Drug Discussions   Link To Us   About Us   Tell A Friend
Home |


 
 

   

View full discussion thread on HealthBoards.com:
   Iressa - Please HELP (Cancer: Lung board)

4th December 2003
Your story seems similar to my dads. He had NSCLC Stage IV, with mets to the bone. Once the bone mets showed his oncologist put him on Iressa. Dad had a 30 day supply, he had some minor side effects, nothing too severe. After being on the Iressa for 3 weeks the docs found the lung cancer to come back in both lungs. He had tumors all throughout his lungs. They gave him 2 months. He lasted 6 weeks and he just passed peacefully on Thanksgiving morning. Iressa did not work for my dad but I have heard many many stories of it working and clearing up and shrinking tumors. I have a friend who is the cancer program director where I work, she too says that if Iressa is going to work you would know in a week or so of taking it, I would try it, I'm glad my dad did, at least he was able to say that he tried everything.

I wish you luck, you will get through this, and my thoughts and prayers are with you. If you ever need to talk, you know where to come. This forum has helped me out tremendoulsy with my dad's sickness. There are a lot of knowledgable people on here.
K.
7th December 2003
Quote from medphoto:
Your story seems similar to my dads. He had NSCLC Stage IV, with mets to the bone. Once the bone mets showed his oncologist put him on Iressa. Dad had a 30 day supply, he had some minor side effects, nothing too severe. After being on the Iressa for 3 weeks the docs found the lung cancer to come back in both lungs. He had tumors all throughout his lungs. They gave him 2 months. He lasted 6 weeks and he just passed peacefully on Thanksgiving morning. Iressa did not work for my dad but I have heard many many stories of it working and clearing up and shrinking tumors. I have a friend who is the cancer program director where I work, she too says that if Iressa is going to work you would know in a week or so of taking it, I would try it, I'm glad my dad did, at least he was able to say that he tried everything.

I wish you luck, you will get through this, and my thoughts and prayers are with you. If you ever need to talk, you know where to come. This forum has helped me out tremendoulsy with my dad's sickness. There are a lot of knowledgable people on here.
K.


Thanks medphoto for your story and I'm truly sorry about your father. I have to see my doc this afternoon with the answer. Actually. I'm very worried to use it coz right now I'm having some coughing ( which come back after my trip to Mecca.) I'm afraid this will lead to ILD ( some kind of lung infection) which thru my readings most of patients using iressa developed it. Can I ask about your dad condition prior to using iressa? I mean his cough, pain at bones and other places like liver? Because I'm having all those right now...
7th December 2003
Quote from zekzek:
Thanks medphoto for your story and I'm truly sorry about your father. I have to see my doc this afternoon with the answer. Actually. I'm very worried to use it coz right now I'm having some coughing ( which come back after my trip to Mecca.) I'm afraid this will lead to ILD ( some kind of lung infection) which thru my readings most of patients using iressa developed it. Can I ask about your dad condition prior to using iressa? I mean his cough, pain at bones and other places like liver? Because I'm having all those right now...



My father has never had any problem during his treatment with Iressa. In fact he is in a complete remission at the present time. The ILD you speak of is reported in less than 1% of patients taking Iressa in the US. Radiation and/or chemo treatments are by far more dangerous than Iressa and they in fact have higher rates of ILD than Iressa.

Kristi
8th December 2003
Quote from zekzek:
Thanks medphoto for your story and I'm truly sorry about your father. I have to see my doc this afternoon with the answer. Actually. I'm very worried to use it coz right now I'm having some coughing ( which come back after my trip to Mecca.) I'm afraid this will lead to ILD ( some kind of lung infection) which thru my readings most of patients using iressa developed it. Can I ask about your dad condition prior to using iressa? I mean his cough, pain at bones and other places like liver? Because I'm having all those right now...


My dad's condition prior to using Iressa was not so good. He had mets to the bone from the lung cancer for a few months, then they did an x-ray of his lungs and found another spot on the lung, immediately after they found the spot on the lung he started Iressa for 3 weeks, then he went back and they did another x-ray of the lungs to see if the Iressa was working and his lungs were covered in tumors. I don't think the Iressa contributed to this, I just think the cancer took its natural course and unfortunately the Iressa didn't work for him. But I have heard some great stories of Iressa working for some people. Dad had severe pain in his hip while taking the Iressa, he never had pain in his abdomen and he never did have a bad cough. I wish you luck, please keep us posted on how you make out. My thoughts and prayers are with you.
K.
13th December 2003
Quote from medphoto:
Your story seems similar to my dads. He had NSCLC Stage IV, with mets to the bone. Once the bone mets showed his oncologist put him on Iressa. Dad had a 30 day supply, he had some minor side effects, nothing too severe. After being on the Iressa for 3 weeks the docs found the lung cancer to come back in both lungs. He had tumors all throughout his lungs. They gave him 2 months. He lasted 6 weeks and he just passed peacefully on Thanksgiving morning. Iressa did not work for my dad but I have heard many many stories of it working and clearing up and shrinking tumors. I have a friend who is the cancer program director where I work, she too says that if Iressa is going to work you would know in a week or so of taking it, I would try it, I'm glad my dad did, at least he was able to say that he tried everything.

I wish you luck, you will get through this, and my thoughts and prayers are with you. If you ever need to talk, you know where to come. This forum has helped me out tremendoulsy with my dad's sickness. There are a lot of knowledgable people on here.
QUOTE]
Oh My God all theese stories sound so familiar. My Mom was mis diagnosed for over a year also she was told she had Phnuemonia,bronchitis,copd, then in an emergency room through a chest x-ray they found the fluid which was found to be cancer. She had her first thorencentheisis (drained fluid from the lung) I am not sure on the spellings of these medical terms please forgive me. Then she had a plueradecis, that is where they put a tube into her chest and pumped the fluid from the lung for 3 days then they sealed the area with a talcum powder. That was not succesful. The fluid built back up and overflowed through the path the tube was inserted and busted through the incision point and oozed down her back. She was on chemo a drug called Tax- something that is all I can remember of its name she went through the 3 cycles Then was put on a new chemo called Gemzar (SP?) Then it was found to have spread to her bones, lower spine and left femur. So she was put on Irresa. Now she ended up in the hospital with a lung infection. An infection that the infection and disese specialist here in Las Vegas cannot even identify. They put her on so many antibiotics she was vomitting constantly. She could not keep anything down then she became dehydrated. So then they had to rehytdrate her. Then she was back in the hospital because of the fluid build up. But the fluid is so thick now they cant get much out at a time. And this is where we stand today. She is at home in severe pain, with fluid building up again, and back on the Gemzar chemo. But she still vomitting everything she eats. Her Dr. told her to just eat again after she vomits. Dear God what do we do now?
Copyright ©2009 DrugTalk.com All rights reserved.
Powered by HealthBoards.com
This site is owned and operated by iCentric Corporation
Do not copy or redistribute in any form!