25th July 2007
Ah the florinef fluffies. I also take .2. I take 1 gram salt tablets with each tablet for a total of 2 grams of salt plus salt with my food.
I have no adrenal glands as they were removed to cure my cushing's disease. When I took florinef prior to my adrenals being out, I gained a stubborn 10lbs that I was never able to lose. After my adrenals were out and I upped my dose and increased my salt, I did lose but I have plataeaued.
Have you had your renin and aldosterone checked? Renin is next to impossible for me to get checked accurately as it is a very fussy test - it is like ACTH - it has to be spun and frozen immediately and drawn into a chilled lavendar tube. My doc prefers that you stand 30 minutes or so before you get the test taken. Most labs let the tube sit and in which case, the renin breaks down and the results then come out lower than they really are due to lab error! ACTH is the same. I bring ice to the lab and try to get them to spin it right away but while my renin should be high since i have no adrenals... well, they inevitably mishandle it so I never know where I really stand. My one doc looks at the sodium and potassium to guess if my dose is ok since they messed up the renin but that is the test you really need.
Do you take both pills at once? I take one at night, one in the morning.
I have no adrenal glands as they were removed to cure my cushing's disease. When I took florinef prior to my adrenals being out, I gained a stubborn 10lbs that I was never able to lose. After my adrenals were out and I upped my dose and increased my salt, I did lose but I have plataeaued.
Have you had your renin and aldosterone checked? Renin is next to impossible for me to get checked accurately as it is a very fussy test - it is like ACTH - it has to be spun and frozen immediately and drawn into a chilled lavendar tube. My doc prefers that you stand 30 minutes or so before you get the test taken. Most labs let the tube sit and in which case, the renin breaks down and the results then come out lower than they really are due to lab error! ACTH is the same. I bring ice to the lab and try to get them to spin it right away but while my renin should be high since i have no adrenals... well, they inevitably mishandle it so I never know where I really stand. My one doc looks at the sodium and potassium to guess if my dose is ok since they messed up the renin but that is the test you really need.
Do you take both pills at once? I take one at night, one in the morning.
