List of topic discussions that mention the drug Hydrea.

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  1. Polycythemia Vera 28th December 2009
    ... platelet levels are rising, so I may have to go on Hydrea in the near future...It's a lifelong ordeal from...

  2. High Platelets 11th November 2003
    ... I am on Hydrea for ET for the last 6 mo. but new Oncologist is thinking...

Acid Reflux board
  1. doctor says acid reflux. but i don't think so 16th November 2006
    ... high, and the hematologist put her on a med called Hydrea . This is a cancer drug. Doc feels that there is an...

Blood and Blood Vessel board
  1. new and a few ???? 8th April 2010
    ... know I was taking anything (when I asked her about Hydrea ). Well, right now I am doing fine, and you will...

  2. PV update 12th March 2010
    ... cells R doing something weird. THe Dr. took me off the hydrea and agrilyde and am now on 60mg Prednizone. I was...
    ... hope you feel better just being able to get off the hydrea for a while, anyways. I am looking forward to a healthier...

  3. living with PV 18th November 2009
    ... have had PV for going on 15 years now. I take 1000 mg hydrea and 1mg agrilyn, two 81 mg aspirin every day and currently...

  4. Freezing cold fingers/toes...?? 3rd September 2009
    ... and hands, tingling fingers & toes. I am on 1000 mg hydrea , 1mg agrilyde, 81 mg aspirin, 40 mg zoloft, and 3...
    ... phlebotomies hurt? Are there really bad side effects from Hydrea ? Do you lose your hair? Are you able to work? ...

  5. i'm 18 years old & Possible dignosis PV or ET ( Doctors don't know :( ..) 31st August 2009
    ... clots and the stroke, they wouldn't have put me on Hydrea but treated me with a different method instead. I...

  6. Some Questions on Polythemia Vera sp? 9th August 2009
    ... thats waaaaay too many kiwis for me!! I also take Hydrea 1000mg/day like Randy, but will be trying the phlebotomy ... thing next month and weaning off the Hydrea as its not very pleasant. I take Warfarin to thin...
    ... phlebotomies hurt? Are there really bad side effects from Hydrea ? Do you lose your hair? Are you able to work? (I am...
    ... lavishly and rub it in real good). IF he starts U on hydrea or hydrea and agrilyde the red, itching eyes and axiety...
    ... of year. I wanted to share my experiences with Hydrea with you, I was on it for about 10 months and just ... really did the same thing! Anyways, while I was on Hydrea , I had more fatigue and a lower immune system, had ... that didn't last. (Don't know if that was from the Hydrea though) I only noticed I had an upset stomach if ... I took the hydrea with an empty stomach, so although I normally don ... bit, you know what I mean? Since getting off the Hydrea I have gotten all my energy back, and actually just...
    ... have a phlebotomy? Do they hurt? It seems as if the Hydrea has different side effects for different people.. ... exposed to their colds, chickenpox, flu, etc. If the hydrea weakens my immune system, won't I be more susceptible ... catch everything the kids brought in? Also, how much Hydrea were you taking....1000mg. a day ...500mg. a day?...
    ... impressed that he remembered! Anyhow, when I was on Hydrea it was 500mg in the morning and another 500 at night ... and aspirin, which I still am. Since getting off Hydrea I've had 3 phlebotomies. One 2 weeks after stopping ... About an hour total. About the fatigue I had on Hydrea , I am not sure if you had read my thread about PV ... job at the daycare it was 3 months after starting Hydrea , in March (Cold season!), and yes I did get sick every...
    ... Winnipeg (a couple hours away) who recently took me off Hydrea and also monitors when I need a phlebotomy. I see...
    ... definitely a relief that you don't have to be on the Hydrea now that it's cold season again, hopefully the phlebotomy...

  7. Very very low hemoglobin help!!!!! 5th June 2009
    ... This refers to my Sister who is taking the drug Hydrea for high platelets. Long story short, this drug causes...
    ... after the tumor operation, she was not put back on the Hydrea to control the blood, and she had a stroke!!! That...
    ... thing, but if there really are no alternatives to the hydrea , then that might be something to ask about....

  8. Essential Thrombocytosis 23rd April 2009
    ... had high platelets for about 15 years. I have had hydrea most of the time. it has worked the best for me. ...
    ... I would like to hear more about Hydrea and any side effects. I am 33 and due to start on ... Hydrea in a month. I have a difficult time on medication ... worries me a great deal. Any information regarding Hydrea effects would be really appreciated! I don't...
    ... Hi redaz, I have taken hydrea most of the 15 year I have had high platelets. It...
    ... therefor I am able to put off the bone marrow and the hydrea but it seems it is only a matter of time. (sigh) ...
    ... QUOTE=redaz;3979170]I would like to hear more about Hydrea and any side effects. I am 33 and due to start on ... Hydrea in a month. I have a difficult time on medication ... worries me a great deal. Any information regarding Hydrea effects would be really appreciated! I don't ... thrombosis after a lot of tests they decided i needed hydrea i can well empathise with you if they showed you ... the leaflet about hydrea it was scary seeing asthe leaflet i saw was for people...
    ... platelet count to go up very fast. You might ask to try hydrea ...
    ... question is... WHICH IS THE LESSER OF THE TWO EVILS? HYDREA OR ANEGRILIDE? Has anyone heard of Pegasys...which...

