Thanks Jay for taking so much time to answer. I am currantly taking 10mg Prednisone (I started off with 30 mg) and 100mg Immuran. These meds have allowed me to have the stents taken out of my ureters but my back pain hasn't gotten any better. I am on a maintainance dose of oxycontin every day but wish I could stop. My doc says this is as good as I'll get but I'm not ready to except that. I am looking for a doc that has more than one patient with this disorder and knows a little more about it. My doc is half way in the dark. Can you help with that? Do you know anything about the Mayo Clinic or the Cleveland Clinic? Do you think they could help?