- Guess What Wanda 20th December 2006
... should have mentioned that you are probably on too much Florinef since you swelled so much with your increase. I was ... started on a full tablet & now take 1/2. The full tab of Florinef plus the max dose of replacement really caused weight...
... have to wait until she returns to tell her about the florinef , she will not be back until jan3. I am scared to mess ... it has taken a long time. Do you think lowering the florinef will hurt that??????????...
... Were you put on Florinef when first diagnosed? You are retaining water...so...
... I was put on the florinef about two weeks after the cortisol problem was found...
... levels? That will determine if you are on too much Florinef along with the swelling.
I have heard eating often ... should go away unless you are on too much Cortef & Florinef ....
...
If these levels were before you even started the Florinef you really need to have the sodium & potassium checked ... again now to see if you should reduce the amount. Florinef increases salt & decreases potassium. With your level ... the doc checked your renin level before starting the Florinef .
Congrats on the weight loss!! :)...
... I went back and looked at the date. I started Florinef the day the labs were drawn on the 18th, which means ... been on 20mg of Cortef for about 2 weeks. They added Florinef the day those labs were given, and a week later symptoms...
... are stable you can take less of both the Cortef & Florinef . Real important for you to keep an eye on your lab...
- I don't feel well. 20th December 2006
... prednisone in the pm. And if I should try upping my florinef . I'm concerned about weight gain though. Of course...
... was me last week. Be very cautious when upping your florinef . Talk to your doctor because it causes lots of swelling ... medication first, wait an hour, take the cortef and the florinef , don't take more than one thing at a time. I was doing...
... was me last week. Be very cautious when upping your florinef . Talk to your doctor because it causes lots of swelling ... medication first, wait an hour, take the cortef and the florinef , don't take more than one thing at a time.
I hope ... rest I take in the morning.
I am on 1/2mg of Florinef . I found something else interesting about that, however...
- Question about swelling in the hands 16th December 2006
... If you take florinef with your cortef please check with your doctor and ... reported it to the doctor they adjusted the dose of florinef . They told me that was the way to determine the amount ... of florinef I needed....
... check your levels before making any changes. Too much Florinef can cause swelling, but the amount you need is determined ... by your sodium & potassium levels. Florinef increases sodium level & decreases potassium.
I ... me taking too much cortisol replacement & too much Florinef ....
- new member 8th December 2006
... hydrocorison, 1 morning and 1/2 at night, i am also taking florinef 0.1mg in the moring. since the surgery my magnesium...
- taking all prednisone in the morning 8th December 2006
... you have primary or secondary addisons? Do you take Florinef ? Did your doc start you on prednisone instead of hydrocorti...
... hard for some one who is really busy.
How much Florinef do you take?...
- Help Wanda Wisdom Needed!!!!!!! 8th December 2006
... adrenal problems too. I am on 30mg of Cortef .1 of Florinef , and .75 of Synthroid, .5 of cytomel and .5 of dostinex...
- How do you know when to increase meds? 3rd December 2006
... Jen,
Are you taking Florinef ? Being dizzy & having low BP is a sign of needing ... it. Florinef "cannot" be increased or decreased at will like some...
... more when I feel dizzy, is that bad to do? What is florinef ?
I am going to try splitting the dose, I think...
... Are you seeing an endo? He/she has to know about Florinef . Controls BP, sodium & potassium. Check your renin...
... exact numbers, but I am thinking he doesn't have me on florinef because the numbers are ok? Everytime I have bloodwork...
... cracker to eat with it.
You really need to get some Florinef & start with 1/2 a pill & see how you feel. If it...
... so good! I will definetely ask my dr. about the florinef . Thanks again for everything, I would be so lost...
- Hello I am new here! 25th November 2006
... hypopituitarism for three years. I take Cortef, but not Florinef . I also take Synthroid and human growth hormone for...
- Adrenal Insufficiency and Meds Adjustment 22nd November 2006
... doses are:
Predisone: .5 am
Cortef: 7.5/5/2.5
Florinef : .5 am
I usually take the first around 8am when...
... to make it easier on your stomach. I also take one florinef a day. Good luck!:)...
- Question for Wanda or anyone else with information on Autoimmune Antibody Test 21st November 2006
... later? I am currently taking 30 mg of cortef, .1 of florinef along with 75 mcg or Synthorid and .5 mcg of Cytomel...
... feels she is taking care of that with the cortef and florinef which is now maintaining my blood pressure. Who do...
... that an additional 10mg needed to be added along with Florinef , and since then I have greatly improved. It took...