  9. Polycythemia at 22 years old - My story 22nd March 2009
    ... that were elevated when I went in. I take 1000mg Hydrea , 1000mg Acetozolomide (for the pressure on my eyes...
    ... forward to is in a couple weeks we will be lowering my Hydrea and doing phlebotomies instead, so I hope that takes...
    ... Just wanted to update: I am now taking just 500mg Hydrea in the morning, not at night, and hoping that my upset...
    ... Just wanted to update: I am now taking just 500mg Hydrea in the morning, not at night, and hoping that my upset...
    ... the last couple weeks. I was down to the 1x500mg Hydrea in the morning only, for two weeks, then got bloodwork ... hemo's nurse called and told me now I'm to stop the Hydrea completely, and tomorrow go in for a phlebotomy. ... blood drawn, but the Hemo thinks I'll do fine with no hydrea at all. I hope he's right! I wonder if I will have ... handle the blood drawing rather than taking those Hydrea pills, because I've got my energy back and no more...
    ... the last couple weeks. I was down to the 1x500mg Hydrea in the morning only, for two weeks, then got bloodwork ... hemo's nurse called and told me now I'm to stop the Hydrea completely, and tomorrow go in for a phlebotomy. ... blood drawn, but the Hemo thinks I'll do fine with no hydrea at all. I hope he's right! I wonder if I will have ... handle the blood drawing rather than taking those Hydrea pills, because I've got my energy back and no more...
    ... I thought I'd update on my progress with dropping Hydrea and getting phlebotomies instead. So I had one blood...
    ... don't have it as severe. Since getting off the Hydrea I know I've been doing great with just phlebs, had...
    ... that were elevated when I went in. I take 1000mg Hydrea , 1000mg Acetozolomide (for the pressure on my eyes...
    ... slowly creeping up. It was around 150 while I was on Hydrea in September. Since getting off Hydrea, and getting...
    ... slowly creeping up. It was around 150 while I was on Hydrea in September. Since getting off Hydrea, and getting...
    ... slowly creeping up. It was around 150 while I was on Hydrea in September. Since getting off Hydrea, and getting ... answers! Megan Hi again Megan! I have been on the hydrea since first diagnosed. Sometimes it has to be adjusted...
    ... something has to be done again, which would be the Hydrea again, or something else if I get pregnant when that ... up again (which is what happened with me going off Hydrea in September). I hope it will stay at an acceptable...

  10. My New Results! A Few Questions Too :) 5th February 2009
    ... not know if this is normal or not ? I am still on hydrea 500 mg 2 x day...so I guess I was expecting a huge...

  11. Essential Thrombocytosis/Pheresis 12th December 2008
    ... to the fact that my red cells were enlarged by the hydrea , the centrifuge wasn't working properly, and more...

  12. Persistent high white count, raised platelets, clotting out??? 20th November 2008
    ... people would ask me what was wrong.. I have been on hydrea now for almost 2 months and my eyes are now crystal...

  13. Polycythemia Rubra Vera. 27th October 2008
    ... lycythemia Rubra Vera, diagnosed for three years. She is on hydrea but she is quickly becoming weakerwith dizziness and...
    ... lycythemia Rubra Vera, diagnosed for three years. She is on hydrea but she is quickly becoming weakerwith dizziness and...

  14. High blood platelets 6th June 2008
    ... I have been on Hydrea for about 7 weeks and have just had the dose increased...

  15. Elevated Platelets need advice 21st March 2008
    ... removal. don't know the correct name. She is on Hydrea , and they found out her iron levels were really low...
    ... loooong list of questions with me. I am on Cuomadin and Hydrea . 5mg of coumadin, to thin my blood and remove the ... clots, and 2000 mg of Hydrea for platelet reduction. I have not had many side ... continues to produce platelets and red bloods cells, the hydrea helps cut off the production. I am stablized now ... count is WAY down to 400... NORMAL!!! After being on Hydrea for 3 months now! He said I will probably have to...
    ... with questions, since I am a coumadin lifer now and a hydrea lifer, I try not to feel bad to ask him what ever...
    ... with questions, since I am a coumadin lifer now and a hydrea lifer, I try not to feel bad to ask him what ever ... My hematologist also mentioned the possibilty of hydrea . I have read that there are some horrible side effects...
    ... sounds like you have a lot of information. What is hydrea ? Or do I want to know. I plan to go in for remaining...
    ... I have actually lost 20lbs in the last 3 months! Hydrea is a form of chemo that kills the platelets, red bloods ... disorder my bone marrow has no "off" switch. The Hydrea helps stabalize my levels, and does a good job with...

