- lupus /ra/ fibromyalgia 28th December 2007
... aspirin; and some must take stronger blood thinners like Coumadin .
About RF: I understand it's positive in some...
- So is this it? Do I finally have the answer? 25th November 2007
... So, this led me to the hematologist who put me on coumadin until he can test me in April for the reasons why...
- 18 Year Old Female Awaiting Diagnosis 21st July 2007
... heartattack, anyhow, he was put on the blood thinner coumadin . Every month or so he would go have a blood test ... and thus, enabled the Drs. to adjust the level of coumadin he took. Maybe you could ask for your daughter to...
- Family members with Lupus? 21st April 2007
... migraines, anemia, and "sticky blood". She took Coumadin for decades. She lived to almost 89.
My Dad had...
- back on blood thinners feel the difference 7th January 2007
... next part---I hope you did not put yourself back on Coumadin without (1) a doctor's say-so, and (2) a strict schedule...
- So Tired!!! 6th December 2006
... medication. I saw that you said you came off your coumadin ? I was able to do it for 6 weeks before I got more...
- LUPUS and STEM CELL 24th November 2006
... nticoagulation due to repeated blood clots from APS and the coumadin contributes to bleeding. This was the main reason...
- anyone else the only known case in their family?? 4th October 2006
... s syndrome, and "sticky blood" for which she took Coumadin for over 30 years.
My sister (my only sibling...
- Hi I'm new here 9th June 2006
... headaches, "sticky blood", etc. I think she's now on Coumadin as opposed to "baby aspirin". She's had multiple...
- Pain with rainy weather 9th May 2006
... OTC's out. My dad was only allowed Tylenol (took Coumadin , heart meds, etc.). You could ask your dr. to give...
- lupus nephritis and Cellcept 1st May 2006
... to get a biopsy because i have had clots while on coumadin and the risk to take me off was high. they decided...
- Lupus Anticoagulant - Very Confused 1st May 2006
... and I tested positive for it each time. I am now on coumadin which is a bloodthinner. I think that you need to...
- Hello, I am New to Board & Fed Up w/Lupus 29th April 2006
... prednisone, plaquenil, cellcept, monthly cytoxin IVs, coumadin , furosemide,metalazone, 4 heart medications, an antidepress...
- Lupus rash 24th March 2006
... getting things quickly from the freezer. She was on Coumadin for years, had some mini-strokes, etc. I now suspect...
- Does anyone go to a nurtrionist? ? about proper nutrition for lupus sufferers 18th March 2006
... kidney (what a surprise that was to learn). She took Coumadin for years, then was taken OFF for dental work; and...
- Does Lupus Cause Blurred Vision Please Help! 10th March 2006
... My mom had recurrent vision problems. She was on Coumadin for years, but no one ever Dx'ed antiphospholipid...
- Does anyone have muscle pain 17th February 2006
... APLS with a positive lupus anticoagulant so I am on coumadin for that.
Thanks for your thoughts on this. :...
- update anti ro VJ 4th December 2005
... interpret as AntiphospholipidSyndrome & she was on Coumadin for many years. And I had recurrent serious illnesses...
- Neg. ANA QUESTION 22nd November 2005
... sticky post" at the front of this Board. She was on Coumadin for years, due to thick blood; but no dr. ever used...
- Want to treat my husband with Cytoxan 1st November 2005
... positive for the lupus antibody, so he needs lifelong Coumadin . (He had a massive blood clot in his leg and spent...
- Question for Goldenwings 17th July 2005
... quadrant of my lung. It is so uncomfortable. I am on coumadin for my APS. I just feel pretty crappy and this pain...
... said that she thinks I need to be on a higher does of coumadin for my APS -s he thinks my blod should be thinner...
- Update on my antiphospholipid antibody 14th June 2005
... hematologist today. Just like you said - I am now on coumadin . Actually she started me on Lovenox shots for 5 days ... and I will start the Coumadin on Thursday. She was so upset that my primary care ... for the lupus anticoagulant, she wanted me on the coumadin then but my primary care and the neurologist thought ... or my primary care could be the dr. to regulate my coumadin and I opted to go with her. She also got a copy of ... should have told them right there that I needed the coumadin . It is scary to think that you put your trust your...
... she's taken charge of this aspect of your care, the Coumadin , etc. Best wishes to you, from Vee...
... ignore. I'm glad to hear that you'll be starting the coumadin . I hated those lovenox injections, actually I dreaded ... notice how much better you will feel after starting the coumadin . I hope your doctors are all on the same page now...
