- I'm new, but not to RSD! 13th August 2004
... relief so wasn't worth doing again. I've also been on Neurontin , Tramal, a calcium channel blocker and mexitil. I...
... relief so wasn't worth doing again. I've also been on Neurontin , Tramal, a calcium channel blocker and mexitil. I...
- Weight Gain With Neurotin 12th August 2004
... personally have been on a relatively low dosage of neurontin for nerve pain in my left foot for about 4 years....
... i've heard a lot of people have gained weight on neurontin . i was only on it for like 3 weeks, i hated it because ... me on topamax which is an anticonvulsant just like neurontin , and works the same way. but i didn't get sick off...
... i've heard a lot of people have gained weight on neurontin . i was only on it for like 3 weeks, i hated it because ... me on topamax which is an anticonvulsant just like neurontin , and works the same way. but i didn't get sick off...
- Methadone and Neurotin for pain 11th August 2004
... I currently am on neurontin and did use methadone a while back. They are both...
- Bryn!!!! 6th August 2004
... 3 when i got my first stim..
I am still taking my Neurontin , 3600mg a day, elavil 50mg at bed time, lortab 10...
- Rude dr. says RSD does not spread. 3rd August 2004
... s. Gee I wish I didn't go into tell him about the neurontin . Are these true? I thought RSD can spread and not...
- appt with pm next week 2nd August 2004
... appt with PM? I would really like to get off the Neurontin . Hope everyone is doing well....
... I think that is doing almost as much good as the neurontin . But maybe taking them together is helping a little...
- new here and frustrated with pain and dr.s 29th July 2004
... s and can't stand them. The one dr. increased my neurontin (which I told him that we had done that and had to...
... But when I first got diagnosed January I was put on neurontin , which made me sick, so I switched to Topomax, and...
... s. :) The same pain though.
I am on Tegretol, Neurontin and Elavil. And Clonazepam for jerks and tremor.
...
- Help! 27th July 2004
... that any of us are on for RSD. Alot of us take either neurontin or topomax, which are anti-convulsant pills (for seizures...
- RSD and extreme fatigue 26th July 2004
... real "pain in da butt" side effect....My hubby takes Neurontin 3600mg day, Zonogran 200mg day, Effexor 150mg day...
- Feelings on Tomapax? 23rd July 2004
... am beginning on Monday to start Tomapax. I was on Neurontin and I gained 40lbs in 7 months so dr is trying a different...
... i was on neurontin for a few weeks, it made me sick. so then i got put...
... Hi Andrea & angel! I'm supposed to be on Neurontin for nerve pain, & I hated it. It made me dizzy, tired ... difference, but I lost 25 pounds after my injury and the neurontin didn't affect it either way. I'm curious about Tompax...
- Spinal Cord Simulator Questions 23rd July 2004
... makes me feel stupid and I forget everything. I am on Neurontin 600mg 3 times a day and Amptripline 50 mg at night ... crazy. So these past couple of day I been weening off Neurontin and boy I have had a massive headache thru the whole...
... limited supply unles i really need them. I Still take Neurontin 800mg four times a day, Elavil 50mg at bed time, and ... stim. You might have to stay on a low dose of your neurontin or topomax for alittle while just to see how the...
... Boy I dont know if it was just coming down off of Neurontin or this new medicine but my whole body felt like pins...
... day. So it might be a combination of coming off the neurontin and getting put on the topomax. I don't know the effects ... of coming off neurontin cause I was only on it for like 2 weeks, it made me...
... really get off the drugs? I am currently taking:
Neurontin 3600mg a day
Methadone 60mg a day
Bextra 20mg a...
... want OFF these Drugs) They just switched me off of Neurontin to Tomapax and I got severe headaches that I could ... pain in my hand is still there more so than when on Neurontin . (so I know that the Neurontin took the edge off) ... The one good thing about not been on Neurontin or Tomapax at this time is that I have my brains back...
... foreverangel,
did you say that you were on neurontin and topamax at the same time?...
... Hi Msdrea,
No I was just slowly taken off Neurontin and put on topamax. Sorry I wasnt clear on that. ... drags their feet on this..I will have to go back on Neurontin ..cause at least I know Neurontin helps..it just put...
- Pain Clinic 21st July 2004
... sympathetic nervous system from RSD and meds. Are you on Neurontin ? This drug co on 5/14/04 just got slapped with the ... dizziness, brain fog etc. :) I weaned myself off the neurontin when I discovered this & not an easy thing to do. ... though. The first thing a dr. will do is increase neurontin before any othe pain med. If you go to a pain clinic ... Honesty is the best policy(except when it comes to Neurontin ). Another note is the pain clinic (from peers in my ... group) said the 1st thing they do is increase the Neurontin and try to decrease your pain meds. :) Wrong move...
