24th August 2004
Hi Mel, Boy, do you sound alot like me with your symptoms etc.!! I'm only 36, and was injured in a car accident, that wasn't my fault!! All 3 of my kids were injured in the car as well, fortunately not as seriously as I was!!
I've been dx'd with everything listed in my sig below (so won't repeat it LOL), plus sciatica! Also told that surgery's NOT an option for me, though I'm not sure I'd take it if it was......I'm too chicken LOL!!
I've tried just about every med that's available, physio and massage! The most evasive I've tried were kenalog and botox injections! The first had no affect whatsoever, and the botox made me 10x worse, including that I couldn't walk for wks!!
I'm told that I have no choice but to either take meds for the rest of my life, or learn to live with the horrendous pain and physical limitations that I have without it!! When things get really bad, I can't stand up straight, or sit/stand/walk for ANY length of time!!
I just recently lost my primary dr, so now am searching for a new one, but am not having any luck at all! Every dr within a 2hr drive from me, are NOT taking new patients! Walk-in clinics don't want to deal with narc meds either! I had a pm dr, which is the one that gave me the botox and the meds I'm on now, but he doesn't "have time for refilling scripts"!! Afterall, there's more money in doing evasive procedures and injections, then there is in filling meds!!
I have no idea what my choices would be now, 'cause I have no dr to give me any or to refer me to any specialists!! I do feel that things are getting worse with my back and neck, as I've lost complete control of my legs and fell 3x, and my tailbone hurts so bad that even just touching it is horrific! I'm wondering if my falls are the cause of that too! Though, I'm not so sure I'd want to go and stand infront of a dr to have it looked at LOLOLOL!!
I wish you the best of luck tomorrow, and will be thinking of you!! Let us know how it goes ok?? I know that you'll make the right decision for yourself, no matter what the choices are!! As I know you'll be making it on what's right for you, and not on what stories you've heard here! ((HUGS)) take care!
I've been dx'd with everything listed in my sig below (so won't repeat it LOL), plus sciatica! Also told that surgery's NOT an option for me, though I'm not sure I'd take it if it was......I'm too chicken LOL!!
I've tried just about every med that's available, physio and massage! The most evasive I've tried were kenalog and botox injections! The first had no affect whatsoever, and the botox made me 10x worse, including that I couldn't walk for wks!!
I'm told that I have no choice but to either take meds for the rest of my life, or learn to live with the horrendous pain and physical limitations that I have without it!! When things get really bad, I can't stand up straight, or sit/stand/walk for ANY length of time!!
I just recently lost my primary dr, so now am searching for a new one, but am not having any luck at all! Every dr within a 2hr drive from me, are NOT taking new patients! Walk-in clinics don't want to deal with narc meds either! I had a pm dr, which is the one that gave me the botox and the meds I'm on now, but he doesn't "have time for refilling scripts"!! Afterall, there's more money in doing evasive procedures and injections, then there is in filling meds!!
I have no idea what my choices would be now, 'cause I have no dr to give me any or to refer me to any specialists!! I do feel that things are getting worse with my back and neck, as I've lost complete control of my legs and fell 3x, and my tailbone hurts so bad that even just touching it is horrific! I'm wondering if my falls are the cause of that too! Though, I'm not so sure I'd want to go and stand infront of a dr to have it looked at LOLOLOL!!
I wish you the best of luck tomorrow, and will be thinking of you!! Let us know how it goes ok?? I know that you'll make the right decision for yourself, no matter what the choices are!! As I know you'll be making it on what's right for you, and not on what stories you've heard here! ((HUGS)) take care!