19th February 2004
Hi Del:
My endo said I need to take dhea, my numbers were awful in that department. I think it is helping, because I feel so much better than before I was diagnosed with addisons/schmitts. I don't know if it is my imagination, but my skin even seems to be better.
I take 200 levoxyl for my thyroid, 5 prednisone and 1 of fludrocotrosone and 25 dhea a day. I feel like my old self again for the most part. I have gained 10 pounds back from when I was diagnosed and have stablized there for the most part. I needed to gain weight though I looked like I had anorexia before.
It sounds like you are very prone to autoimmune problems. I am too. As a teen I had guillain-barre syndrome, in my thirties hashimoto's hypothyroid and now autoimmune addisons. I too have uncontrolled muscle spasms in my toes and my legs twitch as I go to sleep in bed at night. I don't know what that is, but I live with it. Probably some other hormone I am lacking in.
Maybe you should see a new doctor, sometimes a fresh look at a patient can help. It just doesn't sound right that you feel so awful. I am new with addison's though, just diagnosed in Nov. 2003 so I don't have to much experience of living with this at all. One thing the journey with this disease has taught me is that I will never be poo pooed out of a doctors office agian. I know my own body and if one doctor will not listen to me I will find another one who will.
My endo said I need to take dhea, my numbers were awful in that department. I think it is helping, because I feel so much better than before I was diagnosed with addisons/schmitts. I don't know if it is my imagination, but my skin even seems to be better.
I take 200 levoxyl for my thyroid, 5 prednisone and 1 of fludrocotrosone and 25 dhea a day. I feel like my old self again for the most part. I have gained 10 pounds back from when I was diagnosed and have stablized there for the most part. I needed to gain weight though I looked like I had anorexia before.
It sounds like you are very prone to autoimmune problems. I am too. As a teen I had guillain-barre syndrome, in my thirties hashimoto's hypothyroid and now autoimmune addisons. I too have uncontrolled muscle spasms in my toes and my legs twitch as I go to sleep in bed at night. I don't know what that is, but I live with it. Probably some other hormone I am lacking in.
Maybe you should see a new doctor, sometimes a fresh look at a patient can help. It just doesn't sound right that you feel so awful. I am new with addison's though, just diagnosed in Nov. 2003 so I don't have to much experience of living with this at all. One thing the journey with this disease has taught me is that I will never be poo pooed out of a doctors office agian. I know my own body and if one doctor will not listen to me I will find another one who will.