- Seizures worsening...is it lamictal withdrawal? 29th December 2006
... medication. One of the first drugs that I took was Dilantin and my neuro told me absolutely no drinking with it...
- Seizures in my sleep. And a question. 27th December 2006
... Edmonton recommend? Was it an AED? (Anti-Epi Med?) Like Dilantin , Lamictal, etc?
Did he take a full family history...
- What does it feel like to have a seizure? 20th December 2006
... free though I am on Trileptal, Frisium, Rivotril and Dilantin , not much of a life without a licence and unable to...
- change of meds 16th December 2006
... 3000mg Keppra, 600mg Lamictal, 400mg Zonegran and 300mg Dilantin . I've been on this comination for about 2.5 years ... a monothearapy. The last monothearapy I was on was Dilantin 20 years ago. Good luck. Jeff...
- Topamax ? 14th December 2006
... Hi,
I am going off dilantin and about to go on topamax- not very happy about it...
... can't help you with topamax info.
I've only taken dilantin .
I've steadily gained some unwanted weight.
How ... much dilantin do you take and how long have you taken it?
Did...
... Hi,
I take 400 mg of dilantin . I have put on about 10 pounds since I went on it...
... You might want to TAPER OFF Dilantin (meaning the 30's) so not to cause problems with a ... Topa. Basicly a cross-fade. I was on 30 or 60 of Dilantin when I started the Topamax to avoid problems like...
... slvl...
Dilantin does make me a little tired, but if I get enough sleep...
- Lamictal 14th December 2006
... psych and bi-polar treatments. Drugs such as Teg, Dilantin and other common medications used in treatment of...
- recently been diagnosed 11th December 2006
... I was put on generic dilantin (phenytoin) after my first seizure. I didn't have...
...
I was put on tegretol initially but switched to dilantin when it made too much hair fall out. After 2 years ... sleep deprived!) At this point they messed around with dilantin and tegretol and dosages. That was 2 years ago. I ... have not had any since and take dilantin . To sum up 5 seizures in 8 years. And 3 of those I ... trimesters, I then nursed her for 7 months. I took dilantin my entire pregnancy with Michael and nursed him for...
- new member 9th December 2006
... controled within the last year..(Switched from a ton of Dilantin and Mysoline to Kepra)
I have learned to say, "no...
- depression and seizure meds 27th November 2006
... determined this was a seizure.) I have been on 400 mg of Dilantin ever since and have had no recuring seizures though...
- please informed epileptics help me 24th November 2006
... epilepsy. She is 13. She was given the standard dilantin , but she has braces on her teeth and dilantin is said ... and see how you are doing. Ou daughter is taking dilantin and lamictal right now and she feels rotten. She ... is being weaned off of the dilantin . It will take some time to find out which med is...
- Seizure changes - is this normal for CPS sufferer 14th November 2006
... took 6-8 YEARS from the original slight adjustment ( Dilantin ) until it must have been 3 or 4 years ago (Topamax...
- please help seizue medication 7th November 2006
... particular types of seizures. Another med you can take is Dilantin . My father eventually had part of his brain removed...
- Increased sensitivity to light? 2nd November 2006
... seizure disorder and my neurologist has had me on Dilantin for about 16 months. I've gradually become increasingly ... neuro, he said this can be a very rare reaction to Dilantin , but he's prescribing 25% more to help control the...
... Musician, not sure about a reaction to Dilantin , but what you're describing sounds like the start...
... After a mega-dose of Dilantin in the ER when I was hauled in after a GM seizure ... those effects were a result of the massive dose of Dilantin administered by IV.
--Travis...
... No, the symptoms did not persist after the Dilantin wore off back to my normal levels.
A good follow ... varients depending on the patient.
Also, Generic Dilantin has problems maintaining levels and acts differently...
- Seizures and early childhood/teen emotional trauma? 1st November 2006
... of this before?
I have a seizure disorder and take dilantin to keep night-time seizures at bay.
But I have...
- problems sleeping? 31st October 2006
... slowly feel better as the day goes on.
i take dilantin , depakote and keppra and just like all the meds they...
... Lamictal is known for sleep problems. I also take Dilantin ,Keppra and Zonegran. After a few months and adjusting ... helps with the loss of bone associated with long term Dilantin use. Good luck with steady sleep and control. Jeff...