  16. alternative medication for high platelets 13th February 2008
    ... last year (over 1mil, while on the aneg), been on hydrea & aneg since. took aneg. solo for the last 6 yrs with...
    ... last year (over 1mil, while on the aneg), been on hydrea & aneg since. took aneg. solo for the last 6 yrs with...

  17. Essential Thrombosytosis - High Platelets 18th January 2008
    ... I am very eager to get off my meds, anegrelide and hydrea , but I need a back up plan, because I'm afraid my...
    ... old with counts above 1 million. Was previously on hydrea though stopped them April 07 to plan my 1st child ... 000. Now at 6 weeks post partum at 750 000 started hydrea last week:(:(:(:(:(:( Amy...
    ... everything from Anagralide, Interferon shots, and now Hydrea (this seems to be the one drug he can tolerate, although...
    ... other counts are normal. My hematologist mentioned hydrea . Don't really want to do it if I have a choice. Just...

  18. High Platelets - ET 1st December 2007
    ... 2. Has anyone had any negative side effects from hydrea ? Thanks so much....

  19. ET - Blood Disorder 30th November 2007
    ... diagnosed with ET six years ago. I have noticed that the hydrea is taking a real toll on my body - tons of wrinkles ... crowns, 3 cavities, and gum surgery). The doc said the hydrea does not affect the teeth. Any of you have any of ... these symptons? I really want to discontinue using hydrea . Just wondering if anyone else has gone through this...

  20. high platelet 9th October 2007
    ... makes my bone marrow make too many platelets. I take hydrea to control my platelets and have had no side effects ... from the hydrea . I have found that a low dose that keeps me around...

  21. high platelet count 23rd August 2007
    ... Its like a roller coaster but I am on agrylin and hydrea and honestly really don't know if it makes much difference...
    ... never heard of anyone with ET taking both agrylin & hydrea at the same time. I assume you are taking both by...
    ... I have been on agrylin for 6 years, and hydrea was introduced several years ago when my counts went ... and depending on how I am doing decides if I go off hydrea or lower levels. I was just upped this week because ... down next month and the doctor will usually drop the hydrea dosage, but never the agrylin. At one time I was on ... 9 agrylin a day with hydrea once a day, but since the agrylin has been lowered ... to six a day and hydrea was upped to every day . My doctor will pull me off ... the hydrea when all is good, but it seems I hold only a few months ... doctor about being on both, but I really feel the hydrea works better than the agrylin....

  22. Newbie 18th August 2007
    ... I was diagnosed with ET about 4 years ago been on hydrea ever since platlets are now just above normal, now...

  23. Hydrea prescribed for ET... HELP! 25th July 2007
    ... know of any supplements or something to take with the Hydrea ? Should I be taking vitamins and what kind? Nikki...
    ... I am 30 years old and have been on Hydrea for 2 years to treat ET. I take 3 pills a day and ... side effects. The only thing, don't get pregnant! Hydrea will cause birth defects. I just had a baby and had ... to get off the Hydrea prior to getting pregnant. I was put on Intron A injections...
    ... vibyd76;3120561]I am 30 years old and have been on Hydrea for 2 years to treat ET. I take 3 pills a day and ... side effects. The only thing, don't get pregnant! Hydrea will cause birth defects. I just had a baby and had ... to get off the Hydrea prior to getting pregnant. I was put on Intron A injections ... fine with as well. Good Luck! I just started the Hydrea today with reluctance, but what else can I do? I just...

  24. Essential Thrombocytosis 5th May 2007
    ... hypothyroidism in March. I have now stopped the hydrea since i am trying to get pregnant. Though ever so...
    ... I don't understand why they keep increasing the hydrea when a higher dose seems to actually slow down the ... get over them? Has anyone lost their hair on the hydrea ? Does anyone ever get better, meaning do the platelts...
    ... diagnosed with ET (counts over a million) I was started on hydrea and was clear on my bone marrow biopsy. My baby was ... would go though blood ferisis (sp?). I stopped my hydrea , started on baby aspirin, my platlets were high, but ... study. I liked the way it made me feel more than the hydrea so was glad when it received FDA approval. The only ... hemotologist now is debating whether to switch me back to hydrea because of some research showing some increased stroke...
    ... I don't understand why they keep increasing the hydrea when a higher dose seems to actually slow down the ... get over them? Has anyone lost their hair on the hydrea ? Does anyone ever get better, meaning do the platelts...
    ... weekly blood test. I have tried. Only the amount of hydrea I take changes my platelet count. I have had no problems ... with the hydrea for about a year....

