16th September 2004
Quote from Kime:Can you give more information? Do you shake all the time, or just at certain times? Do you feel nervous or anything with the shakes? Do you have any other symptoms such as difficulty with coordination? How old are you?
I do shake all the time. You can't see it most of the time, if you do it is a very fine tremor. I don't feel anxious anymore--this summer was a different story. I was VERY anxious this summer, but I have not gotten any better, really, or any worse and I have had a lot of tests that have ruled out the big stuff so I am much better now. I do have terrible insomnia, although with the Inderal I am taking for the tremors, I am sleeping now about 4 hours a night. I have no trouble with coordination, but I do have some muscle pain in my left bicep, left muscle at the elbow, and my fingers feel very weak when I type, but I have normal strength and grip. I am 42 years old.
Quote from Kime:The B vitamins are safe to take in "large" doses. I used quotes on the large because there is controversy over what really constitutes a large dose. My husband and I take 400-800 mg of niacinamide or niacin (be aware that niacin can make you flush, which is harmless, but can be alarming if you don't realize that it might happen) a day plus a B-50 capsule.
You should be aware that it is possible to have too much copper, especially if your water pipes are copper. In fact, tremors and shaking are one of the symptoms of Wilson's disease, a rare disease which is seen in people who accumulate too much copper. You might want to look it up on the internet just in case you have some of the other symptoms, too. A hair test can indicate whether a person has a copper imbalance. Most of the copper in the body is not stored in the blood so a blood test might not show an imbalance. A person with a copper excess generally has a low level of zinc and needs to supplement zinc. Vitamin C helps chelete excess copper from the body. If you have a problem with copper you need to find a doctor who is knowledgable about this to help you.
I think I have looked up Wilson's disease and I didn't really fit the symptoms with that, but it's been a while so I'll have another look.
Quote from Kime:You might want to try to find an orthomolecular doctor if there is a good one in your area. We live in Western Washington and I could tell you the name of a good one here. They are more experienced in what tests to take in order to find out what vitamins, amino acids and such a person is deficient in (or has too much of) than most doctors because they believe that a lot of chronic illnesses are caused by biochemical imbalances in the body (this includes problems with copper and other things, too).
If you had the name, that would be great. Right now I am just information gathering about what to do next since the traditional paths seem to be running out. Even though I live in KC, your doctor might have the name of someone in my area that he/she could give me if I made contact.
