- Is extra Folic Acid still necessary ? 18th March 2008
... When I was on Dilantin - I was told to take extra Folic Acid .
I am...
- Any information would be great 13th March 2008
... driving and see a neurologist. He also prescribed him Dilantin , which has been okay so far.
Since the seizure he...
... I was on Dilantin for a short amount of time after my grand mal seizure ... and added Keppra), and I can say that while on the Dilantin , I had side effects like an overwhelming feeling of ... they were just overwhelming. This was all from the Dilantin . Once I was off of it, those things stopped. So your...
... headaches or the feeling of cold on my forehead while on Dilantin . A couple of years ago, while on Tegretol, I do remember...
- Dilantin 11th March 2008
... give you a good picture where the blood levels are. Dilantin (in general) should hold between 10-20. A patient...
- i dont like depakote xr 1000 mgs its making me sleep too much .have to vent ... 1st March 2008
... 1500 mg a day, plus 800 mg of tegretol and 300 mg of dilantin . I sleep more than my cats do...and my friends and...
- The new Dilantin...question 13th February 2008
... myself, I haven't had any problems so far with the new dilantin . I guess that is not the case, however, for some...
... For me, I'd prefer the old dilantin . I don't need to be worrying about a change in meds ... one medication you don't, f with. I've been taking dilantin and pheno since I was 12, I'm now 53. We'll know soon...
- On Lamictal and Keppra and my hair is falling out in chunks... 9th February 2008
...
I've always had issues because of my medication ( Dilantin , Topamax and Keppra) including hairloss. Whenever...
- Losing Lots of Time 7th February 2008
... clozaril or epilepsy. I am on the anti-
seizure med Dilantin (300mg) and I am no longer taking clozaril and I feel...
- Tegretol vs. Carbamazepine 6th February 2008
... make a difference. The fist AED I was ever on was Dilantin , but it was the generic version. It didn't show up...
... problems. I've always been told never to take generic Dilantin . Different bodies, different reactions.... the core...
- FDA Warning re AED's 3rd February 2008
... foundation?
I find it very scary. When I was on dilantin , I suffered from depression but not to the point that...
- started depakote 500 mgs 2 times a day has anyone tried this med for seizures ????? 23rd January 2008
... Hi, I have had epilepsy for 15yrs now and I am on Dilantin 1000mg/day as well as Depakote 325mg sprinkles six...
- Drinking and Dilantin 23rd January 2008
... mix alcohol with any anti-seizure meds. The generic Dilantin might just be more reactive to it.
You should check...
... to avoid complications between the alcohol and the dilantin .
--Travis...
... I"ve never heard of generic Dilantin being a 'better' choice (or even equal) to brand name ... when I took it years ago- "never get generic".
Dilantin and booze both hit the liver hard...... I wouldn't...
... coolers a month. Drinking will weaken the effect of the Dilantin so I would take it easy....
- Need advice/opinions 18th January 2008
... seizure). At the hospital, we were told that his Dilantin level was 5.7. He has NEVER, I mean NEVER missed ... drive, he said after the MRI and after his levels of Dilantin are between 10-20. So possibly, he will not drive...
- Is this a seizure??? 14th January 2008
... unusual, and hasnt been for several months. Meds:
Dilantin 200mg 4x/dy
Mysoline 250mg 1x/dy (except Sat, Sun...
- Auras 13th January 2008
... and knowing it's time to take my medicine (I'm on dilantin and primidone). I don't understand this. I'm wondering...
- New Dilantin 12th January 2008
... I ordered Dilantin from a Canadian pharmacy a number of years ago, and...
... now that he is also on Keppra, I don't know if his Dilantin can be lowered or not. We just had a level drawn...
... if I recall).
Officially the middle band on the dilantin (OLD DILANTIN) they claimed was orange. I had to ... using the 30's. I used them when I was lowered off Dilantin rather than large drops of the (bad humor) joyous ... drops weekly compared to larger made the removal from Dilantin go without a hitch.