... With regards to the Neurontin , I haven't been on it for over 3 yrs and my brain...
... [SIZE=3]I'm with Shelley on the Neurontin . I only took that for about a week or two and that...
- Missing friends - Ariel, Gina, Cathy, Edna, Lizotte, others? 14th July 2004
... Viruses killing my machine :) :)
And with the Neurontin head, I could not find my way back here :) :D
...
- Weight Problems 8th July 2004
... Hello Kyma!
I take a very high dose of Neurontin . I gained 75 pounds in less then a year. That's right...
- So Confused! You have RSD-now you don't. 25th June 2004
... have a soft tissue swelling problem" and gave me some Neurontin and scheduled an appt. in a month. The Neurontin has...
- hi 22nd June 2004
... anything for discomfort or therapy other than the neurontin . It wasn't much later and the pt left a message on ... started getting worse or I needed a refill on the neurontin . I wonder if the pt said something to the nurse that ... she thought I needed something more than just neurontin to help. The doctors office was closed by the time...
- Had my 1st nerve block done today and probably last. 22nd June 2004
... soft tissue problem there and prescribed me to take Neurontin , I have been taking 2 300mg pills a day and don't ... kinda moving a little(bone changes) Oh well maybe the Neurontin will work.
I was pretty nervous about the nerve...
... both types of pain.
A lot of people here take Neurontin and take a lot more than you're taking so who knows ... Also, I might have this wrong, but I believe that Neurontin is for nerve pain. If you think your pain is from...
- Questions 18th June 2004
... once again something to discuss with a PM. I was on neurontin like you, and had no help from it, so i was switched...
- MollyBrown 13th June 2004
... my questions and says I should just keep taking the Neurontin (1800mg a day) and the Vicodin and give it time, the...
- Something to think about. 12th June 2004
... started about six weeks after surgery. I am taking Neurontin 900 mg four times a day and Keppra 500 mg two tabs...
- Leaving for my 1st block 11th June 2004
... you're not already on it or something like it like neurontin (i was on that first, but it made me feel sick so...
- Vision changes 11th June 2004
... I know other anti-convulsant meds like Topomax or Neurontin can do the same thing. Next time you see your doc...
- Big Paul struck out 3rd June 2004
... of 8-9 without being offered anything stronger than Neurontin . My doctor tried medication from several different...
- another new diagnosis 3rd June 2004
... taking and if they work? I have been taking 1600 mg of Neurontin four times a day for over a year and it all of a sudden...
- Topamax? 2nd June 2004
... or something like that. i had previously been on neurontin , but it was making me sick, so my pm switched me to...
- just been diagnosed with RSD 30th May 2004
... prescribed to help with the burning. Examples are Neurontin and Topomax. Anti- depressants, anti-inflamatories...
- Help with IME W/C exam results 26th May 2004
... insurance has now put me on Lorcet 10/650 3x day, Neurontin 600 3x day, Desyrel 50 mg, 1-3 at bedtime. Seem to...
- in pain right now, any info on what to do? 20th May 2004
... nerves in my jaw as the pain came and went. I am on neurontin daily, and that just seemed to inflame it worse. Now...
- Opioid phobic PMD'S 17th May 2004
... painfull syndrome. I have tried other medications such as Neurontin , Vioxx, Effexor, and even was on a Steroid Prednasone...
- Thank you 15th May 2004
... My daugther take 900mg neurontin per day , in general terms she feel good. When she...
- sorry another question...Medication 11th May 2004
... you should definitely ask about them. I take both neurontin and zonegran (the zonegran was prescribed after my...
- Headaches 5th May 2004
... I think back it maybe went away after I startet on Neurontin , I'm not sure, new pains and symptoms comes all the...
... your headaches are better now. When I first started neurontin , I had horrible headaches for about 2 weeks. Even ... headaches, they came back. I put up with it because neurontin helps me a lot, and they did finally subside. It is...
- Looking for a Doctor that is familiar with RSD. 4th May 2004
... Most people here are on an anti-seizure drug like neurontin or zonegran or a couple others. A low dose tricyclic...
... the regression began and it got even worse.I was on Neurontin 600mg tid Effxor bid and Vioxx qd. I no longer see ... and the 5.325 Percocet that help (a little), but the Neurontin did not help me much. I need a doctor that is not...
... not have stopped the RSD pain.
