I take Lamictal myself. Personally, I like it. I had several symptoms which had annoyed me for years- a stinging rash with hivey welts if I got any pressure anywhere- like if my jeans squeezed at the waist or underwear had a seam that left an imprint on my side- I would get a hivey welt. If I scratched- it got worse- but I had to scratch , it was horrible. I got this hive/welt condition after I took several anti-biotics and several different types of narcotic pain relievers after I went to the dentist for a root canal. I became very ill once I started taking the medications, the dentist didn't know if it was the anti-biotics or the the pain pills.Finally, the last antibiotic he gave to me, made me break out in hives, and for 9 years after that, I had hives every day until I took the Lamictal. I completely was not expecting it. I thought I would have to have an allergy pill or something to that affect, I also had an extreme feeling of pressure in my head, eyeballs that moved really fast all around in my eye socket, anxiety,panic, fear of going anywhere alone but fear of going out anywhere unless it was with my mother or sometimes, my sister. I used to be horrified of being left alone, we moved here to Va. in the middle of nowhere,and although I am 40 yrs. old- there was a point where I would practically panic if I didn't know where my mother was- and I mean if she was outside I had to know where outside- was she hanging out some sheets to dry? Was she at the Garden? At the pear tree? Fortunately, that got better- she works at a small restaurant which she owns that is only 1 and a half miles from the house. I was going to see a counselor up until about three months ago when I started to have periods of 6-7 days of severe nausea and dizziness, if I got up off the couch I felt like I would pass out and throw up at the same time. It felt like someone forcing me to read in the car. That happened 2 months in a row then the third month, the 7 day spell ended with me rigid and stiff like a mannequin- my arms were up in the air in front of me just like a mannequin. Then I got a migraine on my left side and when the pain came- I was amazed, all other symptoms had left . Went to E.R., a shot then came home and the next morning, I started getting wobbly in my head and neck and then my neck started ; jerked off to the left side- cramping and having spasms until my neck would be held there for one minute or so. These spasms, because they involved nodding of my head and were rhythmic made me wonder if they were seizures. I was still very wobbly when I walked and had Parkinson like movements while sitting as well. I went to see my neurologist, and since I was having these "spells" so often- I actually had one in his office- he said , "This is not a seizure. I am at a loss, i've never seen anything like this." Then he says, "I think it might be anxiety." Now. trust me, I have had anxiety for 24 years and even under the worst times of anxiety, I have never had my neck twist and cramp and then have it move down but only on the left side til I doubled over with pain and was crying out. I was racking my brain trying to figure it out and it dawned on me to check my meds because I had some new ones. They had given me a shot of Phenergan at the E.R. (1st) visit then I had been given and was taking Phenergan from there on out, and I was taking Meclizine already for the nasusea and prior to that diphenhydrinate(similar to dramamine) then another Dr, said I needed clindinium for spastic bowel (sorry!) Also I had benn taking tramsdol- a non-narcotic pain pill for near daily headaches I had. All of these drugs except for the last one fall under the group called anti-cholinergic- none of them are supposed to be taken with anti-convulsants and I take two of those. The last one- tramadol- is not sopposed to be taken with anti-convulsants . I also take anther drug Reglan, for my stomach which contradicts the anti-convulsants. This Reglan was one shot they gave me at the E.R . Now I suspect since I was taking all of these contradictory drugs that I had a vile reaction. Doctors seem to just do what they want without regard to what other doctors have prescrbed- I don't even think they look especially when they are with you are in the E.R. I am already on disability and I will call my regular doctor for help and she will say," I am sorry, I can't help you.Go to the E.R." and I have to go to the E.R. or I won't get any help. Medicaid doesn't like you going to the E.R. unless it's a REAL emergency. Now the neurologist who said he didn't know what I was having and wrote it off as "anxiety", has written a letter to my regular doctor saying that they were not seizures I was having but he thought anxiety and I needed to go to a psychiatrist! I don't think it's ever going to end! Especially in a small town- some doctor puts the word out that you are sick in the head and not in the body- you might as well forget it ! I have a dear friend. about 20 years older than me, who is severely unipolar. He says he has not had the crushing depression. He started taking lithium at age 30 or so and it worked wonders for him- BUT he didn't want to take it because he missed that "high" (These are things he told me). He finally began to seriously take it around age 39 and he remains stable as long as he continues to take it, Everyone is different, You have a complicated problem, as do I, but they evolve around different issues. I hope you can find answers quickly.Until then, I will keep you in my prayers.