  25. ET with JAK2 - meds not working! 26th April 2007
    ... I have been taking hydrea for ET, with the JAK2 mutation, for about three months ... . No significant side effects from hydrea , but now all my other numbers (white blood count, ... totally out of whack. To top it off, at first the hydrea did a great job of taking my platelets from over 1...
    ... In response to taking the hydrea for ET. It will take awhile for the platelet count...
    ... adjustment until we get me to a maintenance dose of the hydrea . I am 41 years old, female, teacher, mom of three ... million in February). I started taking 1000mg of hydrea in the beginning of Feb. and my platelets were down...

  26. Hydrea for Polycythemia - side effects? 21st April 2007
    ... I have been taking hydrea for the past 2 years due to essential thrombocytosis...
    ... Not to touch it??????? are you referring to the hydrea ? I take capsules. And its true they are cytotoxic...
    ... Hi Amy - Well, I took my first Hydrea today- so far, no effects but I don't know if most...

  27. Mom diagnosed with Polycythemia vera 21st April 2007
    ... diagnosed today with Polycythemia vera and prescribed Hydrea by her hematologist, without any phlebotomy treatments ... or anything. Straight to the Hydrea . I am a little confused as to why. She has been...

  28. High platelets 17th March 2007
    ... essential thrombocytosis 2 yrs ago have been taking hydrea on and off since then. I also take aspirin 75mg on...

  29. Is this a high platelet count? 15th March 2007
    ... old you are? I am 27yrs old and have been taking hydrea for about 2 yrs.I take 1000mg daily that 2 capsules...

  30. High Platelet Level 1st February 2007
    ... get flu like symptoms from taking the intron a and hydrea . We would like to hear from as many people as possible...
    ... get flu like symptoms from taking the intron a and hydrea . We would like to hear from as many people as possible...
    ... million as of today! Very scared. Doctor prescribed Hydrea this time and I start tomorrow. I am not looking forward...
    ... 7 million so tomorrow I am supposed to be starting Hydrea . I have no symptoms.. I am tired, but I am a mom of...
    ... million as of today! Very scared. Doctor prescribed Hydrea this time and I start tomorrow. I am not looking forward...
    ... are up. I get blood work monthly. I take agrylin and hydrea . Do you know of any natural sources that can help...
    ... Diagnosed about a year ago with 1.2 million. I take hydrea , it controls the platelet count without significant ... primary care don't see a problem with me being on hydrea for the rest of my life, but I would love to find...
    ... started at 1.2 million and if I use enough of the hydrea to get down to a "normal" level, I get anemic and...

  31. High Platelet count---???'s 18th December 2006
    ... everything but lower platelets.....i then was switched to Hydrea which i stayed on for a few years....it worked for ... irregular beats..etc.. they took me off and put me back on Hydrea .....Hydrea worked but then in August i formed a leg...

  32. ET and Pregnancy???? 12th November 2006
    ... with ET 2 years ago. I have since then been taking hydrea as my platelet count was over 1100 000. My platelet ... am trying to get pregnant and my Dr advised to stop hydrea 2 weeks before ovulation. This worked out and i immediately ... miscarriage more common with this condition????. Is hydrea safe during pregnancy??? Each time i stop hdrea to...
    ... 2 now and evrything wnet fine you must stop the hydrea though good luck ps do you have anyside effect ... from the hydrea i have been on it for a few months now and dont know...
    ... I'm not sure what your doc said, but the info on hydrea say's it "could" cause birth defects, so I would read...
    ... locally insists that i should just continue tAKing hydrea however i hav decided not to follow his advice. i ... month. Although i have to admit i am terrified. Re hydrea i have experienced a few side effects these include...
    ... hey i just read your post....i also was on hydrea and wanted to conceive.....they took me off hydrea ... and had extensive DNA tests done to make sure that HYDREA didnt altar my genes...(which it can)....i was put...
    ... a large bump. Tomatoes how s it going with the hydrea ? Still having side effects? Did you used to take...

  33. Thrombocytosis????? Sorry, very long! 6th October 2006
    ... with ET 2 years ago. I have since then been taking hydrea as my platelet count was over 1100 000. My platelet ... am trying to get pregnant and my Dr advised to stop hydrea 2 weeks before ovulation. This worked out and i immediately ... miscarriage more common with this condition????. Is hydrea safe during pregnancy??? Each time i stop hdrea to...

  34. high platelet count 8th September 2006
    ... nthusiastic doctor a few months ago who wanted to put me on Hydrea - I said no because I didn't see what had changed...
    ... is always in the range 400-950. Takes Anagrylin, Hydrea , Iron and now 81mg aspirin. She has a blood work every...
    ... started the agylin that didnt work now i am on the hydrea and thats working i am steady 600 now , and yeah when...