- Will this ever end?????? 7th November 2006
... medication. They have told me no more cortef and no more florinef . I am on 30 of cortef and .1 of florinef. The side...
... medication. They have told me no more cortef and no more florinef . I am on 30 of cortef and .1 of florinef. The side...
- QUESTION: Can someone explain the different types of Addison's Disease? 31st October 2006
... cortisol replacement & primary is also treated with florinef . Some with secondary addisons eventually need florinef...
- I am a mess, and I am new here. 29th October 2006
... cortisol levels came back deficient, they added .1 of florinef which really helped for 2 days and then it stopped...
... ten mg 3 times a day. I take Synthorid cortef and florinef .1 in the morning, another 10 of cortef at lunch,...
... well on Cortef.
Ask your doc if you need more Florinef since you are dizzy when you stand. Keep after your...
... They refused to add more of the Florinef when I suggested that. They claim I am on the maximum ... dose and that I will swell if they add more of the Florinef .
I saw the neurology guy today and he is going...
- Addisons and anxiety 25th October 2006
... I take Florinef and synthroyd and prednisone, I was on another sterroid...
- How is ya'll's sleep? 1st October 2006
... diagnosed in Jan 1998. I take 25mg Hydrocortisone & 1 Florinef daily. Will proabably take 22.5mg this winter. Also ... addisons.
Eating tons of salt is a sign of needing Florinef . That much salt is probably hard on the stomach ... salt just makes us feel better.
We have to take Florinef to keep our potassium level down & salt level up....
- Addison's and Pregnancy 24th September 2006
... for 10 weeks. Even with the 30 mg of cortef, .2 of florinef and 8mg of Zofran (for nausa). I'm still not great...
- Addisons and frequent urination 18th September 2006
... Vicki,
Please tell us how much prednisone & florinef your son takes. It could be helpful to stop drinking...
- Looking for help 16th September 2006
... Talk to your doctor about trying Florinef . Actually "INSIST" on it no matter what he says. ... secondary, dehydration is a big sign of needing the Florinef . Start with 1/4 a pill each day for a week, then ... guess you could taper your prednisone after being on Florinef for a bit.
You could try splitting your 10mg prednisone ... I am pretty sure you would feel better on a bit of Florinef & less prednisone. Anyway worth a try.
If you ... instead of prednisone you would get a bit of what Florinef has in it also.
The 100mg solumedrol you got in ... every day to stay hydrated even though I take 1/2 a Florinef daily.
Does your friend know you have a life long...
... that and the cloudy feelings...Also...I am taking florinef and 20 of prednisone daily along with thyroid meds...
- trying to get active again 30th August 2006
... fernan1,
Here's her reply. Do you take Florinef ?
"yep, I do heat up fast and hot during exercise ... exceptionally hard for me to run in the heat. I upped my Florinef from .025 to .05 and that seems to be helping. I...
- I am 21 years old and have had POTS for about 3 years 20th August 2006
... to IV therapy in 3 weeks! I am taking midodrine, florinef , and chlonidine. I just want to talk to people to...
... using Xanax and my primary care doctor is suggesting florinef and high salt and possibly zoloft. Any thoughts on ... this? Anyone using Florinef ? I'd like to find out more about this.
Thanks....
... and heart rate are stable because of my Proamatine & Florinef , I still feel sick. I feel exhausted and out of it...
... just started seeing a Dr. who treats POTS. I am on florinef and Toporal. Now I have been haveing symptoms since...
- Looking for a Support Group On Long Island NY 7th August 2006
... then reduce to lowest dose possible. Is she taking Florinef ? If so she should not restrict sodium, but add it...
... then reduce to lowest dose possible. Is she taking Florinef ? If so she should not restrict sodium, but add it ... on 2 meds Hydrocortisone as Cortef 10 mg PO BID and Florinef 0.1 mg a day. I got the kit already. They NADF ( National...
... find what works best.
She may find later that 1 Florinef is too much. Watch for weight gain & high blood pressure...
- stress dosing 6th July 2006
... Robin,
Are you taking Florinef ?
Wanda...
- early addisons? early pigmintation signs? 3rd July 2006
... second endo to try and agin, this time with 100 ug of florinef and everything went great. This lasted about seven ... BP would drop to 100s/60s (while taking 100 ug of florinef ) or even lower sometimes with waves of nause and lightheade ... went away within 15 minutes.
Now I am on 100ug of florinef and about 1,5 mg of prednisone every day.
I still...
- addison's and prostate cancer 30th May 2006
... was diagnosed. I am on cortisone 25 mg a day and 1 florinef pill. You probably need to take more pills when your...