You said that the neurontin isn't helping you at all. You should ask your doc...
- RSD of the Ear?! 3rd May 2004
... because my medication is wearing off. I am taking Neurontin and Keppra.
To everyone, thanks for welcoming...
... started crying.
The only treatment I am on is Neurontin 300 mg three capsules four times a day and Keppra ... often as I am about worn out with this pain. The Neurontin and Keppra help with the pain, but I still have pain...
... same boat. I am continuing to take the high dose of Neurontin and Keppra for my pain.
I did not learn much...
- started pt Friday 2nd May 2004
... as of Friday, I started pt and have started taking Neurontin 300mg at bedtime and wearing a Strassburg sock at...
- A note.... 2nd May 2004
... any brain fog from the zonegran? I sure did from the neurontin , but the zonegran, now that I know it was the methadone...
- Questions about Neurontin 1st May 2004
... In case you didn't see it I posted my reply to your neurontin question under the "!!!!!!!help!!!!!rsd!!!!!" thread...
... i was on neurontin , it made me sick, but made my arm better. so my doctors ... switched me to topomax, its like neurontin . there are several different types of medications...
... :) Hi.... Neurontin .....Hubby is taking 3600mg daily and it does help ... the burning pain in his foot....In addition to the Neurontin they also added a medication called "Zonogran" 200mg ... daily...This in addition to the Neurontin appears to be helping....We tried the Lidocaine patches...
... I take neurontin for nerve pain and foot drop due to herniated discs ... . Since getting on the neurontin I've been able to quit taking narcotics. I also use ... which gets at the nerve endings from the outside. Neurontin was originally manufactured for seizures due to epilepsy...
- 10 year old with RSD 30th April 2004
... tricky. Overall she's had 6 nerve blocks, been on Neurontin , Ultracet, Catapres, Nortriptyline, Methadone, etc...
- !!!!!help!!!!! Rsd !!!!! 30th April 2004
... I was also on Neurontin 600mg 3x a day Effexor 2x a day and Vioxx. I also...
... comes down to the individual doctors.
Were the neurontin not working for you? There are other drugs to try...
... epson slat baths, etc. Someone PLEASE tell me about Neurontin , I was just told about it a few days ago....
... Hi Kimmie :)
Neurontin is an anti-convulsant that is commonly prescribed ... different for children. The net is loaded with info on Neurontin too. Try googling it.
Gina :)...
... Kim, besides neurontin , there are several other anti-convulsants that are ... Topomax are 2 of the most known (to me anyway). I take neurontin and it helps me tremendously. I am going back and...
- rsd??? 28th April 2004
... just started pt on Friday and have started taking neurontin . Only 300 at bedtime though and was told to try a...
... no matter which it is. You are on a low dosage of neurontin , so don't be afraid to ask your doc if you can up...
- Electrical shocks? 26th April 2004
... termites eating from his bone marrow out. He was put on Neurontin for the zaps, which DID help, but ended up turning ... charge and put my foot down and tapered him off the Neurontin completely. He went through many other medicines...
- Spreading to my foot (I think) 25th April 2004
... it. So, now my doc now told me to stop taking the neurontin to see if it goes away. I am dreading it. I am weaning...
... Diuretic which did nothing. Then I was told to stop Neurontin cold turkey. It's good you aren't doing it that way ... off and that did not work. I started back up on the Neurontin and was prescribed a compression (torture) pump. I...
- something for the burning 18th April 2004
... help with the burning. Also anti-convulsants like Neurontin help some people.
Hope this helps
Gina :)...
... all for me. i am also taking Gabitril instead of the neurontin that i used to be on.It just stopped working.My pain...
... i was previously on neurontin , but i was getting sick when i was on it. i have a...
- Newbie here 15th April 2004
... best help from anti-convulsants; I use Tegretol and Neurontin . Most people only use one of them. We all are different ... helps your pain. I have been on as high as 3600 mg of neurontin , but then I was in a brain-fog. I am now on 1800mg...
- Neurontin Immunity? 14th April 2004
...
When I was first diagnosed 4yrs ago I was put on Neurontin . I was having to increase the dosage every 2wks for ... heart arythmias and works on nerve impulses, unlike Neurontin which is an anti-seizure med. I hope this helps -...
- lamactil 14th April 2004
... jump out of my skin. I had the same experience with Neurontin at 1800mg. Has anyone else had this problem? I'm...
- Third block tomorrow 12th April 2004
... shortness of breath, and a few other things listed here. Neurontin doesn't have so many side effects listed on the same...