--Travis...
- Medication 12th January 2008
... wasn't kind to me either.
The best drug for me was dilantin although today my neuro told me that it causes osteoporosis...
- trouble getting medicine with no insurance 9th January 2008
... from one generic to another generic when I moved. Dilantin Brand Name WAS (unsure currently) powder inside the...
... decade of my life and I still couldn't afford meds. Dilantin was relatively inexpensive in its generic form. Once...
- epilum 9th January 2008
... some of the meds and the side effects: Phenytoin ( Dilantin ) capsules, syrup and tablets
Dosage: Average daily...
- Medication Blues 8th January 2008
... and fluids, raising my BP. Seizures continue. Next, Dilantin . I immediately began to notice differences in myself ... neurologist told me about Depakote, a 'softer' version of Dilantin . I still didnt like the idea of taking a medication ... mom worry less. A lot of the same side effects as Dilantin , but for the first time since I was 14, I went a year...
- Fellow Epileptics: Using our 'power' for good! 8th January 2008
... years, I was switched between many meds, including Dilantin (HATED the way I felt) and Depakote (worked on and...
- Started Keppra today 7th January 2008
... with the Keppra,750mg BID, he still takes 390mg of Dilantin . His grand mal seizures were all nocturnal and averaged ... seizures since the Keppra. Before, along with the Dilantin , he also took Neurontin 1800mg a day. It didn't seem ... hiccups were caused by the combination of Keppra and Dilantin . But since there is no seizure activity, he will...
- weight n AEMds.... 6th January 2008
... weight on Z in roughly a month due to the sideFX. My Dilantin levels shot through the roof as a result of weight...
- please someone tell me does depression come with seizures im so frustrated here ..... 23rd December 2007
... diagnosed at 13, and since my grandfather also took Dilantin , the doctors wanted to know if there was a genetic...
- I need help... 19th December 2007
... epilepsy. I was dxed when in jr high, started on Dilantin & Phenobarbital. Anyway, now I am 50, am on different ... drugs (save Dilantin ).
Problem is this: Had a sleep study (suspected ... deprivation. But...I cant get to sleep!!!???
Drugs: Dilantin 250mg x 2 2x/dy (total 1000mg)
Keppra 500 x2 2x/dy...
- Hiccups?! 18th December 2007
... returned. Someone else on this board mentioned that Dilantin and Keppra taken together may be responsible for the...
- 5 month old son has seizures every time he sleeps, anyone else? 15th December 2007
... stimuli does something? we started pheno, then added dilantin after a few weeks, and he was on that for about 1 ... months, he still had them, so they added keppra. then dilantin wasn't even showing up in his levels, so they dropped ... dilantin and tried just the pheno and keppra. and did ok for...
- What's happening to my dad? 14th December 2007
... seizures, and I think it was called something like Dilantin . My dad complained about many side effects, such as ... to thin his blood or something after he was off of Dilantin .
Then on December 12th, 2007 he had another seizure ... doctors all said that he was fine, so they put him on dilantin again but the dosage wasn't as much as the last time...
... doctor for a different drug to substitute for the Dilantin since it seems to be affecting my dad's behavior quite...
- Strange, vivid and bizarre dreams... 9th December 2007
... When I was on Dilantin for a few months after my first GM, I had such vivid...
- total memory loss 8th December 2007
... head injuries etc.
also for yrs I was prescribed dilantin wich I took sort of and if you asked "how are you...
- Partial Paralysis after third Grand Mal Seizure 6th December 2007
...
After that the docs tried various meds on me, Dilantin and Topamax are the only two I can remember, but I...
- how often should a person on dilantin get blood levels checked? 3rd December 2007
... and don't tend to change.
My new doc (I'm not on Dilantin ; have not been for years) goes more by how YOU (as...
... do.