- Terrified wife...must vent 9th June 2005
... for antiphospholipid syndrome. Did they put him on coumadin yet? Before these doctors make you crazy, ask them ... husband does have APLS as you said, he MUST be put on coumadin immediately.
I'm sorry that I can't address the ... I felt compelled to tell you to speak up about the coumadin . You say he has this disorder and if in fact he does ... medicine is that the symptoms melt away once on the coumadin . You have nothing to lose, please talk to his doctor...
... attacks the organs. This will not thin the blood, the Coumadin does that. From what it sounds like to me, he could ... appears he might benefit from at least trying the Coumadin . I hope you get some answers soon. Wishing him the...
- Update on..."Needs Prayer" thread 28th May 2005
... antiphospholipid antibody sydrome. Treatment would involve coumadin . This disorder could definitely involve cognitive...
- Got test results...need help 24th May 2005
... proactive is a better coarse. I bet they will go with coumadin . I'll keep the board posted. Thanks!!...
- Flax seed oil and Lupus 12th May 2005
... know if there are any drug interactions, such as with coumadin ? Sounds like something I'd be interested in trying...
- Lupus Anticoagulant/RRMS 2nd May 2005
... need to get a specialist. If you're not already on coumadin , you need to be put on it IMMEDIATELY. I can't believe...
... did note that at some point we may need to switch to coumadin . I don't know what he considers to be the point when ... this point who I should talk to about switching to coumadin - the hematologist, the neurologist or my primary...
... they're treating you as safely as possible. Going on coumadin is NOT an option at this point, it's an absolute necessity ... the way, INRs are much more stable on the brand name coumadin , as opposed to the generic warfarin, it also costs...
- Chinese Medicine Herb......... 25th March 2005
... about this aspect, I gotta admit, because she takes Coumadin for chronic phlebitis and has a lung problem as well...
- Pleurisy 19th January 2005
... of the worst things I've ever experienced. I am on coumadin (I have antiphospholipid syndrome), baby aspirin and...
- Does anybody know of this medication? 29th December 2004
... hope it does make it out..i cant get theraputic on coumadin !! and im on 15mg!!
A new alternative to the commonly...
- To Sampy... 23rd December 2004
... Being that you've had a stroke, do they have you on coumadin or another blood thinner? By the way, I started out ... ____________
hi shari,
yes, i am on a whopping 15mg of coumadin at present. they still cant get a theraputic inr on...
- the saga continues . . . 19th December 2004
... Being that you've had a stroke, do they have you on coumadin or another blood thinner? By the way, I started out...
- visit to rheumy today 9th November 2004
... Plaquenil does affect the INR level in people taking coumadin along with it.
Shari...
... particular rheumie at just the right time.
Are you on Coumadin , too? Or aspirin?
Take good care! from Vee...
... Vee,
I'm on coumadin , plaquenil and aspirin, as well as lipitor. How've...
- quick question about hair loss 1st November 2004
... just would like to know if it's from the lupus or the coumadin . I've heard different theories. Does anyone know?...
- Possible lupus?!?! 28th October 2004
... blood clot in each lung). Since that time I am taking Coumadin and the doctor has done a series of blood tests. Some...
- Lupus or not? 12th October 2004
... Celebrex, Vioxx, Bextra) becasue they interfered with my Coumadin level, so I thought I had to live with the pain. I...
- quick question about Plaquenil 4th October 2004
... lol. I can't take the Bextra because it shoots my coumadin level into unsafe ranges, but that stuff worked great...
- Finally a diagnosis 16th September 2004
... aspirin (Angelbrat....they still don't want me to go on coumadin !), synthroid and Provocal. I should feel relieved...
- Having a sad day 8th September 2004
... RA as well. The symptoms are very similar. I am on coumadin and aspirin. I had to stop the Bextra (although it ... helped me alot) because it was messing up my coumadin level. I don't know what to do for the joint pain...
- i would like to give you an update on experimental drug 8th September 2004
... taking the prednisone, 10mg,plaquenil, celebrex, and coumadin , but all in all, the experience hasnt been a bad one...
- Calling all APS experts & lupies 10th August 2004
... when its been thinned out? I'm not on warfarin or coumadin nor have I been.
I know that this sounds crazy...
- When do I need medical attention??? 2nd July 2004
... ridiculous?
Patience,
Because I take aspirin and Coumadin (for antiphospholipid syndrome). I've already had...
- APS, will blood thinners affect lab results? 1st July 2004
... antibodies.
I know this, because I take 13mg of coumadin , and everytime they test those clotting factors (there...
