22nd June 2004
I have been seen 8 times in emergency rooms in the past 2 years, due to outrageously high blood pressure that still is not under control. Each doctor I see--be it ER, PCM, or those DR's they have referred me to all seem to 'pass the buck'. I have seen different ER doctor's, 3 PCM's, physical therapist, chiropractors, cardiologists, urologists, etc.---all dismissed the calcium levels, cat scans, and mri's--no one put the test results all together for a diagnosis. I have been very unhappy with the local care I have access to--I finally could not waste any more of my life and went to Mayo clinic in Florida last month. The local doctors have known my symptoms these past 2 years-- the bone scans showed decreasing bone density--my hip is damaged now and strangely keeps popping out of joint, I have kidney problems resulting in almost chronic kidney infections. I am on Cipro almost continuously, and have pain in my kidneys, abdominal pain, and back/joint pain. I had lost all faith in the medical profession and was truly amazed that my doctors seemed to discount them. For the blood pressure problems they prescribed hydrochlorizide (diuretic--huge mistake). Mayo Clinic caught the problem right away, as did an urgent care center I just recently went to for emergency blood pressure problems. My primary care physician has told me such things as 'think happy thoughts' and 'envision beaches' (?) this whole time. The PCM did not feel any of these problems that have plagued me for 2 years was severe enough to impair my life. I only got referrals to specialist after making numerous appts and being a pain in the PCm's butt--I am barely functioning.--Unfortunately, I need the PCM's referral to get anywhere, so I kept on plugging along with them. My PCM has not returned my calls or responded to the faxes from Mayo, and so I have elected to return to Mayo clinic because I cannot get any help here. I want to get surgery scheduled as soon as possible so I can get back to my life, but can't get in to talk to an endocrinologist until July. Thank you so much for your post. Any info is so welcomed.