They DO have a 30mg Kapseal (pink ring) of Dilantin rather than dropping with the 100 or the disgusting ... symptoms the medication caused me.
Very high doses of Dilantin (administered by IV at the hospital) caused me to...
... Hi!, See my opther post on dilantin , aspirin and MS....search gary 33. Aspirin can elevate ... dilantin levels....
... Dilantin levels should be checked regularly. How often depends ... being adjusted.
I am one of those that has been on Dilantin for years. My levels are above the toxic range (between ... problems, that changes things. From what I understand, Dilantin can damage the liver. Mine was damaged when I was ... careful. That may be another reason why my testing for Dilantin levels is more frequent....
- Please...talk to me about YOUR nocturnal seizures 2nd December 2007
... of only 9 GM's.
I have taken 300-400mg generic dilantin (now 300) since the beginning.
They all happen in...
- what do you take for nausea 25th November 2007
...
For me, Topamax, Keppra, Lyrica, Depakote, and Dilantin are 'forget it' meds- yet for others they make a world...
- seizures after 60 24th November 2007
... was confident and independent. As I got older, the dilantin stopped working, I was put on Topamax which gave me...
- Do The Side Effects Of Keppra Subside 23rd November 2007
... Topamax but I long for the days that 400 mg a day of Dilantin was all it took to control my seizures....
- Dilantin levels 22nd November 2007
... of time and then suddenly dropped, it could be the dilantin . Have you sent them back to pzifer for testing? ... breaktrough.
After changing lot numbers of parke davis dilantin , my level returned to normal. I sent the pills back...
... I was on Dilantin (generic) for 17 years. I took 400 every night. ... gums were bleeding. I was told that for some people, dilantin can only work for so long and then it loses its effectivene ... Topamax (a brutal experience) and now I'm on Keppra.
Dilantin was the best med I was ever on. It controlled my...
... [QUOTE=TopamaxKillsMe;3324383]I was on Dilantin (generic) for 17 years. I took 400 every night. ... gums were bleeding. I was told that for some people, dilantin can only work for so long and then it loses its effectivene ... Topamax (a brutal experience) and now I'm on Keppra.
Dilantin was the best med I was ever on. It controlled my ... compared to topamax and Keppra.
If you still have the dilantin that you were using at the time, send it to the manufacture...
... [QUOTE=Lee1672;3318571]I take 550 mg of dilantin a day every am @9:00 for awhile my levels run where ... deplete my level all of a sudden like that
Send the dilantin back to the manufacturer for testing and pleasecontact...
... has anyone experienced vision changes since taking Dilantin ? I've been taking dilantin for 2 1/2 years(due to...
... topic since it relates.
I have been taking generic Dilantin for over a year now and have not had any problems...
... Only 550mg?
Well, I have had some issues with Dilantin . I was dxed in junior high school, first drugs were ... Dilantin /Phenobarbital:)
There was at least one refill of ... later, after college, I was switched over to generic Dilantin . Had a breakthrough sz within a week. Same thing. ... us to see dr. first. Well, it appeared that generic Dilantin at the same dosage level did not deliver as much Dilantin ... didnt do well)
...to name a few.
I am still on Dilantin . Same dose. Thing is, for me, the dose that works ... blood level over the 'accepted' normal blood level for dilantin . So a new doctor will cut my dose. Then I have a breakthrou...
... Two points I would like to bring up as I had been on dilantin for 40 years and began to have symptoms identical ... demonstrate if you take aspirin you can elevate your dilantin levels, becasue aspirin binds competitively to a protein ... responsible for removal of dilantin from the bloodstream. I once took three aspirin to ... becasue they turned out to be related to elevated dilantin levels not MS.
2) The effects seem for me largely ... REVERSIBLE, once off dilantin my eyesight came back, I have regained essentially ... in color. I feel ALOT better after getting off of Dilantin and onto Keppra, As to whether my siezures will be ...
