20th June 2003
[quote]Originally posted by scottieK:
I am copying most of a message below sorry for repeating but I feel I am falling down a well with my pain etc.
If you can tell me your experience with the progression of your symptoms so I have some idea what is going on I would greatly appreciate it-
HERE'S what I wrote before:
Hi, sounds as if you might be able to help.
I have 3 spinal fusions and a long history of chronic pain. It seems like a short time ago but it must be about 6 years ago I started to wake up on incredible pain, stiff and spasmed. I spend my nights up and down trying to fight the sleep that leaves me like that.
I fight chronic depression with hard work -as hard as can anyway. I try to "take a deep breath and run" at the beginning of the day trying not to think of what is going on with my body. I have been on most of the NSAIDS and slow release morphine now. My pain doc wanted to put machines in me and when I didn't do it- dumped me. I do not take antidepressants because I get very useless feeling and afraid I do more with the pills than I think they were made for.
My question for you is that recently my injured joints and areas around the injured joints have become even more painful and some of them swollen and very tender. The arthritis doc didn't even leave his chair when I came in a few years ago and said I had Osteo arthritis. What in God's name am I to do!?? I can't understand what will happen next. I rest the most affected joints and now each other part is getting progressivivly weaker. Any stories on the progression of the problem and if it could be anything else- and if you could help??? Please??sk
Hi Scottie,
Since you have had trauma to many bones, it would make sense that osteoporosis can be present and causing
pain. If you have not had a "Dexa Bone Scan" to look
for bone loss, It might be the wisest thing at this time. If bone loss is detected, taking bone rebuilding meds like Nasal Calcitonin, Itravenous Pamindronate Infusions and the slower acting fosamax..
can correct the osteoporosis.
If you need some facts on this, just do a search on
"Reflex Sympathetic Dystrophy" especially id you are having neurolgical symptoms in the area, like burning, tingling hair loss etc. (I know you don't have a hairy back. :) ) ... or do you?
Have a pain-free weekend
Ron
I am copying most of a message below sorry for repeating but I feel I am falling down a well with my pain etc.
If you can tell me your experience with the progression of your symptoms so I have some idea what is going on I would greatly appreciate it-
HERE'S what I wrote before:
Hi, sounds as if you might be able to help.
I have 3 spinal fusions and a long history of chronic pain. It seems like a short time ago but it must be about 6 years ago I started to wake up on incredible pain, stiff and spasmed. I spend my nights up and down trying to fight the sleep that leaves me like that.
I fight chronic depression with hard work -as hard as can anyway. I try to "take a deep breath and run" at the beginning of the day trying not to think of what is going on with my body. I have been on most of the NSAIDS and slow release morphine now. My pain doc wanted to put machines in me and when I didn't do it- dumped me. I do not take antidepressants because I get very useless feeling and afraid I do more with the pills than I think they were made for.
My question for you is that recently my injured joints and areas around the injured joints have become even more painful and some of them swollen and very tender. The arthritis doc didn't even leave his chair when I came in a few years ago and said I had Osteo arthritis. What in God's name am I to do!?? I can't understand what will happen next. I rest the most affected joints and now each other part is getting progressivivly weaker. Any stories on the progression of the problem and if it could be anything else- and if you could help??? Please??sk
Hi Scottie,
Since you have had trauma to many bones, it would make sense that osteoporosis can be present and causing
pain. If you have not had a "Dexa Bone Scan" to look
for bone loss, It might be the wisest thing at this time. If bone loss is detected, taking bone rebuilding meds like Nasal Calcitonin, Itravenous Pamindronate Infusions and the slower acting fosamax..
can correct the osteoporosis.
If you need some facts on this, just do a search on
"Reflex Sympathetic Dystrophy" especially id you are having neurolgical symptoms in the area, like burning, tingling hair loss etc. (I know you don't have a hairy back. :) ) ... or do you?
Have a pain-free weekend
Ron