... I had big problems sleeping when I was on Dilantin . It was the first med I was put on, and I had very...
- anti convulsants 29th October 2006
... Lamictal and a third drug (Both Epilim and Phenytoin/ Dilantin ) did not work with my body. The Lamictal levels at...
- Keppra info 20th October 2006
... approved) most avoid issuing it now with the newer meds; Dilantin is an oldie as well (1938). There still is Lamictal...
... a month...felt like a million bucks...
I did take Dilantin ...I urge people to get checked out, the difference...
- How do I cope with work and life 17th October 2006
... new nuero. And he says they are seizures. I was on Dilantin , and now he has me on trileptal 600mg. I was doing...
- sleep seizures 13th October 2006
... seizures at night but we don't know why.
Low-dose dilantin keeps mine away -- I live alone, and sleep alone most...
- Epilepsy & Sleeping Pills 8th October 2006
... it was from the sleeping pills interacting with the dilantin . He was awake most of the night wandering, being...
- new member...Hi 6th October 2006
... and Trileptal for about 3 or 4 years. (before that... Dilantin and then Depakote...) I am a little bit older than...
- Which medication for 4 yr old? Topamax, Depakote, Keppra? 28th September 2006
... combo NEVER to be on with those two is Teg Depa and Dilantin That three is CHAOS It is litterally a Yo-Yo effect...
- Primidone? 16th September 2006
... allergic to it. Same with Depakote, Keppra, Topamax, Dilantin and a few others. So I'm kind of desperate to try...
- Need topamax side effects 11th September 2006
... migraines aren't the problem, so I agreed to go back on dilantin . I forgot dilantin isn't good for the bones, so now ... intended to keep that amount & add 100mg 2x a day of dilantin .
Thanks!...
... then read the entries on this site by searching.
Dilantin is a lot worse first of all from personal experience ... . (dental problems in my case) As well Dilantin is an "oldie" in the first drugs used to help epileptic...
- Hyponatremia (low sodium)A must read thread 9th September 2006
... has done to my body all these years. Not to mention Dilantin (teeth); Pheno (nothing I can notice); was on Depa...
... wonderful :)
Travis,
I know what you mean,I was on dilantin at 4 years old,they had to
cut my gums out before...
- Dilantin and deperession 31st August 2006
... revolving door with all these meds, I'm not sure if the dilantin is making things worse depression wise....
... Rivotril is klonopin? Did not know. I took 600mg dilantin daily until I phased it out and 3mcg rivotril. The ... less effective with time. Without doubt, I think the dilantin contributed to depression, along with life and other ... mentioned in another message that my main issue with dilantin is the high level of interraction with other drugs...
... precautions,if any, related to travel across time zones for dilantin user[me]. So...hoping this gets my foot in the door...
- Scaring causing seizures 31st August 2006
... tell me this is focal epilepsy? I am on Trileptal, Dilantin , Frisium and Rivotril. I am very anxious and have...
- question 30th August 2006
... previous meds; YES I've had that problem (Depa, Teg Dilantin ); they wanted to try that problmatic combo a second...
- What lies ahead for me? 30th August 2006
... came back clean. I was told to swallow 10 pills of Dilantin which I did and then they gave me a prescription for...
- Am I still epileptic? 26th August 2006
... nasty-looking EEG after the gran mal and was put on dilantin , but only took it for a few months. I quit smoking...
- Dilantin users... 23rd August 2006
... the patient for how well your medication works.
Dilantin has been around and works in a lot of cases.
It...
... I take 300mg/day of dilantin to control GMs.I dont get auras with my epilepsy-I...
- Flailing arms while conscious 20th August 2006
... about. Until this week.
My neuro had increased my Dilantin from 300 mg a day to 400, and a couple of weeks ago ... had never happened before. So I went back to 400 mg Dilantin .
Then this week the dizziness suddenly returned ... my neuro this week for the results. Oh yes ... my Dilantin level was 23, when it should be 10. Needless to say ... I'm thinking maybe either another side effect of Dilantin toxicity or perhaps focal seizure. Or it could be...
... Normal dilantin levels are 10-20, so yours was slightly high, but...
- Dreams/sez's? 15th August 2006
... my whole life... is that rare or something??
Dilantin gave me horrible nightmares-- and it wasn't even like...