- Lots Of Rsd Questions~ 12th April 2004
... prescribe the medication.
My pain doctor has me taking neurontin , elavil, percocet, but I don't get a lot of relief...
- Going nuts with RSD! 11th April 2004
... now on two types of anti-convulsants Tegretol and neurontin , this is the medicin to try for neuropathic pain....
... right? :) ). You need to get on an anticonvulsant like Neurontin , Zonegran, or Topamax . There are others, but ... about? (Correct me if I'm wrong here guys).
I take Neurontin and Zonegran, but I just started the Zonegran since...
... anti-seizure meds/neuropathic pain blockers besides neurontin that have fewer side effects. I'm on Zonegran and...
- drug induced depression 4th April 2004
... seizure meds to see if they can give me relief (ie Neurontin , tegretol, lamactil). I am also on oxycontin. So...
... brings you down. If the oxy works why are you on neurontin ? I don't take any narcotics because the neurontin ... Because taking narcotics will lessen the effects of the neurontin . I do not take lamictal but some side effects are ... build up a tolerence to all meds over time. For me, neurontin took a couple months as they gradually increased the...
... build up a tolerence to all meds over time. For me, neurontin took a couple months as they gradually increased the ...
wE are currently working our way up to 3000mg of Neurontin . did your doc say that 1200mg is max?
just curious...
... :) HI BETTY,
I TAKE NEURONTIN 1200 MG, THREE TIMES A DAY, SO MY DOSE IS 3600 MG...
... Ask your doctor about taking Mexitil. I was on Neurontin and having to increase the dosage every 2 weeks. My...
... it is not when he told you to take them. Meds like neurontin can make you very tired, and driving while on them ... at first can be dangerous. Another good med like neurontin that I like is zonegran.
Good luck to ya'll.
Cathy...
- Help! Told to walk RSD off! 3rd April 2004
... little relieve. However, I am having good results with Neurontin . I am working my way up to 3600 mg per day.
...
- Recently Diagnosed 2nd April 2004
... t do anything. I was on morphine for pain and then neurontin . I recently switched to topamax, and hydromorphone...
... you to be on something to help with the nerve pain ( neurontin , zonegran, topamax too I believe), and then something...
- On to a perm SCS now 1st April 2004
... seas. I miss Ozzie, Captain Causalgia and all the Neurontin you wanted. The meals, dancing, shopping, laying...
- First visit to the neurologist; trying to make a diagnosis. 1st April 2004
... taking the Bextra for a few days and start taking Neurontin . He is also going to order a 3-phase bone scan for...
- Medication 31st March 2004
... he felt a litlle relief. The pain doc put him on Neurontin . He took it at bedtime and barely slept that night ... and they told him to take 2 of his Loritabs with the Neurontin . This did help some.
So yesterday, he got his second ... block. The dr increased his Neurontin . My husband asked the pain doctor for a prescription ... of Loritab to take with the Neurontin and he said he couldn't write him one. He had to go ... yesterday. He told him that if the blocks and the Neurontin didn't work that it probably wasn't rsd. That's not...
... Usually one of the meds is an anti-seizure med like neurontin or topomax or zonegran, but the second one is often...
... really treating his pain! They are increasing the Neurontin but he doesn't get any sleep with that. It makes him...
... he can take an over the counter sleep aid with the neurontin . Or I take valerian root pills (3) and they help me ... doctor that he's having problems sleeping with the neurontin and perhaps he can prescribe something. Ambien works...
... Hi Mamu,
That is not true that if the blocks and neurontin don't work that it's probably not RSD. The blocks...
... and stiffness started. He is currently taking 600mg Neurontin , 10mg ambien and Darvocet when needed.
I have a...
... You can still have RSD even though blocks and/or neurontin don't help. Maybe the other doc ought to either up ... the neurontin or change it to zonegran or topamax. 600mg isn't very ... much Neurontin . I'm on 3,200mgs daily, plus 100 - 200mgs of Zonegran ... was just added besides. There's people who take more neurontin than I do too.
I'm way behind on reading posts...
... facts. So, he had a block done and he started him on neurontin 300mg. He went for his second appointment and nerve ... He saw a different doctor that time. He upped his neurontin to twice a day. They do want to increase it to more ... him that if he didn't respond to the blocks and the neurontin that it probably wasn't rsd.
My husband told me...
- 14 year old Sister just diagnosed. 28th March 2004
... who have to suffer from this.
Right now she is on Neurontin (don't know the milligrams), celebrex, some sleeping...
