My son is 15 and starting getting sick when he was 6. I tried to get the ACTH stim test done several times in the past and doctors would not order it because he did not have any pigmentation or brown spots. His doctor did order the 24 urine cortisol test when he was 9 and it came back normal so he would not order further tests. He was very nauseous, weak and then started getting migraines, daily at times. His blood pressure would drop suddendly and he would get a migraine when standing up, getting into warm water or too hot. His blood pressure flucuated a lot and he was very dizzy everyday and hypoglycemic. He also seemed to feel better during the summer months so we had him tested and treated for allergies, which did not improve his sytmpoms at all.

He recently was given an 2 occipital nerve block injections using kenalog (slow releasing steriod) to try to stop the daily migraines. It only made his headaches worse and then he started getting very weak and nauseous a few weeks after the injections and started throwing up a lot. He has lost 18 pounds since the middle of March and he was thin before getting sick this time. He has been home schooled for several years due to his health.

Recently his doctor did agree to order the ACTH stim test because my mother has Addison's disease. The test came back abnormal or hypoadrenal, and we were sent to a pediatric endocronologist right away. We are still waiting on the results of all the tests and have an apt this week to get the results of all the tests.

He is still very weak but the nausea and headaches are better. His neck hurts a lot and the xrays shows he has a curve in his neck spine from all the spasms he has had over the years and deconditioning. He will start physical therapy for his neck next week.

My prayers are with you. I hope you can get the ACTH stim test done right away.