  35. Does anyone have an enlarged liver and spleen from PT? 22nd August 2006
    ... effects. The reason you have not been recommended hydrea is because they are not sure that long term it won...

  36. Essential Thrombocythemia or Thrombocytosis 1st May 2006
    ... so far it has worked for me. I will probably go on Hydrea or another medicine when I get older but for now I...
    ... Last year he took me off agrylin and put me on a Hydrea due to a study found in the New England Journal of ... years. I am currently taking four 500 mg capsules of Hydrea daily, which has brought my Platelet count down to ... Hospital and they all agreed that I should remain on the Hydrea . What I find interesting is that many of the posts ... belivieve in bringing the platelet count down with Hydrea and Agrylin?? I have been warned that without these...

  37. essential thrombocythemia treatment 28th March 2006
    ... I had a hard time on the Hydrea , lots of stomach acid etc. It is considered a chemo...
    ... Hello Newport1, I started on Hydrea on March 13th, and after reading your post it got ... thinking. I have not gotten my period as of today. The Hydrea has made me very tired to the point that I have to...

  38. Platelets/high 8th March 2006
    ... hemotologist and my family physician want me to take Hydrea . Since it is a chemo drug, I really wanted to try ... about 1 1/2 yrs. Last year the doctors also spoke of Hydrea . I know it was the wrong thing to do, but I just stopped ... doctors mentioned anything about dangers of NOT taking Hydrea (or some other type of chemo?) I'm getting my blood...
    ... Hi, I was on Hydrea for 3 mos.. I just went off of it last week. I got...
    ... am 59, have High blood presure also, only been on HYDREA 500mg for aweek so far had dizzyness upset tummy head...

  39. Elevated Platelets Related to Brain Tumor?? 26th February 2006
    ... computer. Since she last posted, the doc has put her on Hydrea . She has some upset stomache feelings now and then...
    ... Her platelets were 1 million 70!!!! They put her on Hydrea , and now they are 700,000. . Yes, doctor keeps saying...
    ... fluctuated anywhere between 7 and 850. My doctor put me on Hydrea , and as of last Monday it was back down to 770. I ... for blood work until he can stabilize the count. The Hydrea has made me very tired, and nausous at times. At one...

  40. high platelets on coumadin 10th November 2005
    ... usual drug of choice to lower the platelet count is hydrea which increases that risk. When to go to that medication...

  41. Essential Thrombocythemia 25th August 2005
    ... 1.2 million..when I was first diagnosed..I was on Hydrea for about 2 years..It did reduce my platelets to a...
    ... heart race so fast. A couple years ago switched to Hydrea (plus 75mg aspirin daily)... when my hair started ... thinning, I asked my Dr. to stop Hydrea (was also worried about the possibility of Hydrea ... my hair grew back just a few weeks after stopping Hydrea ). I took only 100mg aspiring for a couple months ... count went from about 550 (what I'm at on 500mg of Hydrea daily) to 1 million... then my Dr. said I need to...
    ... To Tefferturtle, Read that you stopped your hydrea after 2 yrs. From all that I have read and heard from...
    ... about platelet count coming back higher after being on hydrea . Any tips on interferon? I'm on my second dose,...
    ... my heamo thinks i ve had it since 18. I too was on hydrea ....but stopped them 10 weeks ago because i wanted...

  42. Polycythemia Vera 28th May 2005
    ... polycythemia you can live a normal life span. Hydrea is risky, i WATCHED MY MOTHER DEVELOP ACUTE MYLOGENIC...

  43. Polycythemia Vera 24th March 2005
    ... sure. I do know my mother had it and they put her on hydrea and she developed acute mylogenic luekmia and passed...

  44. Polycythemia Vera 29th January 2005
    ... the usual plebotomies and then started taking 500-mg Hydrea . The quantity varied between 1 and 3, depending on ... ankles. They have healed. I recently learned that Hydrea can cause ulcers, but I am now caught in a "Catch ... 22" situation, where I can't drop the Hydrea . Cannot take Agrilyn, because of irregular heartbeat ... readers have experienced ulcers because of taking Hydrea . By taking 2 Hydrea per day, my platelet count is ... like to lower that, but that would entail taking 3 Hydrea per day. Can anyone relate to my situation. Hopefully...

