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   Those who suffer arachnoditis (Back Problems board)

20th June 2008
Originally, I was having a difficult time going. I'd sit there for 2 mins. and if I could do anything, it would just dribble out (sorry). Also, I'd get that urgent feeling of having to go and when I'd get to the restroom, I could not go again. That happened all day long...about every 1- 1 1/2 hrs. The Urologist tried several meds. and they either did not work or worked too well and I was having to go every hr. Finally he found what worked best for me and that was 2 flomax ea. day and cath. 3 times a day. The reason for the cath. was because if I was going all day long...he said there was a good chance that I would have an accident...which did happen a couple of times. But, if I couldn't go at least 4 times a day, that meant the bladder was retaining the fluids and eventually, it would overfill and I would then have an accident. So, he found a med. that helped me to not go as much and then I cath. myself to get it out. The intention was to start with the cath. and try to retrain my bladder and then possibly would not have to cont. using it. I am now actually able to go many days of only cathing myself 2 x a day.

I too am on W/C and they have been paying for it, because the Urologist wrote out that the problem was Neurological and stemmed from my injury. But, after a year of them paying for it, they now said that they don't believe it is related (because my pain management dr. said he did not believe it) and we went to court. The Judge ruled that because the 2 drs. ea. had their own opinion, that she could not give the Urologist more weight than the PM and said that she did not think it was related. (I read that and thougt that of course she can give the Urologist's view more weight...its his specialty. It makes no sense). But I am lucky, because I have medicare as well...what w/c denies, they will pay. But I do have to pay for the co payments and deductables.

Your Dr. is right, if you actually have had an accident, it is serious. My surgeon said that if that ever happened, that I had to go in for emergency surgery. That is why every neurologist and orthosurgeon that I have ever seen, always asked if I have any bladder/bowel problems. There is another disorder called Cauda Equina Syndrom...if you have an accident, the sooner you get into surgery for it, the more lilkely you wont have the problem for life. I don't want you to have to relive the aweful way that your Dr. treated you, but can you at least tell me if he treated you for the accident or talked to you about why it is important to let him know that you are having accidents?

I know in VA, w/c allows for you to get a 2nd opinion and they pay for it. Then if you want a 3rd one, you have to pay for it. Are you able to get a 2nd opinion? It sure sounds like you need to find a Dr. that will treat you for this problem...because it is a very serious one and it is a progressive and life-long problem. If it is CES, it can be treated to fix the bladder/bowel problems.

I am sorry for the hard time that you have had. We don't deserve to be treated with such disrespect and rudeness...just because we were injured.

Lorie:angel:
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