now!