Hope this helps. The point being if you stay on dilantin it will make your life a living hell and at the same...
- Still no seizures 18th November 2007
... Keppra or not. His daily hiccups may be the Keppra and Dilantin , but we are not sure about that either....
- anti seizure meds 14th November 2007
... when I was almost 19, I had a GM. I was started on Dilantin , but it did nothing for my seizures and gave me nightmares...
- does dilantin cause gum disease 13th November 2007
... [QUOTE=readyrudy1955;3304411]Does dilantin cause teeth problems?
[FONT="Comic Sans MS"][SIZE ... and how you take care of it.
I've been on generic dilantin since 2001. I've had very few dental problems from...
... Despite good oral hygiene, when I was on Dilantin , my gums swelled up so badly that frequent visits ... was so self-conscious about my gums because of the Dilantin . The dentist would take an instrument and pierce...
... [FONT="Comic Sans MS"][SIZE="4"]How much Dilantin were you on?
I take only 300mg/day.
My gums ... teeth.
My gums still look the way they did before Dilantin .[/SIZE][/FONT]...
... gums are still ruined, to this day, thanks to the Dilantin that I was put on when I was 10 years old when my ... seizures first began, and I was on Dilantin for nine years. I took 3 D. a day, 200 mg each, and ... my parents or me about this terrible side effect of Dilantin . Know how I found out? When I was around 20 and ... new dentist, he asked was I on any medication, like Dilantin ?! When I explained yes, for 9 years, he's like, oh ... I was like, what are you talking about? He said Dilantin severely affects people's gums, and like I said, my...
... and teeth problems are a side effect from long term Dilantin use. Also, Dilantin can be calcium robbing, so taking...
... Dilantin does cause your gums to swell-I took it for years...
... interesting insight into the swelling of gums caused by Dilantin . He said that, occasionally, such a person will be...
... I was put on dilantin at age 4,and when I lost my baby
teeth,my gums were ... showing.Now many
years later since I have been on dilantin ,I have peridontal
disease and have to have my teeth ... fessionally cleaned
every 3 months,my dentist told me that dilantin has been
know to cause this....
- Trileptal, vaginal pain and side effects 5th November 2007
... epileptic and am on Trileptal, Rivotril, Frisium, Dilantin and Aropax. I have been suffering with some kind of...
- Can Epilepsy Lead To Other Problems? 2nd November 2007
... sleep apnea after I had my seizure. But i was also on Dilantin at the time, which gave me lots of other problems ... because it hasn't happened since I've been off the Dilantin ....
... [QUOTE=SentenceDoing;3298682]But i was also on Dilantin at the time, which gave me lots of other problems ... because it hasn't happened since I've been off the Dilantin .
What other problems did dilantin cause for you? ... many sinus problems, including pollyps... not sure if dilantin is the cause. I only take 300mg/day (generic).
Thanks...
... [QUOTE=IMNRVUS;3298890]What other problems did dilantin cause for you? I've had many sinus problems, including ... pollyps... not sure if dilantin is the cause. I only take 300mg/day (generic).
Thanks...
... See my other post on long term Dilantin use and MS...it can cause alot of problems....
... to post these studies and reference articles (FYI: Dilantin =Phenytoin):
First a study by Elson So (now at ... Kiffin Penry (deceaesed): Adverse Effects of phenytoin ( Dilantin ) on poeripheral nerves and neuromuscular junction ... 61: Conclusion GGT levels are higher in folks on LT dilantin therapy.
Phenytoin and cerebellar lesions: Similar...
- tegretol xr400 29th October 2007
... Secondary's (add-on's) have helped such as Keppra or Dilantin , as well as Topamax.
Not in every case do we find...
- grandmal seizures and flying 27th October 2007
... ambulance en route to the hospital. She was loaded with Dilantin on the flight home from Florida to Buffalo, and did...