... dont know what the normal range is. If you are on coumadin for a previous stroke (me) Inr needs to be betweeen ... issue entirely. I hope I helped. Being on 13mg of coumadin can sometimes come in handy!!
Love,
Ali...
... Thanks for the input. I see you are on Coumadin . They are trying to decide whether to switch me from ... the Aggrenox to the Coumadin . I don't want to have another TIA. I'm trying to...
... on another thread.
I had a stroke at 26 (30now) Coumadin is what keeps another clot from happening. It is a ... Supposedly there is a drug in front of the FDA to replace coumadin ..we will see..doc says as soon as its approved he ... .
Good luck. I think if you already had a TIA, coumadin would be the best route. Are you at least on asprin...
... I have found the whole coumadin experience to be a nightmare. Especially when mixed ... my inr, so that is why I am on such a high dose of coumadin . Supposedly, there is a drug in front of the Fda to...
- question for those on lupus meds 30th May 2004
... you. I would LOVE to take it, but I can't. I'm on Coumadin and baby aspirin, as I have antiphospholipid antibody...
- Unlike many of you... 4th May 2004
... the way, I can't take aspirin-based meds, as I'm on Coumadin . I have antiphospholipid antibody syndrome and have...
... is aspirin-based. I am already on blood thinners ( coumadin and aspirin) for the APLS and cannot be on any of...
... Hi. I know people on Coumadin who also have arthritis. They are allowed to take...
- Blood question (APS & Factor V?) 19th April 2004
... already had open heart surgery. You need to be on Coumadin (Warfarin). The APS will most definitely cause the ... losing such common everyday words such as "car". The Coumadin will surely help with that. The joint and muscle pain...
- confused on aps diagnosis 14th April 2004
... developed leukemia & died at age 38. dont want to go on coumadin unless i have too ..any info on all this is appreicated...
... the blood thinners. I KNOW that if you go on the coumadin that you will feel 100% better than you do right now ... same way. Once your INR gets within range with the coumadin , you will notice a HUGE difference in your migraines ... attacks and other clotting events! I recommend the coumadin HIGHLY to you right now, becuase if you don't then ... Please take care and I hope that you decide on the coumadin . :)
~Luv, Angelic...
... positive ana?or all of it combined?the doc wants to start coumadin for the headaches & if it doesn't help them he said...
... clotting incident happens. That's when they introduce coumadin to the daily regimine. Has your dr. had you on baby ... the baby aspirin didn't help my headaches, but the coumadin certainly did (when my INR was kept at 3.0 or higher...
... did not help headaches.that is why he wants to try coumadin .did you have clot before you started coumadin or did...
... elevate with hughes syndrome?my doctor wants to start coumadin for headaches butwhy would he stop treatment if it...
... wait for an episode before starting a patient on coumadin . I don't understand why they wait for a problem first ... . Had I been put on Coumadin first, I may not have had to have open-heart surgery ... the size of a baseball) and THEN I was started on Coumadin . Not everyone who has lupus, has APS. I happen to ... my body is still making small clots, despite the Coumadin . I've already had 2 TIA's (small strokes) since being ... on Coumadin . One clot hit my eye, the other temporarily paralyzed ... entire right side. So my feeling is, I'd take the coumadin for the headaches and possible prevention of clots...
... on aspirin and it hasn't helped, the next step is Coumadin . Often doctors will jump on the Coumadin if your ... doctor wants to prevent a clot!! I would go with the coumadin :) The ANA is for Lupus- and I think I meantioned...
... that was positive.did you mean you would jump on the coumadin if igg & igm were high or if the anticardiolipin ...
... lupus anticoagulant because i didn't want to go on coumadin until i had more blood work 8 weeks after last positive...
... advise you further.
I would suspect that you need coumadin because 1) You have a lesion 2) you have BOTH the ... symptoms of APS Because of all of that, you NEED Coumadin !!
APS can mimik MS to a T! Many patients are diagnosed...
... Have you spoken to your doctor about getting on Coumadin ? I really hope that you do that.. you don't want...
- Is platelet count high in APS? 12th April 2004
... feel lousy? I know Angelic says if you have APS the Coumadin makes you feel so much better...is the blood 'sticking...
- Anticardiolipin Antibody/Phospholipid Syndrome 3rd April 2004
... injections- I developed 3 clots in my left leg. I was on coumadin for 6 months, but then it was discontinued.
The last...
- Frustrated about lack of diagnosis 31st March 2004
... leg and anticoagulated with IV heparin and then oral coumadin . Then I had an elective surgery 16 months ago and...
