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   mmr autism (Autism board)

31st March 2001
WOW! I am totally amazed after reading all of your posts. First, it makes me very angry that you guys have such a hard time getting your doctors to help you, or at least do the testing/biopsies you want done in your search for finding answers to your children's problems. Secondly, I must say that since I have been reading the posts on this board I am beginning to have some 'light bulb moments' myself. My son is also autistic, but he has a primary diagnosis of Tuberous Sclerosis (tubers/tumors in his brain). I have thought all of his life that his problem was retardation due to the TS. It wasn't until a year ago (he's 8) that I discovered that Autism was present in almost 50% of kids with TS. I had always felt like he was autistic, but like you guys, his doctors just chalked it up as 'developmentally delayed'. The part that has my wheels spinning is...on Oct 7, 1992 my son had a MMR. I don't recall seeing any major change in him, but on Nov 23, 1992 he had his first seizure(due to what we later found out was the TS). He wasn't diagnosed with seizures until Dec 19. At the time he was admitted to the hospital for an EEG he was on an anti-biotic for URI, brochitis, and croup. He was put on Phenobarbitol and Dilantin at the age of 6 months. He was on it for a 1.5 years. He quit cooing, he quit sitting up, he quit rolling over, he quit making eye contact. He was very unhappy and whiney all the time. When he reached the age of two, he was taken off of the Phenobarb and put on Depakote. Within a month his physical delays were almost non-exsistant. He was walking, smiling, laughing. He will be 9 in June and has never developed speech. He displays all of the classic symptoms of Autism. I also read on here that research has shown that Phenobarb is the only anti-convulsant medication that has been proven to cause brain damage :( :( Getting to my point, how do you guys know that your kids have the food allergies and intestinal problems? If I knew how to tell, I would treat my son the same as you guys have treated your kids or are trying to get treatment for them. Keith appears to have no allergies or any type of intestinal problems. Do they manifest themselves in any way other than behavior? He is very healthy, rarely ever sick. He does get very angry and hard to control when he gets hungry sometimes. I don't know whether to believe that his MMR could have had something to do with it and his phenobarb just disguised it by doping him up, or did the phenobarb cause damage to his brain and rob him of his critcial years of development? I have felt the later all along, but now just don't know what to believe. Sorry to run on so long, I am just very curious and interested in learning more about what you guys are talking about. Good Luck to both of you in your quest for help for you precious ones. Take Care!!
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