- A Question For All You Girls 14th August 2006
... Ive been on dilantin for 23 years to control GM's(since i was 17).I only...
... when i was 17 and had my first seizure they put me on dilantin and told me i'd probably have to take it the rest ... it wasnt until 5 yrs ago my neuro weaned me off of dilantin since i was seizure free for 7 yrs after a month i ... had a seizure and went back on dilantin .since then ive realized that i get these myoclonic ... ive never been on the pill as i was told the dilantin would make it ineffective as birth control.however...
... at "that time of the month" and just took an extra Dilantin or phenobarbital and took things a little easy. Worked...
- Coming off of meds 14th August 2006
... like 7 years ago... that gives you time line (Was on Dilantin as well).
To the point... He wanted to reduce...
- Concerned and Confused 12th August 2006
... at all for the seizures. Last Year they put her on Dilantin but took her off after a few months because there...
- double vision related to Epilepsy? 2nd August 2006
... your system. I was toxic, at least I was told, on dilantin and tegretol XR. This was a few years ago and I think...
- zonegran.. anyone? 29th July 2006
... because I'm taking so many other AEDs. Now I'm taking Dilantin , Lamictal, Keppra and Zonegran.
I take my meds...
- When do you have your gran mal seizures, and when do you take meds? 27th July 2006
... I used to take my dilantin all in the morning, but about four years ago the doctor ... and sleep patterns all the time. I often increase dilantin by 100mg a day for a few days when I am extremely...
- Titration rule of thumb? How fast is too fast? 26th July 2006
... I had no problem with Lamictal. I was taking 300mg Dilantin , 400mg Zonegran, 2000mg Keppra and 400mg Lamictal...
- switching medications 24th July 2006
... Hi,
I have been on dilantin for 30 years and my neurologist wants me to switch ... carbatrol (slow release). I've been taking full dosage of dilantin 300mg and the 200 mg of carbatrol for 2 1/2 weeks ... supposed to add another 200mg before titrating down the dilantin g!!!! Has anyone switched medications? Was it difficult...
... others- 11 total.
I've been on Depakote, Lyrica, Dilantin , Carbatrol (no problems, just no med coverage on disability...
... switching medications. I have done well on 300 mg of dilantin for 30 years. I did have breakthrough seizures, usually ... medications. I'm impatient and want to get off the dilantin quickly!!!
I am so sorry that many of you take mutiple ... increase the carbatrol to 400mg (and still taking dilantin ) I can drive and work (I'm a therapist and don't want...
... When I dropped off Dilantin I used 30's; I was on Teg and Keppra at the same time ... 50's.
Those are your two options for getting off Dilantin . The 30's may take a little longer, but you don't...
- Epilepsy and the College Student 22nd July 2006
... horrible side effects from the first meds I was on- Dilantin , and my seizures weren't getting better either. So...
... had grand mals at 17 yrs of age, they started me on dilantin and 30 years later, I have never had a grand mal since...
- raised liver enzymes 21st July 2006
... slightly elevated liver enzymes. My neuro took me off of Dilantin years ago because of this and put me on Depakote/Pheno...
... I was on a LOT of Dilantin (700mg/day all at bedtime) and my liver enzymes went...
- Finally!!! 20th July 2006
... usually hand out.
In my case, with Zonegran, Teg, Dilantin , and Keppra I had problems... The weight loss kicked...
- Ativan for "as needed" use??? 16th July 2006
... It's all his fault! ha ha
Anyway, I'm glad the Dilantin is working for you...(I hated it)...stay away from...
- Tegretol vs. Carbamazepine 11th July 2006
... on brand as generic.....save money on this one.... Dilantin is a different story- need brand on that one. But...
... with some.
--Travis
P.S. The above post about Dilantin is a very good parallel, but I never had different...
... I had problems with generic Dilantin , which was the first anti-sezure med that I took. ... though. But from my experience with the generic of Dilantin , I'd say that there definitely can be a difference...
... There can be- and Dilantin is one of those that is a prime example of a situation ... the generic than the brand...
I was always on brand Dilantin , until it started making a mess of my liver enzymes...
... t tolerate them. I did learn early on that generic Dilantin was frowned upon by neurologists as a poor option...
- Opinions re Keppra vs Topamax 10th July 2006
... and avoidances.