I take Lamictal myself. Personally, I like it. I had several symptoms which had annoyed me for years- a stinging rash with hivey welts if I got any pressure anywhere- like if my jeans squeezed at the waist or underwear had a seam that left an imprint on my side- I would get a hivey welt. If I scratched- it got worse- but I had to scratch , it was horrible. I got this hive/welt condition after I took several anti-biotics and several different types of narcotic pain relievers after I went to the dentist for a root canal. I became very ill once I started taking the medications, the dentist didn't know if it was the anti-biotics or the the pain pills.Finally, the last antibiotic he gave to me, made me break out in hives, and for 9 years after that, I had hives every day until I took the Lamictal. I completely was not expecting it. I thought I would have to have an allergy pill or something to that affect, I also had an extreme feeling of pressure in my head, eyeballs that moved really fast all around in my eye socket, anxiety,panic, fear of going anywhere alone but fear of going out anywhere unless it was with my mother or sometimes, my sister. I used to be horrified of being left alone, we moved here to Va. in the middle of nowhere,and although I am 40 yrs. old- there was a point where I would practically panic if I didn't know where my mother was- and I mean if she was outside I had to know where outside- was she hanging out some sheets to dry? Was she at the Garden? At the pear tree? Fortunately, that got better- she works at a small restaurant which she owns that is only 1 and a half miles from the house. I was going to see a counselor up until about three months ago when I started to have periods of 6-7 days of severe nausea and dizziness, if I got up off the couch I felt like I would pass out and throw up at the same time. It felt like someone forcing me to read in the car. That happened 2 months in a row then the third month, the 7 day spell ended with me rigid and stiff like a mannequin- my arms were up in the air in front of me just like a mannequin. Then I got a migraine on my left side and when the pain came- I was amazed, all other symptoms had left . Went to E.R., a shot then came home and the next morning, I started getting wobbly in my head and neck and then my neck started ; jerked off to the left side- cramping and having spasms until my neck would be held there for one minute or so. These spasms, because they involved nodding of my head and were rhythmic made me wonder if they were seizures. I was still very wobbly when I walked and had Parkinson like movements while sitting as well. I went to see my neurologist, and since I was having these "spells" so often- I actually had one in his office- he said , "This is not a seizure. I am at a loss, i've never seen anything like this." Then he says, "I think it might be anxiety." Now. trust me, I have had anxiety for 24 years and even under the worst times of anxiety, I have never had my neck twist and cramp and then have it move down but only on the left side til I doubled over with pain and was crying out. I was racking my brain trying to figure it out and it dawned on me to check my meds because I had some new ones. They had given me a shot of Phenergan at the E.R. (1st) visit then I had been given and was taking Phenergan from there on out, and I was taking Meclizine already for the nasusea and prior to that diphenhydrinate(similar to dramamine) then another Dr, said I needed clindinium for spastic bowel (sorry!) Also I had benn taking tramsdol- a non-narcotic pain pill for near daily headaches I had. All of these drugs except for the last one fall under the group called anti-cholinergic- none of them are supposed to be taken with anti-convulsants and I take two of those. The last one- tramadol- is not sopposed to be taken with anti-convulsants . I also take anther drug Reglan, for my stomach which contradicts the anti-convulsants. This Reglan was one shot they gave me at the E.R . Now I suspect since I was taking all of these contradictory drugs that I had a vile reaction. Doctors seem to just do what they want without regard to what other doctors have prescrbed- I don't even think they look especially when they are with you are in the E.R. I am already on disability and I will call my regular doctor for help and she will say," I am sorry, I can't help you.Go to the E.R." and I have to go to the E.R. or I won't get any help. Medicaid doesn't like you going to the E.R. unless it's a REAL emergency. Now the neurologist who said he didn't know what I was having and wrote it off as "anxiety", has written a letter to my regular doctor saying that they were not seizures I was having but he thought anxiety and I needed to go to a psychiatrist! I don't think it's ever going to end! Especially in a small town- some doctor puts the word out that you are sick in the head and not in the body- you might as well forget it ! I have a dear friend. about 20 years older than me, who is severely unipolar. He says he has not had the crushing depression. He started taking lithium at age 30 or so and it worked wonders for him- BUT he didn't want to take it because he missed that "high" (These are things he told me). He finally began to seriously take it around age 39 and he remains stable as long as he continues to take it, Everyone is different, You have a complicated problem, as do I, but they evolve around different issues. I hope you can find answers quickly.Until then, I will keep you in my prayers.
Regalan can cause involuntary movements such as the neck & manniquine issue you had.
Go to a different doctor and don't even mention to them or in your paper work when you 1st go that the dr said it was in your head or they really will assume that it is in your head (been there, done that).
If the dr acts as if he does not know that Regalan can cause the issue you had (involuntary movements) then he needs to go back to med school.....