... Hello,
Are you still on the Coumadin ??? I really hope so!!!! The anticardiolipin test ... about that, if the test was done when you were on Coumadin then it could be masked. Are you still on the Plaquenil ... Lupus blood work too!
DO NOT LET THEM STOP THE COUMADIN , WHATEVER YOU DO!!!!!!!!!!!!! If they stop it, you ... with medication.
My suggestion is DONT stop that Coumadin !!! This Rheumy sounds very much like a dud. I think ... drugs! So, to summarize for you:
1) DO NOT stop the coumadin , especially because your Rheumy sounds like an idiot ... Make sure that your GP knows that if you stop that coumadin , you will be in HUGE BIG trouble.
3) Remind the...
- "Moderately" positive? 19th March 2004
... ordering a few more blood tests to be sure. I asked about Coumadin and she said that she thought my DVT and stroke were...
... already had one stroke, what is your dr. waiting for???? Coumadin (Warfarin) or Heparin, along with aspirin is the regimine ... diagnosed if you have not had a clotting incident. Coumadin or Heparin is always added, once you've had a clot...
... medication for 25 years. Ironically, once I went onto coumadin , the seizures had stopped and I was able to discontinue...
... be strong, and insist that my Doctor's start me on Coumadin . Thank you for your support and advice. I really appreciate...
... ill feeling) has definitely improved since taking coumadin . I know of a terrific board for APS that is extremely...
... like crazy!!! You need to be anticoagulated (with Coumadin ) in order to prevent clots, the cholesterol lowering...
... when I had the DVT. She said I don't need to be on Coumadin now, since I'm already on aspirin and no longer smoke ... medical leave. I plan to be aggressive about the whole coumadin thing.
I hope you feel better. After I see my...
... fact is that you will feel SO MUCH better with the Coumadin !!! And it will prevent other clotting events too...
... back on Monday) to decide whether or not to put me on Coumadin . I told the Sub Doc that I am terrified that I will...
- Nuerological Problems, PLEASE READ!!! 2nd March 2004
... for APS is by thinning the blood out with Warfarin ( Coumadin ). Some doctors will start an APS patient out with ... name of it) for two weeks and then switch them onto Coumadin . I know that with me, 2 days on the Heparin injections ... too! It was DRAMATIC! So if you do have APS then Coumadin is the best line of treatment (with Heparin to start...
- unlike many of you... (long) 17th December 2003
... since refused any and all medications, except for the coumadin (already had open heart surgery this year for blood...
- Ch50 8th December 2003
... strongest thing I take is Tylenol, aside from the Coumadin (don't have a choice there). I was surprised my rheumy...
- Neurological Symptoms and possible Lupus? Please Read!!! 7th December 2003
... antiphospholipid syndrome, are they just treating you with coumadin or anti-seizure medication? I'm just curious if my...
... requiring open-heart surgery. Why don't they have you on coumadin as well? I hope your seizures are under control now...
... clots.) The Doc's are deciding whether I should be on Coumadin as well, but hesitate because of the seizures. I am...
... Hi Kathy!
I would go for the Coumadin ! In some people with APS, the seizure disorder will ... disappear with the coumadin . Not ALL people are like that, only some! But it ... but within two days of being on the anticoagulants ( Coumadin ) I was a NEW person! I used to have wicked headaches...
... lupus and epilepsy (grand mal seizures). I am taking Coumadin with no problems at all. Amazing how much better I...
... just a bloodtest. If you have it, they'd put you on Coumadin . Aspirin alone isn't enough to stop the clots. Please...
... I think it's wierd that they are waiting for the Coumadin too, since I had the stroke while on an aspirin a...
... OOOPS! I forgot to ask, can they start you on coumadin without first starting Heparin? When I had the DVT ... Heparin before my blood levels were ready to introduce Coumadin . What a drag THAT was!!!! Kathy...
- Reynauds 4th December 2003
... thinners as well as blood pressure medication. I know the coumadin could account for the coldness, but could I turn blue...
- Hi, it's been a while since I've been here 24th November 2003
... have the "Sticky Blood". I'm not wanting to take the Coumadin .. at least I hope I won't have to.. so far I'm taking...
... that it wasn't eliminating my symptoms. With the coumadin , I have clarity and clear thinking. My headaches ... have to tell you that having the "security" of the Coumadin is amazing. I no longer fear what could happen next...
... Thanks Angelic,
I'll check out the Coumadin a bit... than the next time I talk to my Rheumy, I...
- Memory Loss, Anemia, and Low WBC 19th November 2003
... phosholipid antibody syndrome. You need to get on warfarin ( coumadin ) and you'll see how fast those memory problems straighten...
