My son was diagnosed with Addison's. His endo is still waiting on tests to see why he is not producing cortisol.I've had to take him to the ER room for fluids twice because he couldn't keep down the cortef. He is very nauseous all the time and throws up a lot and has migrains. The headaches and nausea were getting better when the endo upped his cortef dosage then she said the next day to cut it back down to half and the nausea started so today I'm giving the double dose and calling her on Monday.

She started him out on cortef 7.5 mg 3X a day and 5 mg at bedtime and that dosage wasn't stopping the nausea or headaches. When a person is first dignosed with Addiso's shouldn't what is the normal starting dose? His primary care doctor thought the endo didn't have him on enough cortef to start with. He's lost 14 pounds in 2 weeks and has been in bed for 2 months.

He is having a pituatary scan done next week and she is waiting on more test results. The endo is 2 hours and away and we only have 1 pediatric endo in our town. The hospital I took him too 3 days ago wouldn't admit him even though I asked them to because I was afraid he couldn't keep the cortef down when we got home.

He is not on florinef now. His electroytes are normal and his blood pressure has been very high on cortef. It was very low and he was first diagnosed with vasovagal syncope by a cardiologist 4 weeks ago. In the past when he's taken prednisone his BP always goes way high also.

I appreciate any suggestions or what I can do to stop the nausea. Is that an indication that he needs more cortef?
Pam

Hopefully someone with more experience will jump in and help. How old is your son?
I was started on 20 mg of cortef and it did not work for me for long because I needed more. I was not nausous. I do think that cortef does that to some people. Maybe you should try the generic called Hydrocortizone. I have read on this board before that many people do better on that. If he has confirmed addisons I am surprised that they have not added the florinef already. It really does help.
If I were you, I would call the doctor on call and let them know what is going on. You do not want him to go into an addison's crisis. I will keep your family in my prayers. Also keep an eye on the blood pressure. A side effect of cortef is elevated blood pressure, as it is a steriod.
It did not do that to me. It put me from a very LOW range back into the 90's and 100's.