- Shakey 26th May 2006
... right now for the last week or so anyway, meds Hydro Florinef etc all doing good, But i am Shakey as Heck any one...
... entity (to all my other health issues) in 97' - 98'.
Florinef .2mg daily
DHEA 25mg daily
Hydrocotisone 10mg am...
... 5,5 by noon & last 5mg at 5pm.
Are you taking 2 Florinef pills? Normal dose is 1/2 to 1 pill. Have your electrolytes ... Could your potassium be too low from taking so much Florinef ? Our salt & potassium levels are very important ...
... dehydration isnt usually too much of a concern.
Florinef yeah i take 2 pills daily
Kjos, Yes i as i am sure...
... you need more. You didn't mention why you take 2 Florinef . Have your electrolytes been checked lately? You...
... tested it is "dangerous" for you to just increase your Florinef on your own. Your potassium could be very "low"....
- changes due to meds? 25th May 2006
... being on the medications. I am on hydrocortisone and florinef and have noticed that the color is a real deep yellow ... . I had not noticed it before, I started on florinef about 3-3 1/2 weeks ago and just started noticing...
- daughter has symptoms..couple of ?'s 18th May 2006
... several causes. Her dizziness might be helped by Florinef medication (which is a steroid) or, as our doctor...
- adrenal crisis 16th May 2006
... adrenbal like issue-specifically salt wasting. I went on florinef and have slowly weaned but have a lot of pain, tiredness ... term there :) ) I took two of the supplemtns 50 ug of florinef and sat in the ER waiting room for about three hours...
... adrenbal like issue-specifically salt wasting. I went on florinef and have slowly weaned but have a lot of pain, tiredness ... term there :) ) I took two of the supplemtns 50 ug of florinef and sat in the ER waiting room for about three hours...
- New to Addison's 10th May 2006
... of hydrocortisone a day, and I just started on the florinef (half tablet a day) a week ago. So far no side effects...
- Addison's without some major symptoms? 5th May 2006
... finally found an endo and convinced him to put me on florinef which kept me from kicking the bucket until I got...
- Addison's and Lyme disease? 3rd May 2006
... thyroid. Craving salt is another thing. We take Florinef for the salt craving. Not something you should take...
- Symptoms 20th April 2006
... What were your last levels? Taking the amount of Florinef you are could lower the potassium too much. I assume...
- Endo appt 6th March 2006
... had POTS, and could then get well with lots of salt, Florinef fluids and gradual exercise or other meds they sometimes...
- Sonyamom 27th February 2006
... potassium goes into it causing the Addisons Crisis. The florinef I take causes me to keep my potassium and sodium in...
- thyroid adrenal? 10th February 2006
... somethng else. My problem is l was put on Cortef and Florinef and l got worse, all my symptoms got 10x worse. I...
... and I take 50mcg of synthroid, 30 mg of cortef, 1 florinef tab a day. This is just a friendly warning for all...
- help with diagnosis/blood tests 18th January 2006
... glands). These two things indicated he needed to take Florinef to replace his almost nonexistent Aldosterone. You...
- Frequent urination? 16th January 2006
... Are you taking Florinef ?...
- How do phase II and phase III differ in adrenal exhaustion? 16th January 2006
... talking on the phone I am on 4-5 cortef a day and florinef yet this goes on and on. I have had chronic pelvic...
- question on symptoms 10th January 2006
... potassium when you don't need it could be a problem. The Florinef we take is to keep the potassium "down" within the...
... your treatment.
We all assume if you are taking Florinef and salt you don't need potassium. Without seeing ... I've heard of that needed potassium and salt with florinef . If your potssium was at the bottom of the range ... or below it after being on the florinef salt for a while then you might need potassium. If ... t tested your potssium a while after treatment on florinef and he is having you take potassium, I have to question ... stim test? How about ACTH serum? DHEA-S? How much Florinef are you taking? Have you had thyroid testing? The...
- Update on daughter 16th December 2005
... taking them? One friend of mine explained to me that Florinef has Cortisol properties in it. So I would think that ... if she wanted to try to get off the Florinef at all, and could do so successfully, it would have ... was being supplied with the steroid properties the Florinef carries. I feel like I'm writing such LONG sentences ... hr.), fasting Cortisol reading (while ON or OFF the Florinef )
Postural Hypotension test (lie down for 20 min...
- Hi, im a teenager and new to this. 12th December 2005
... doc put you on. Doses & time of day. Do you take Florinef ? Do you have an emergency kit with solu-cortef for...
... enough to replace the hormones. And yes, i did take florinef but only for 5 days because it was all that i needed...