  45. Essential Thrombocytosis (high platelets) 7th December 2004
    ... are going to see her hematologist in a few weeks. Hydrea may be an option. Anagrelide w/ aspirin vs Hydrea ... the doctor says. Anyone have any issues with taking Hydrea right now? Any recommendations on meds?...
    ... million and my family doc and hematologist want me on Hydrea . I do NOT want to take this. I have no symptoms, understand...
    ... about my decision about MY body. (NOT to take the Hydrea ) I'm just curious, but do you live near the Mayo ... My hematologist is the one who wrote the Rx for Hydrea . I'm not sure if he will continue to be when he finds...
    ... have had ET for seven years and have been trated with hydrea and agrylin. I get severe headaches from the meds ... believe me about the headaches. When I stop taking the hydrea , the headaches go away in about three days. Do you...
    ... have had ET for seven years and have been trated with hydrea and agrylin. I get severe headaches from the meds ... believe me about the headaches. When I stop taking the hydrea , the headaches go away in about three days. Do you...

  46. 6 week old with high platelet count 5th May 2004
    ... for some 10+ years. The name of the medication is Hydrea and is taken daily with frequent blood tests. She...

  47. Phlebotomies 9th March 2004
    ... clue why. She told me to keep taking the medication ( Hydrea ) she put me on because it is slowing down the bone...

  48. Thrombocytosis/high platelets?????????? 6th March 2004
    ... said "once they hit 700, I should be on medication ( Hydrea ) to slow the bone marrow down from over producing...
    ... Bone marrow biopsy confirmed ET. Doctor prescribing Hydrea , 1 cap a day. She said in Dec 2004, they found out ... that Hydrea is better than Anagrelide as it has lesser side effects ... develop in 1% of the patients. Am nrevous not to take Hydrea . will be going on vacation soon the the long flight ... medication. Appreciate it if anyone out there who has taken Hydrea for more a logn period of time to advise what to look...
    ... me personally. I have taken many drugs, Intron A, Hydrea and Agryln, I am most reactive to Hydrea. I understand...
    ... slowly climbing up. It was 484k in Sept 2005, ie with Hydrea , then doc took me off and it;s slowly climbing again ... ago it was 782k. I guess I have to be on the dreaded Hydrea again...
    ... what number were your platelets when you start on the Hydrea ? I would really like to wait to start the meds if...
    ... distance a week after I found out the count. I was on 1mg hydrea a day. Took if for about 3 months and then stopped...

  49. Polycythemia 10th January 2004
    ... the platelets keep climbing. She wants to put me on Hydrea , which means I can now never have children. Has anyone ... ever been on Hydrea or known anyone that has or had Polycythemia. From ... what I understand I will also loose my hair with Hydrea . Dr tells me I will be on it for the rest of my life...
    ... illness. I don't really know much about the medicine Hydrea , but know couple people who takes it. I'll check...
    ... together very well. Hope to hear from you again about Hydrea . I am told that it causes Leukemia. So what are...
    ... Mine are over 700 and that is why I have to go on Hydrea , It tells the bone marrow to stop producing platelets...
    ... tomorrow - sorry forgot to call my friend regarding hydrea ....
    ... tomorrow - sorry forgot to call my friend regarding hydrea . Thx Tropical for getting back to me. Your platelets ... ever high like mine????Hope you can get some info on Hydrea . Thx, Talk to ya soon...
    ... Nascar, my friend has been taking hydrea now for 3yrs..not sure the dosage, but he's doing...
    ... Thx Tropical. Hydrea only comes 1 way and that is 500 ml pill. When I...

  50. Polycythemia and Iron - Diet program? 14th December 2003
    ... producing too many platelets. My Dr wants to put me on Hydrea which surpresses the marrow, but I refused too just...

  51. Essential Thrombocythemia or Thrombocytosis 9th December 2003
    ... now. I am currently 54 years old. After 26 months on hydrea , I took myself off (against doctor's advice, and I ... get scans about every 2 months. After going off the hydrea , my platelet count was rapidly rising, and I began ... medication. I have felt better each and every year. The Hydrea was very oppressive in my body, and I now go dancing...
    ... close to 1 million and a second opinion, i went on hydrea . it made me sick with gastric problems, turned my ... was chosen as a candidate. i slowly came off the hydrea and went on anagrelide. this drug has sustained me...
    ... and was diagnosed with ET when I was 29..2 years on Hydrea ..then stopped and just have been on aspirin 325 mg ... hover at 1.2 million...My hematologist thinks that hydrea is safer than agrilyn?? I hope you are doing ok and...

  52. Polycythemia 18th November 2003
    ... rising, so my doctor is talking about putting me on hydrea . Has anyone been on this? Ive heard some bad stuff...
    ... phlebotomy will do the job, so I don't know about Hydrea , but it is an old standby according to my primary...
    ... rising, so my doctor is talking about putting me on hydrea . Has anyone been on this? Ive heard some bad stuff ... Jammin Mom :) [SIZE=1][FONT=Comic Sans MS]I was on hydrea but it wasn't enough. I am 49 and a female. Now...

