17th June 2005
Hey everyone! I haven't posted often, but I have been trying to post enough to keep people who may be interested up to date. Please read my other posts so I don't have to bore everyone with the story again ;)
FYI, for those who don't know-- I have not been diagnosed with epilepsy, but I think it's still a possibility.
I had my tilt table test, MRI and EEG. My follow up apt with my Neuro was on Wed of this week. I go into her office, she sits me down and tells me everything came back normal. So, that's good I guess. So then she tells me that she wants to test me for arrythmia. I looked up the symptoms of this, and it is absolutely NOTHING like what I experience during one of my "things." Not to mention, my tilt table test was administered by a cardiologist and he said my heart rate, pulse, and blood pressure were all perfect! So, that pretty much rules out a heart issue doesn't it?
She also tried pinning it on depression. I'm sorry, but depression is not going to cause these funky things that happen to me.
Now, I'm beginning to put two and two together-- ironically, there is a thread at the bottom of this page about catamenial epilepsy and I'm wondering if this is part of my problem. Catamenial epilepsy is caused (well, in essence and by skipping A LOT of details! lol) by a lack (or very little) of progesterone around the time of menses. My "things" happen much much much more frequently around my period-- especially a week or two before it and the first week. Now, how ironic is this-- on the 3rd of this month I was diagnosed with Polycystic Ovarian Syndrome... a syndrome in which a person does not ovulate, which means that I do not produce any (or very little) progesterone! See where I'm going with this? It all kind of adds up!
I went on Prometrium (a progesterone pill) a few weeks ago and the "things" basically stopped! I would get the funny feeling I usually get before one, but the thing would never actually come. However, I was only able to take the pills for 9 days because on day 9 I had a very strange experience after taking one. I was sitting on my floor sewing, and all of a sudden my head felt very funny. I could barely see, I couldn't really move, I couldn't talk, and could BARELY walk.. I practically crawled to my computer to see if my boyfriend was online to tell him I needed help (my mom was out of town for the weekend), so I got on the computer and saw he was on and started typing away. Everything made perfect sense to me- but when I saw the conversation later when I was better I couldn't believe what it said! If i had wanted to write "I need help" it actually said something like "Et nfegh hrep" and the like. But, I remember typing it and seeing the RIGHT words. Weird, huh? So a few min later my little sister came home so I crawled to the living room to see her and I cried for over an hour, except I don't remember any of it. I don't know what that was, but my mom and (older) sister are saying it was a panic attack. May have been, they do run in my family.
Okay, so anywho-- does any of this sound right to anyone?
Also-- are EEGs and MRIs always right?
I just feel like someone is missing something! It's so frustrating to be the only one who knows how I feel and to not be able to explain it or have the Dr take me seriously! The woman is STILL insisting I'm "fainting" -- even though I never ONCE said I've fainted!
Good news though! I'm looking for a new Neuro! :D
FYI, for those who don't know-- I have not been diagnosed with epilepsy, but I think it's still a possibility.
I had my tilt table test, MRI and EEG. My follow up apt with my Neuro was on Wed of this week. I go into her office, she sits me down and tells me everything came back normal. So, that's good I guess. So then she tells me that she wants to test me for arrythmia. I looked up the symptoms of this, and it is absolutely NOTHING like what I experience during one of my "things." Not to mention, my tilt table test was administered by a cardiologist and he said my heart rate, pulse, and blood pressure were all perfect! So, that pretty much rules out a heart issue doesn't it?
She also tried pinning it on depression. I'm sorry, but depression is not going to cause these funky things that happen to me.
Now, I'm beginning to put two and two together-- ironically, there is a thread at the bottom of this page about catamenial epilepsy and I'm wondering if this is part of my problem. Catamenial epilepsy is caused (well, in essence and by skipping A LOT of details! lol) by a lack (or very little) of progesterone around the time of menses. My "things" happen much much much more frequently around my period-- especially a week or two before it and the first week. Now, how ironic is this-- on the 3rd of this month I was diagnosed with Polycystic Ovarian Syndrome... a syndrome in which a person does not ovulate, which means that I do not produce any (or very little) progesterone! See where I'm going with this? It all kind of adds up!
I went on Prometrium (a progesterone pill) a few weeks ago and the "things" basically stopped! I would get the funny feeling I usually get before one, but the thing would never actually come. However, I was only able to take the pills for 9 days because on day 9 I had a very strange experience after taking one. I was sitting on my floor sewing, and all of a sudden my head felt very funny. I could barely see, I couldn't really move, I couldn't talk, and could BARELY walk.. I practically crawled to my computer to see if my boyfriend was online to tell him I needed help (my mom was out of town for the weekend), so I got on the computer and saw he was on and started typing away. Everything made perfect sense to me- but when I saw the conversation later when I was better I couldn't believe what it said! If i had wanted to write "I need help" it actually said something like "Et nfegh hrep" and the like. But, I remember typing it and seeing the RIGHT words. Weird, huh? So a few min later my little sister came home so I crawled to the living room to see her and I cried for over an hour, except I don't remember any of it. I don't know what that was, but my mom and (older) sister are saying it was a panic attack. May have been, they do run in my family.
Okay, so anywho-- does any of this sound right to anyone?
Also-- are EEGs and MRIs always right?
I just feel like someone is missing something! It's so frustrating to be the only one who knows how I feel and to not be able to explain it or have the Dr take me seriously! The woman is STILL insisting I'm "fainting" -- even though I never ONCE said I've fainted!
Good news though! I'm looking for a new Neuro! :D