That is still very true. (look at dilantin or teg warnings!)
The main problem with Keppra...
- Lamictal side effects,Very interesting!! 5th July 2006
... very well together. My epi is trying to get me off Dilantin . I'm taking Dilantin, Lamictal, Keppra and Zonegran ... . The scarey thing about going off Dilantin is that I think it's done more for me over the past...
- Neurontin? 1st July 2006
... any side effects either. I was taking it with 300mg Dilantin then 400mg Dilantin, Dilantin has always reduced the...
- My boss & Co-Workers are..... 28th June 2006
... I am on Dilantin 400 mg now( from 300) and Depakote (new). I know and...
- HELP! Epilepsy confusion 25th June 2006
... levels were really low at that time he was taking Dilantin . The doctor also said they found traces of alcohol...
- New, confused, and scared 23rd June 2006
... only had one actually) in 7 years. I was first on Dilantin but it made me sick to my stomach.....I have no side...
- What is your criteria for going to the ER? 22nd June 2006
... They've never done anything other than give me I.V. Dilantin once (how we found out I was allergic). Since then...
- Bad timing for seizure 20th June 2006
... they argued with hubby that I couldn't be allergic to Dilantin ! So we don't go there. The next closest one is 30...
- R U Taking Only Ativan/Lorazepam 4 Seizures???? 19th June 2006
... Yeah, Dilantin is often used for trigeminal neuroalgia, and other...
- Too Expensive to see doctor everytime I want blood test 16th June 2006
... I'm an American and have been taking Dilantin for more than 20 years. Eight of those years were...
... from private being they are government funded.
Dilantin levels are NOT that expensive compared to some of...
- need blood tests at reasonable costs. 14th June 2006
... m currently living in Las Vegas. I've been taking Dilantin for more than 15 years. I would like to have my blood ... level for Dilantin checked from time to time but the costs are prohibitive...
- Fluctuating dilantin levels 14th June 2006
... My Dilantin levels also fluctuate a lot, but not as much as yours ... are climbing or declining to dangerous levels.
Dilantin seems to be a very difficult drug to keep at optimal...
... to the ER due to GM's and low levels were found of Dilantin even though I had taken it.
So as you may be guessing...
... all of that may have had something to do with the dilantin being 'used up' faster, since he was seizing so much...
... Many things affect Dilantin levels - hormones, other medications...even other ... AED affect the absorption rate of Dilantin . Plus, as was mentioned, generic vs brand DOES make ... a difference.
Therapeutic Dilantin levels are considered to be 10-20. What were your...
... much in his levels sounds like he's very sensitive to Dilantin ....but if he had been doing well for so long, that ... about it- some seizure meds are ok in generic, but Dilantin is one people seem to have trouble with across the...
... Perhaps that morning somehow your fil didn't take his Dilantin . (I think I've done that before, I've had my meds ... to story.) So perhaps your father doesn't get his Dilantin , his levels go dangerously low, and that coupled w ... combination.
He goes to the doctor, doctor ups the Dilantin mgs (which wasn't really necessary), and because of ... that your dad goes into Dilantin toxicity. I've been at a 22 before, he must've been...
... for the drops.
DId he change lot numbers of the PD dilantin he was taking.
I have been on dilantin for over 15 ... had a seizure. I had just received a new lot of PD dilantin and started that discontinued the suspect lot and...
... his 20s. He has had a long road of being on and off dilantin . He has been on it and well rgulated for the past...
... other drugs he takes affects the uptake and removal of dilantin from his system. Aspirin is known to have this effect...
... My dilantin levels also fluctuate quite a bit, and have for many ... sodas
Aspirin
Phenobarbital
Generic vs Name brand Dilantin (levels higher on name brand)
body weight
Mysoline ... has caffeine or a caffeine replacement takes out my Dilantin levels. When I was first put on generics, I had a...
- Phenytoin side effect... TIRED 12th June 2006
... for quite a while, and because of the half-life of dilantin , was able to take all of it at bedtime....never noticed...
... I have been on dilantin for 22 yrs and i take 200mg in the morning and 100...
- Flat out asked the ER nurse what sz pts do that is so 'distancing' to them... 11th June 2006
... One occation I had a very assisting nurse when the Dilantin dose was effecting my eyes (light sensitive) she shut...