- Current Meidications & any new treatments that are working for you 26th March 2004
... am taking zonegran (an anti-siezure medication like neurontin , but supposedly fewer side effects - we'll see, I...
... take Mexitil (works on nerve impulses, better than neurontin ), percocet & celexa. I have RSD in my right hand/wrist...
... donnelly49,
I am taking neurontin 2100mgs, fentanyl patch, vicodin, clonidine, flexorils...
... but here goes...
I'm on 25 mgs of Topamax, I was on Neurontin , like everyone else, but it made me sick. I was on...
- Zonegran 17th March 2004
... Jewel....My hubby was on Zonegran in addition to the Neurontin which helped with the "burning" pain...Well, like...
- Well I went to the doctor today! 12th March 2004
... more meds. I am on Topamax (which he increased) and Neurontin (just started) which I thought was kind of odd. Is...
... help you.
I am currently taking Tegretol with Neurontin but if this doesn't work I am dropping the Tegretol ... together frequently. Good luck with all the new meds. The neurontin may make you feel kind of "funny" at first. I am assuming...
- Question About Methadone for Pain Control 10th March 2004
... that should wear off soon too. It's just like the neurontin - I just have to get past the side effect period....
- SMP vs. SIP when it comes to treatment options 6th March 2004
... out of it. He added Tegretol and Baclofen to oxy and neurontin . All of this does nothing for the pain, just puts...
...
I havent taken Tegretol before, but I am on Neurontin 2800 mgs and it just makes me snowed.. The Baclofen...
- Lumbar Sympathetic Blocks for my daughter/dad searching for advice 5th March 2004
... but I dont know if the doctors do. They have her on neurontin and percocet which do nothing. She cries everyday...
... familiar with RSD. There are other drugs available if neurontin is not helping. Some of the antidepressants also function...
... being that she is newly onset.
In regards to the neurontin and percocet.. I am on 2800mg of neurontin and it...
- Susie/Saluki 29th February 2004
... here's the biggie, I had big time side effects with neurontin . (hand tremors went on for days) baclofen caused...
- Progress update - good! 26th February 2004
... me on Zonegran instead. He said it should help like Neurontin does (I can't take Neurontin) with fewer side effects...
... :)).
My doc's PA mentioned Zonegran. I am on Neurontin though, so i'm not sure if she meant to add it or...
- Frozen shoulder adjustment? 25th February 2004
... Celebrex I was on for my arthritis. They kept me on Neurontin through most of the therapy because I had what seemed...
- rsd and your eyes? 23rd February 2004
... being so late. Allergies can also cause the itching. Neurontin most definitely messes with your vision too. I'd call ... I watch it, so why the blurry vision? Probably the neurontin and tiredness (my guess). I picked up a pair of non...
- Ice or heat!!!!???? 22nd February 2004
... Hi again,
Neurontin is a common antiseizure med prescribed for RSD. Perhaps...
- Do I need a nerve block? I have rsd please reply. 21st February 2004
... lot of us take a combination of medications such as neurontin or baclofen, nortriptylene (which also helps with...
... a stronger pain med in addition to something like neurontin , which helps with the burning nerve pain and the zaps...
- Rsd Sufferer 16th February 2004
... Much On Land. I've Been In Ot Since May 02. I Take Neurontin 3600mg Q Day, Dextromethorphan 180 Q Day, And Nortripyline...
- just hello 15th February 2004
... though some of them took literally months (like the neurontin tiredness and stuff).
I wish you luck, and will...
- Worried that I have RSD in foot...some questions 14th February 2004
... appointment. She mentioned that I may need to take Neurontin . I have no idea if this podiatrist is "qualified"...
- Have a date for SCS 13th February 2004
... meds for over a year now with just increase in my Neurontin , but he siad the meds are a part of helping the stim...
... of my meds at all. I took all my normal meds, my neurontin (2600mg) elavil (50mg) Lortab (10/750) and my synthroid ... me that I needed to stay on the meds expecially the neurontin to help make the stim work right. BC the neurontion ... going to the brain and breaking the pain cycle the neurontin helps the brain to process the vibrations as non pain...
- First Block 11th February 2004
... use percocet for breakthrough pain. He also upped my neurontin dosage.
Anyone have success with their second block...
... use percocet for breakthrough pain. He also upped my neurontin dosage.
Anyone have success with their second block...
- 18yrs old newly diagnosd w/RSD-scared 9th February 2004
... was referred for injections after pain medicine and neurontin stopped working, and it started spreading from my...
- Still waiting for answer and help 9th February 2004
... the right hand originally was ultra sensitive, the Neurontin seemed to help that, and although the other limbs...