  53. Polycythemia Rubra Vera 4th October 2003
    ... it had to do with the medication she was on because hydrea sometimes may make polycythemia turn into acute mylogentic...
    ... letting them check me out because I have no symptoms. Hydrea is what the Dr wants to put me on in January when...
    ... only child well so am i....I dont quite know if the hydrea caused her to get aml but i think i read somewhere...
    ... seeing as I don't drink. How long was your mom on Hydrea before they found out the had ACL. And what were...
    ... hi cheyrl it's anna well i know my mo was on hydrea for acouple years then she found out about the aml...
    ... deficiencies which caused problems, so I started using HYDREA . Sure there are side effects but they can be overcome ... lower legs that I have determined is coming from the Hydrea and we are trying to get to the bottom of this as ... literature that discusses this. If anybody would know if Hydrea is Neurotoxic I would be glad to hear fom you. Good...

  54. high liver function test results 1st September 2003
    ... kept going up. They took me off agrylin and on to hydrea and they are still high. Now I'm off to more doctors...

  55. Polycythemic Diagnosis-What is it? 26th August 2003
    ... been diagnosed with polycythemia. I have been taking Hydrea for a couple of weeks to lower the platelet count...
    ... Hi everyone, I have heard and read that Hydrea cause Acute Leukemia, does anyones Dr tells them this...

  56. Polycythemia Vera 10th July 2003
    ... week 500ml every 3 weeks and she wants to put me on Hydrea which tells the bone marrow to stop producing and...
    ... phlebotomies every 2 weeks,and dr. will start me on Hydrea next week.after a phleb i feel pretty good for a week...
    ... was diagnosed recently and the doctor wants me on hydrea but I am scared of the drug --- I would rather do...
    ... week 500ml every 3 weeks and she wants to put me on Hydrea which tells the bone marrow to stop producing and ... boat, my hemotologist/onocologist wants to put me on Hydrea and I'm scared about it_ I think I would rather do...
    ... blood would be a real treat for them Hi - did the hydrea or bloodletting ease your symptoms? Shortness of ... fatigue? So, you didn't have any symptoms from taking hydrea ? What dosage were you on?...

  57. High Platelet Count 3rd July 2003
    ... that do and they are all chemotherapy type drugs. Hydrea is probably the most common for ET. Barb, you have...
    ... says no. Did he give you medication? I'm taking hydrea . They are finally coming down. I was on agrylin...
    ... elevate your platelets. What a relief! She did gave me Hydrea and I'll have my blood work done in 3 weeks. I still...
    ... New Zealand, agrylin is not available. I've been on Hydrea now for three years and my platelerts which were opver...
    ... high platelet count for years (10+). She used to take Hydrea daily to keep her counts down, but in the past 6 years...
    ... with high platelets last year I'm currently taking hydrea . Is anyone else taking this drug get headaches from...
    ... was down to 390 i now am anemic so he took me off hydrea for a week untill they see if i am bleeding some where ... good.Sunnyside you ask if any one gets headaches from hydrea i never have. Junebug1934...
    ... too have been recently diagnoised with ET and taking Hydrea . I am desperately looking for people in my area with...
    ... I really do not feel I had a choice but to start hydrea . I alternate days with 500 and 1000mg.I have been ... to explain.I had all of these symptoms before the hydrea . When they increased my dose I did get nausea for ... feel as if I was going crazy. Amazing that now on hydrea my symptoms are gone. I seem to slowly be getting...
    ... had a count of 2,305 (2,305,000) and they gave her HYDREA 500MG (3 TIMES A DAY) AND ASPIRIN 500MG (1 A DAY)...
    ... had a count of 2,305 (2,305,000) and they gave her HYDREA 500MG (3 TIMES A DAY) AND ASPIRIN 500MG (1 A DAY)...
    ... My Hemotologist told me Hydrea is to lower red blood cells not platelets. She should...
    ... blood cells are lower. Doctor wanted me to start Hydrea but said it would/could lead to lukemia. Hydrea...
    ... this site to "Do your homework" Posting that Hydrea , is only used for elevated red blood cells and not ... Do your research many people are being treated with Hydrea to lower their platelets. In FACT the latest clinical ... trial study has shown that Hydrea has proven less side effects than the alternative ... competent Hemetologists and all 3 would treat this with Hydrea .Considering your counts are high enough and you are ... have done their homework and you will also find that Hydrea is being used sucessfully to treat Elevated Platelets...
    ... My Hemotologist told me Hydrea is to lower red blood cells not platelets. She should...
    ... jumped to 720,000, and the doctor told me to take Hydrea along with my Anagrelide and Aspirin. The side effects ... for Hydrea is kind of scary, but what do you do? I feel better...
    ... What does your doctor tell you the side effects for hydrea are. They told me long term is lukemia. The last...
    ... I don't know what else to do. I am afraid to take hydrea , but more afraid not to. I have had the throbbing ... Wonder what causes your numbness. Are you taking the hydrea ? I have not noticed any difference yet, except it ... earlier message you left that your hematologist said hydrea does not lower platelets. Would you recommend a 2nd...
    ... Hello Forgiven. I am not taking the Hydrea . The doctor wanted to start me on it and gave me ... works ok. My doctor told me that long term use of Hydrea may/could/would cause lukemia which has a two year ... life term with no cure. My doctor told me Hydrea would lower my red blood cells because my bone marrow ... dont get a bleeding ulscer I will have to go on the hydrea . Then I look forward to getting lukemia. This...
    ... marrow biopsy and as expected he said I should go on Hydrea or Agrylin. We dont need a hematologist to tell us ... this. It's frustrating. Read too that hydrea causes leukemia and it's used to treat skin cancer ... and others. Wonder if hematologist should prescribe hydrea to us,its like either we suffer from the effects of...
    ... Hematologists. Same answer every time. I'm on agrylin and hydrea . Scared to death to take the hydrea, but scared not...
    ... surprise that at 690 level, you have to take agrylin and Hydrea . I read that we need not go on med until it goes beyond...
    ... you have read this website. After reading it, taking hydrea or agrylin is not as scary as it originally sounds...
    ... When the platelet number hit a wall, he added 4 hydrea per day. After 10 days of this, my platelet count...
    ... I really do not feel I had a choice but to start hydrea . I alternate days with 500 and 1000mg.I have been ... to explain.I had all of these symptoms before the hydrea . When they increased my dose I did get nausea for ... feel as if I was going crazy. Amazing that now on hydrea my symptoms are gone. I seem to slowly be getting...
    ... that do and they are all chemotherapy type drugs. Hydrea is probably the most common for ET. Barb, you have...
    ... and put me on TWO drugs atthe same time Agrylin and Hydrea to lower platelets. have had 600-700 for 20 years...
    ... to the possible risk factors involved with taking Hydrea . My Hematologist said Hydrea was prone to possible ... years since I got a bone marrow done. He started my on Hydrea . Not without caution on my part though. He pointed ... out this new research that was done on Agrilyn vs Hydrea . After wieghing my options and reading the research ... report, I decided to try Hydrea . Even though there are unsubstantiated facts regarding ... Hydrea and Agrilyn, there were higher rate of Myelofibrosis ... pretty strong heart palpitations. I've only been on Hydrea for a week, so far I feel fine, but I need to up my...