- Dilantin and Foot Pain/Numbness 22nd October 2007
... on dialntin for many years. I was probably taking dilantin for twenty years before it started to happen. No...
... 1 to 1 1/2 sizes larger.
When I first started Dilantin , my joints and muscles ached for a long time. Within...
... Let me ask you something else. Are you taking the Dilantin Kapseals 100 mg? or another type. That could have...
... suddenly after about 1 year.
Over the years, the dilantin is the last thing they suspect.
The only thing I...
... my foot. I dont really know what it is or if the dilantin has caused it. I take dialntin kapseals not the generic ... feet or joints. But it does not mean it is not from dilantin . It could just be that not many users get these particular...
... other people and myself in the same town that was on Dilantin and all three of us had the same problems. We all ... 1 1/2 sizes larger and the foot pain. I was on the Dilantin for 5 months and have been off it for 2 years this...
- Dilantin Kapseals 100 mg-are the pills changed? 22nd October 2007
... inside the capsul.
Chemical name/generic name for Dilantin is "Phenytoin" (also called phenytoin sodium). If...
... was wondering is if this med is a replacement for dilantin , or a generic. It said dilantin on the bottle but...
... triangle tab (yuck, bananna) is the 50mg chewable Dilantin . I've had all of 'em.
--Travis...
... They said the pill has been changed....but um....some dilantin users have been told that the original dilantin kapseals...
... them back, did the pharmacist identify that pill as dilantin ?I've only known the Kapseal 100 mg dilantin to be ... tell both him and his nurse that I will only take dilantin . A couple of years ago when I went to pick up my medicine ... the correct medicine. I guess someone else got my dilantin , and hopefully they bought it back. I don't trust...
... Donna: The bottle said Dilantin on it. It was in a sealed bottle. As far as I can ... new orange and white pill is to take place of the dilantin kapseals (the one with the orange band). Some posters ... find out if the ingredients are the same in the new dilantin . I am worried that if the ingredients are different ... the ingredients for kapseals....but not for the new dilantin cap. One poster said that one of the ingredients ... been changed. I am trying to find out from other dilantin users if they have had experience taking this new ... dilantin. I have always been given the dilantin kapseals. And this time when I went to get my rx ... epilepsy/dialntin users update. If you are taking the dilantin kapseals 100 mg, then this will affect you because ... looks like it is being replaced. If you know other dilantin users...let them know this is happening....
... pulled up information I was unaware of.
there is a Dilantin 125.
I WAS WRONG. The 125 is an ORAL SOLUTION. ...
... pulled up information I was unaware of.
there is a Dilantin 125.
I WAS WRONG. The 125 is an ORAL SOLUTION ... AROUND TRYING TO LOCATE MORE DEFINITE INFO ON THESE NEW DILANTIN CAPS. BUT WITHOUT MUCH SUCCESS. I JUST WANT TO MAKE ... SURE THEY ARE NOT GENERIC. BECAUSE GENERIC DILANTIN 100 MG CAPS CAN HAVE ANYWHERE FROM 80 TO 120 MG IN...
... The dilantin 100 mg kapseals have been changed by Pzifer to the ... gran mal seizure while taking my therapeutic dose of dilantin and the level was very low for me.
they were the...
... got the same new pills: half white half orange, for dilantin 100mg. We're nervous.
We tried the generic and...
- Topamax Question 21st October 2007
... of hours between last drink and meds.
Be it Teg Dilantin Keppra, or Topa Teg Keppra. Never had problems with...
- Six months and counting.... 18th October 2007
... going slower in reduction amount when tapering off Dilantin to avoid a knee jerk reaction that could have caused...
- Help me to make a choice for myself and my future baby-in regards to seizure meds 15th October 2007
... normal, and I want to get pregnant soon. I am taking Dilantin and plan on getting off this.. but I scared of the...
... Dilantin , long term, has issues. see my other posts on this ... site. Keppra seems much better. Dilantin is a much older drug as well....
