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   Help plz. 18 y/o w/rare medical problem (Open to All Health Related Topics board)

26th December 2004
Yes, I have had other reactions. For some reason my body has always been sensitive to stimulants of any kind. Body is sensitive to "just living" I do believe.

There is something in generic oral drugs that affects my sympathetic nervous system, thought to be the fillers. Some of the things I have reacted to are:
penecillin, sulfa, codiene, Elavil, Valium, aspirin, latex, cedar, fungus, soft drinks.

Doctor told me I could still drink tea, coffee, soft drinks if I wanted to but it would wear my heart out faster. I did not drink either for over 30 years and now can get away with a caffeine free soft drink once in a while. Caffeine free soft drinks have up to 3% caffeine and does not have to be listed on the label. That is too much caffeine for me as a rule. If I have a soft drink I must wait for a week at least before having another one.

Nervous system gets sassy even when there is no stress, causing butterflies in chest, rising/falling/cutting thru sensation in upper body and want to shake like an old chicken hen in ashes to get away from the feeling. Guess it is called "flight or fight" syndrome for no reason.

Yes, in the past years I did sweat a lot, not as much as some people. I never liked exercising because I did not like to sweat! Being older now I do not have the sweating problem.

My breathing got off track for unknown reasons and I became a "hidden hyperventilator". As a result my body became deficient in carbon dioxide (Co2) causing bloodpressure to spike to stroke territory, unable to take more than 3 steps without stalling out with no message for legs to move again, wait a little and then try to take steps. After 10 years going downhill finally saw a hypertension specialist and he recognised the problem. Hidden hyperventilation causes the body to blow off too much Co2 and this in turn causes vital organs to be deprived of oxygen. For unknown reasons the body hyperventilates and you are not aware you are doing so, adrenalin increases, body panics (sympathetic nervous system), vital organs deprived of oxygen. The red carpusles have oxygen but cannot be released without a balance of Co2. The sympathetic nervous system acts up along with the above. Hard to know whether the cart gets ahead of the horse or visa-versa. Hyperventilation causes the acid/akaline balance of the body to be off balance.

Hidden hyperventilation can cause a multitude of problems, this happens to be how it affected me. You would be wise to be checked for hidden hyperventilation. Will warn you, most doctors are not aware of this condition, they do not know and will blow you off. Had I not found the hypertension specialist I would be 6' under by now. You need oxygen for vital organs or they will begin to deterioate and then fail. I now can keep pace with my husband or out walk him at times. Thanks to the hypertension specialist I am still alive.

There is a blood test for Co2 and it is best to have this done in the late afternoon. During the night your breathing returns to normal and the Co2 level will be o.k., but, being up and about Co2 will be blown off and the lower level will be in latter part of the day. Even if the blood test lands within the normal range you can still have a problem. Sitting and resting allows the body to breathe more normal and the Co2 will increase. Physical activity, just walking will deplete Co2 if you are a hidden hyperventilator.

I do have to be cautious when taking any medication. Always make sure I know what the doctor is prescribing and ask questions as to whether it will affect the sympathetic nervous system or not. I have refused medications before and will again if I need to. I refuse to take an anti-depressant after my experience with Elavil. Valium was given for back muscle spasms but ended up almost costing me my sanity. Surprised I did not throw the baby out with the bath water. I found things in closets, cupboards that did not belong and I was the only one to have put them there. Finally one day when my husband came home I just started bawling my eyes out and asked if I had lost my mind. I stopped the Valium cold turkey (not suppose to but I did and survived). Amazing how clear intersections appeared after that while driving. Surprised I did not have a car accident or something worse.

Anti-depressants are given instead of finding the root cause of the patient's problems. When the root problem is found there is no need for anti-depressants in most cases, at least with me.
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