- Anyone with Epilepsy on Disability? 9th June 2006
... am 28. I work as City Clerk for our town. I am on Dilantin but I still have seizures at least twice monthly....
- Other medical disorders along with E 1st June 2006
... my daughter is 39 and been on 500mg of dilantin daily since age 17. She has recently been losing more ... sick that she is wasting away. Is this common for dilantin side effects? Her blood level is around 40, it should...
... Yeah, sounds like she needs a Dilantin level done, and maybe a change in meds....is she taking ... any meds for any other problems???
When I was on Dilantin , I don't remember the lack of appetite, or feelings...
- I need some info and help! 31st May 2006
... pretty much ignored me and they just gave me and IV of Dilantin (sp?) which made me feel so bad I would rather be...
- Can't stop seizures... 30th May 2006
... 3 daily and hospitalized to try to control.Taking Dilantin now and they are down to probably one a week. Recently...
- Here I go again... 30th May 2006
... packed the final night.
SIDE NOTE: 300mg/day of Dilantin is the "typical" dose if you look at books. I was ... endorse that medication. I had a bad experience with Dilantin , and the "megadoses" the Hospital ER's like to administer ... 2200mg by IV within 60 minutes in my case history).
Dilantin is an older drug, that works for a lot of people....
... arm twitching).....at one time, I was on 700 mg of dilantin a day....max safe dose is 600mg/day (and because of ... well after mixing it). Most ERs use an offshoot of dilantin IV now, that has fewer negative effects (can't remember ... the name off hand). IV dilantin also metabolizes differently than the oral, so more...
... your airway at night...you might still need some dilantin for a while, but you might be able to get off of it...
- Seizures and Anti-Depressants??? 29th May 2006
... I take Dilantin , name brand 300mg. per day. I have taken the dilantin...
... I took effexor wtih 4oomg Dilantin and it did not work. I am in a depression and they...
- hiccups and seizures 26th May 2006
... tabs and 3 pheno's. 3 Lamictals and 4 Tegs and 2 Dilantin . Now it's 2 of the Keppra 750's, 3 Teg's, 2 Topas...
... Here in the past few days my doctor increased my Dilantin to 500 mg a day along with my 1500 mg of Keppra twice...
... My husband takes 390 mg. of Dilantin a day and 750 mg. Keppra twice a day. Shortly after...
- Gonna write a letter to the ER 26th May 2006
... Pheno.
And on 3 or more occations 1800mg-2200mg of Dilantin by iv when I was taking 300/day (generic) for low...
... calling the ER back, but I just wanted to sleep the Dilantin megadose off.
I don't know many cities that don...
... necklaces. I'm allergic to several meds, one being Dilantin , and I'm not able to tell the staff but it's on my...
- I'm scared 23rd May 2006
... figure out what is causing them. He was prescribed Dilantin about 2 months ago and so far it seems to be working...
- What med. works best on simple partials 4 U? 22nd May 2006
... Dilantin almost killed him when he was 3 years old. He lost...
- I do not understand, so frustrated! 20th May 2006
... of my daughter they were completely controlled by Dilantin . 3 weeks after the birth of my daughter (now 15)...
- Anyone have social problems/years of epilepsy 17th May 2006
... to face. I don't know if it's all the meds I'm on, dilantin , lamictal, keppra and zonegran or just having so many...
... agree that meds mess with everything. I've been taking dilantin for 15 years. It seems like the only thing that helps...
- does anything work? 12th May 2006
... that works for long at all. I've been on on Tegretol, Dilantin , Lamictal, Kepra, Zonegran, and even though I've just...
- Keppra question 4th May 2006
... LOW, and seizures were well controlled. If we use Dilantin as the random drug (range 10-20) and the level came...
... in Minneapolis.
He put me on Depakote, Teg and Dilantin at the same time. The combination that the FDA texts...
...
Children they tend to (in the past anyway) try Dilantin , Tegretol, Phenobarbital.
Some medications some...
... tegretol. He has been through tegretol, depakote, and dilantin . Currently he is on zonegran, carbatrol and lamictal...
- teenage moodswings 28th April 2006
...
I was on Depakote (Epilim), Tegretol Retard and Dilantin (phenytoin). That threesome of drugs was chaos for...