Cancer: Leukemia board
  1. CML - 8 months on meds 8th March 2008
    ... first (and only) treatment protocol. I was given Hydrea for a few days before starting on Nilotinib. The ... hydrea was needed to kill off the excess (and malformed)...

  2. Hello everyone. 25th November 2007
    ... means..they put her on a pill for that ..its called hydrea i think..iread a little about it and it is a form...
    ... means..they put her on a pill for that ..its called hydrea i think..iread a little about it and it is a form...
    ... cytarabine..starting wed..she is now taking a pill called hydrea i think its a form of chemo also..she has had blood...
    ... cytarabine..starting wed..she is now taking a pill called hydrea i think its a form of chemo also..she has had blood ... always used to perk up and feel better.Never heard of hydrea ,i used to take a pill called atra which was important...

  3. Polycthemia 29th June 2004
    ... youngest patient is 54. My first Dr. wanted to put me on Hydrea , to slow down the bone marrow but then I am on them ... and I told my new Dr. that I do not want to go on Hydrea if I have to go on medication, I told him I will pay...
    ... Blood deases, so we can continue there. me too i took hydrea for 3 days but i stopped when i discovered that i...
    ... youngest patient is 54. My first Dr. wanted to put me on Hydrea , to slow down the bone marrow but then I am on them ... and I told my new Dr. that I do not want to go on Hydrea if I have to go on medication, I told him I will pay...

  4. Cmml 14th January 2004
    ... remission for this kind of leukemia. I have been on Hydrea which is a chemo pill. My spleen is so swollen that...

Infertility board
  1. Having a bad day 21st June 2007
    ... year and had hoped i d get preggo before starting the hydrea . Though my counts were to high and i was told i d ... risks. So i waited for them to go down...stopped the hydrea and started TTC in July 06...got preggo was on aspirin ... Was treated with thyroxine...at the same time took hydrea to get my counts down.When everything was stable stopped...

Sexual Health - Men board
  1. my penis is not working 16th April 2009
    ... Trandate Cancer Nolvadex , Casodex , Eulexin , Hydrea , Methotrexate , Xeloda , Arimidex Cholesterol...

Thyroid Disorders board
  1. New to this board?thyroid probs 17th February 2007
    ... am abit worried about this because i presently take hydrea a drug to control essential thrombocytosis (a high...

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