5th May 2008
Um, your son is taking, IMHO, for a replacement dose, quite a large dose.
Second, cortef is one part of what needs to be replaced but with low BP, then you need minercorticosteroids - florinef. Strange that the endo has not figured that out.
Addison's is a salt-wasting disease. The low BP is showing that he is not managing his fluids. He needs salt tablets at the minimum - and some florinef added. Cortef has a tiny bit but not enough for hardly anyone.
I have no adrenals at all... and my replacement dose is only 22.5 (split 3 ways) and my docs say I would be on 20 if only they were not trying to suppress my ACTH. Please talk to your doc (or consider a new one considering this one does not know much about addison's!) about lowering the dose - gradully of course so he does not get into trouble. Otherwise he will have long term effects from the steroids. Also look into salt tablets.
Second, cortef is one part of what needs to be replaced but with low BP, then you need minercorticosteroids - florinef. Strange that the endo has not figured that out.
Addison's is a salt-wasting disease. The low BP is showing that he is not managing his fluids. He needs salt tablets at the minimum - and some florinef added. Cortef has a tiny bit but not enough for hardly anyone.
I have no adrenals at all... and my replacement dose is only 22.5 (split 3 ways) and my docs say I would be on 20 if only they were not trying to suppress my ACTH. Please talk to your doc (or consider a new one considering this one does not know much about addison's!) about lowering the dose - gradully of course so he does not get into trouble. Otherwise he will have long term effects from the steroids. Also look into salt tablets.
