16th September 2004
Liz,
when I read your post it reminded me so much of what we went through with my son. He was only 4 when he was diagnosed with ADHD and they put him on Ritalin. He lost so much weight, he went from the 95th percentile to the 10th. The family doctor sent us to a Psychiatrist. He also diagnosed him with OCD and Asperger Syndrome. We tried many drugs. Derik also never slept. He would sleep about 2 hours then be up for 8 hours, then sleep 2 hours... This was very tiring on me. I never knew when he would be up in the middle of the night climbing on top of the washer, etc. Then he was put on Adderall and Clonidine, this worked for him. He now takes Adderall only in the morning and a small dose of Clonidine in the morning with it and then a larger dose at bed. Derik would also battle with depression and when that happened, he was given Remeron, it always seemed to work. He is now 12 and doing great. He still takes Adderall and Clonidine. I don't know what meds you are on but these worked great for him. I do know from experience that what works for one may not work for another, but I thought it may help. Also, it sounds like you really need someone to stand along side of you to help you fight this battle. If you don't have someone, find someone, a friend or relative who could go to appointments with you so maybe you wouldn't get "blown off". Good luck.
Kathy
when I read your post it reminded me so much of what we went through with my son. He was only 4 when he was diagnosed with ADHD and they put him on Ritalin. He lost so much weight, he went from the 95th percentile to the 10th. The family doctor sent us to a Psychiatrist. He also diagnosed him with OCD and Asperger Syndrome. We tried many drugs. Derik also never slept. He would sleep about 2 hours then be up for 8 hours, then sleep 2 hours... This was very tiring on me. I never knew when he would be up in the middle of the night climbing on top of the washer, etc. Then he was put on Adderall and Clonidine, this worked for him. He now takes Adderall only in the morning and a small dose of Clonidine in the morning with it and then a larger dose at bed. Derik would also battle with depression and when that happened, he was given Remeron, it always seemed to work. He is now 12 and doing great. He still takes Adderall and Clonidine. I don't know what meds you are on but these worked great for him. I do know from experience that what works for one may not work for another, but I thought it may help. Also, it sounds like you really need someone to stand along side of you to help you fight this battle. If you don't have someone, find someone, a friend or relative who could go to appointments with you so maybe you wouldn't get "blown off". Good luck.
Kathy