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   Thank you all... (ALS - Amyotrophic Lateral Sclerosis board)

9th July 2003
Goofboggin, my dad's symptoms "gradually" came on after he was in the hospital for a staph infection in his knee. He took injections of antibiotics for 2 weeks or so. The symptoms were very minimal at first and came and went. Depending on the day and how much pysical activity he was doing, he noticed the symptoms more. (The word I want to ephasise is "gradual") He then started taking Lipitor for his high blood pressure. The symptoms started to come and stay. He was a firm believer that that drug Lipitor caused most of his problems. The doctors told us that when a person has sporadic type ALS, it lays dormant in the body until something like a drug, infection or chemical triggers it. Most PALS that I have encountered also have had contact with something that they believe triggered it for them. So yes, in the begining his symptoms came and went. But worsend with time and came on slow. He had a lot of weakness in the begining, and severe muscle cramps. He would describe it like having a charlie horse. Many, many diseases mimic ALS though. Just pick any motor neuron disease. A vitamin deficiency, Lyme disease, and autoimmune diseases also can mimic ALS. That is why I said in my above statement, that your symptoms sound familiar.
I truly hope that your symptoms will just go away. Or that you just need more vitamins. God be with you at this time. Let us know how things go.
9th July 2003
OMG!!!
I started taking Lipitor two years ago, that is when these terrible cramps started. I recently (two months ago) quit using it. I also have this electrical feeling shock in my head and face sometimes.

I have made an appt with my brother's Neurologist. At first they said late Oct. I asked the receptionist to please tell the Doc who I was and what symptoms I am having. She called back with an appt for July 25 for EMG and nerve conduction.

I almost fell like this is not that serious and I should just "zone" on it awhile. But I guess it will be better to know.

Thanks again
 
 

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