... your salt & potassium levels are? That is what the Florinef regulates. It helps keep your salt up & the potassium ... down. Why did the doc decide you didn't need Florinef ? You need to know. You need to keep copies of all...
... enough to replace the hormones. And yes, i did take florinef but only for 5 days because it was all that i needed...
- Do people with AD get vestibular sensations in head 23rd November 2005
... it is needed for). The answer was for him to take Florinef . Thus far he is not diagnosed with anything but the...
- Hypoglysemia is it real? 11th November 2005
... to do about it. I have tried Synthroid, Cortef and Florinef all made me worse very fast. I am currently not taking...
- How do I know how far along my adrenal insufficiency is? 9th November 2005
... SK, Are you taking Florinef ?
Wanda...
... have my turn at it! I get by on 20mg HC & 1/2 tab of Florinef . What I miss most is stamina & strength.
Some...
- antidepressants? 7th November 2005
... him to have low aldosterone. The endo prescribed Florinef instead of Zoloft, which I believe to be SOOOOO much ... CAUSE of his postural hypotension to give out the Florinef ! This is all we want is a correct diagnosis and a...
- i need support 19th October 2005
... are on a the low end dose of cortef with allot of florinef . Taking 2 florinef tabs will cause weight gain. ... is happening to your potassium level at that dose. Florinef increases salt & decreases potassium so if decreased ... possibly increase your cortef by 5mg & decrease the florinef by 1 tab.
Diet....I should be on one. I was...
... ALD, and AMN. The dose of Cortef is good and the Florinef is okay. Florinef is for regulating the sodium content...
... cortef, so now i'm taking 10 mg/ daily and as for florinef , she reduced it to .1.5. I will see here in another...
- abdominal pain 9th August 2005
... been doing great on 10-30mg day of Cortef plus the Florinef .
Recently been having SEVERE abdominal pain and...
- high doses of hydro 7th August 2005
... autoimmune and therefore primary and you should be on florinef , which might make the thyroid med change more tolerable...
... water balance is also a mess so I do wonder about florinef . Recent testing, my sodium was 136 (136-145) Potassium ... potassium numbers...what do they mean. Is it risky to take florinef without knowing 100% if I need it. Getting the Rx...
... Looking at this info it appears to me that you could use Florinef . Salt is at the low end, potassium at the high end ... & Aldosterone is low. The Florinef helps the body retain salt, lowers potassium & replaces ... the hormone Aldosterone. You should not take Florinef without the doctor prescribing it. He should be looking...
- My Doctor thinks I have Addisons 29th July 2005
... direction of Addisons disease now.He has put me on florinef to regulate my blood pressure which jumps all over...
- what causes addisons 12th July 2005
... This is where the patient is given FLudrocortisone ( Florinef ). This regulates the salt, and potassium and water...
- Partial Adrenal Function 9th June 2005
... bad. This lasted for about 3 weeks. He also tried florinef and the same thing happened. So my docotor is thinking...
- Always the same 2nd May 2005
... Why is it that you can do fine with your meds Florinef .75mg per day and Hydrocortisone 125 mg perday 75...
- Confused; Please Help 27th April 2005
... low sodium levels? It could be that you also need florinef to help control issues associated with low aldosterone...
- Could this be Addison's? 25th April 2005
... medications do you take for the Addison's? I used to take Florinef as well but I stopped taking it many years ago on...
- I Need Advice/Comments 18th April 2005
... You didn't mention taking florinef. Are you on florinef besides the hydrocortisone?...
- Addison's problems, PLS HELP! 12th April 2005
... potassium but most primary Addisonians have to take Florinef in addition to their cortef to control their fluid...
- Need Advice 12th April 2005
... been checked for thyroid problems?
Are you taking Florinef ?
Description
Fludrocortisone ( floo-droe-KOR-tis ... first taking steriods.
I am "GUESSING" you need Florinef & maybe thyroid treatment??????????
Wanda :)...
... are different from my lupus symptoms, so I am not on Florinef . I used to be a nurse before I got sick and if these...
- TESTS: Is it adrenals? Dose hi, low or ok? 11th April 2005
... on 20mg.
Have you been checked for a need for Florinef ?. It helps your body control water & minerals. Could...
- New and need advice on meds 5th April 2005
... although I'm still very tired. Last week we added Florinef and increased my cortef to 25. Problem is that it...
... although I'm still very tired. Last week we added Florinef and increased my cortef to 25. Problem is that it...
- I guess I have POTS AND ADDISON'S! So back on the prednisone.... 25th March 2005
... there? I really hope that steroid replacement and florinef (for low aldosterone) will help you feel much better...
