Quote from gertie:

Hi Tzu:

Hearing that you are from Britain I would recommend you look up on the internet the addisons disease organization there......

Thanks very much for the advice gertie ..... I will look into what you have suggested and try a private doctor. I also want to ask you about the actual treatment .... It's cortisone isn't it? What is the long term effects of the type doctors use for this? Dunno if you get different types?? I know many have no choice in the matter if they need it .... but I just wondered about it causing osteoporosis and fluid retention is it ... that makes the face very round when on cortisone ...... I just remember my sister had what was called a 'moon face' as a child from cortisone for her asthma and by her thirties she had osteoporosis, but it was treated with Fosamax and she is ok now. Her ostioporosis was also put down to her bullimia in younger years, not just cortisone alone. So if you have any advice on this .... I would really appreciate it .... thanx very much :)