... critical part of your diagnosis. What if you need florinef , too?
I'm worried about you! I hope you find answers...
- Prednisone change to Cortef 23rd March 2005
... taking a low dose of 2.5mg Prednisone along with Florinef , Synthroid, Prempro. Anyway my new Endo comfirmed...
- It's not Addison's....It's Postural Orthostatic Tachycardia Syndrome (POTS) 20th March 2005
... electrolytes always normal on bloodwork? Are you on florinef as well as the beta blockers?
Are you on full...
... over 40 yrs.
He has started me on Midodrine and Florinef , Reglan and Protonix..didn't want betablockers because...
...
They never consulted Endo and doubled my dose of florinef and midodrine and sent me home, got very ill at my...
... night, endo not sure if that is a side affect from the florinef or not. Dizzy spells are still out of control woke...
... your aldosterone levels checked? And..are you on florinef as well as the other medications?
I know one person...
... Sadie -
I am not on florinef ...those levels when checked were okay. I did talk...
... hope you are doing well Lisa you may want to try the florinef it does help also with your BP thats why the dr had...
- Hand & Foot Cramps? 16th March 2005
... cramps? i tend to be low in sodium, but cant take Florinef because of the awful symptoms it causes in me. Now...
... cramps? i tend to be low in sodium, but cant take Florinef because of the awful symptoms it causes in me. Now...
... were supposed to be. Of course I also started the Florinef etc. Once my mineral levels were okay, the cramping...
- My dad has Addison's and is in the hospital...can someone help with my questions?? 14th March 2005
... what drugs your father was taking when he got sick? Florinef is the name of the drug that acts like aldosterone...
- what is addison's D? 11th March 2005
... manage it with daily medication (dexamethasone and florinef ). I am 20 now. Do you think this is what you have...
- COuld this be something to do with my Addisons??? 28th February 2005
... I'm not even me anymore. I take dexamethasone and florinef twice daily and I am a good colour for addisons (i...
- Prednisone 10th February 2005
... have low blood pressure (which I am currently taking florinef acetate for), I'm hypoglycemic, and I have chronic ... started fainting a while ago, but it was cured by the florinef acetate, but within the last month or so it started...
- Craftlady- Out There? 2nd February 2005
... it. Travis doesn't get much relief from taking the Florinef , and can't tell the difference if he has 1/2 pill...
... doing better. It sure sounds as if her need for the Florinef is dramatic. Makes you wonder what else could be ... doesn't it? Have they retested her BP's while on the Florinef or her potassium and sodium levels to make sure her ... potassium is still O.K. despite the Florinef . Trav's BP's went too far up on the .1 Flodrocort...
- Anyone else taking prednisone every other day? 27th January 2005
... is so long on Prednisone and I was still taking the Florinef and Prempro every day. My doctor lets me take a little...
- how long to wait ..cortef 14th January 2005
... has left me almost fully bed ridden. I was put on Florinef back in September...1mg. Been on it since than, no ... P.S is the fact taht i did not have weight gain on Florinef significant? meaning ineeded it? doc prescribed it...
... just moved me up to 10mg of cortef/day. With .1mg Florinef per day. I had ACTH serum and it was in normal ranges...
- WandaB and everyone 3rd January 2005
... m.
5mg around noon
5mg between 4 & 5p.m.
2.5 florinef tablets is allot at once. Have you considered splitting...
... How is your potassium level? Taking that much Florinef may cause a potassium loss & you could need replacement...
- Weight Gain? On Prednisone and gaining LOTS of weight 20th December 2004
... Since then I have been on 30mg of Cortison a day, Florinef .75mg a day, and synthroid everyday for my hypothyroidism...
... diagnosed, my endo put my on 30mg Cortef and 0.1mg of Florinef . I ballooned and was 170 lbs by Christmas. After...
... weight. Of course, it all goes to the belly!! l tried Florinef for a month, but not only gained even more weight...
- Chocolate Cravings anyone? 11th December 2004
... chocolate? I can't seem to get enough. Taking Prednisone, Florinef , Prempro, and Synthroid. Last magnesium test was...
- cortef side effects 7th December 2004
... diagnosing me with it and prescribing cortef to go with my florinef . my ACTH stim test did not double and my morning cortisol...
... for bone loss I will take vitamin D.
I'vebeen on Florinef for MONTHS now and my doc said this drug could also...
- chris 4th December 2004
... adrenals get treatment (hydro or pred and maybe even florinef ), your adrenaline level should come down.
My advice...
