5th May 2007
[QUOTE=bubbalyme;2965024]I was wondering if anyone has ever been treated or gotten their life back after being on only oral anti-biotics. I was wondering. I am on my six months of widespread lyme disease in my system. I am one of the lucky ones that has tested positive both ELISA and Western blot. Thankful for that.
But I am so tired and I am only new at this. Somedays I feel as if I am so dizzy, I am wondering if it is the ammonia. Other days my heart decides to do a jig all the while suffering a million other things in my body. I was seriously considering many strange thoughts this week.
But I wonder if anyone has ever been treated without IV with a six month history and been successful. I have lost all of my vitamin D in my body or am really low by the last blood test. Losing a tonne of other vitamins. Having trouble absorbing wondering if there are problems in my gut that are hurting treatment.
Dr. Pittman wants to treat the GI so better absorption will be acheived. I pray to God this will work.
I feel for everyone who has come into contact with this nightmare illness.:blob_fire
YES, I've been only treated with orals, despite having disseminated disease for 2.5 years, with major symptoms and multiple relapses. My LLMD said he tries to reserve IVs for those with mostly neurological symptoms, which mine were "mild", despite significant brain fog and memory issues...
My doc put me on Vit-D3 supplements (initially 2000IU, raised to 4000IU recently), along with 6g fish oil, Tindamax, Cefzil, and Benicar. It's been working out WELL so far, albiet slower than I like. In treatment with this regimen since late December '06. I'm at about 98% of normal, with some persistent minor symptoms. My CD-57 is rising, though it's not yet where we want it to be (that'll take some months).
My doc says that the low Vit-D test results are because I have so much inflammation in my body; the Lyme spirochetes apparently go into cyst form and create inflammation around themselves as protection from the antibiotics. You have to keep the Vit-D levels up, and the Benicar regimen seems to help with both reducing the inflammation and helps keep the die-off reactions down.
But I am so tired and I am only new at this. Somedays I feel as if I am so dizzy, I am wondering if it is the ammonia. Other days my heart decides to do a jig all the while suffering a million other things in my body. I was seriously considering many strange thoughts this week.
But I wonder if anyone has ever been treated without IV with a six month history and been successful. I have lost all of my vitamin D in my body or am really low by the last blood test. Losing a tonne of other vitamins. Having trouble absorbing wondering if there are problems in my gut that are hurting treatment.
Dr. Pittman wants to treat the GI so better absorption will be acheived. I pray to God this will work.
I feel for everyone who has come into contact with this nightmare illness.:blob_fire
YES, I've been only treated with orals, despite having disseminated disease for 2.5 years, with major symptoms and multiple relapses. My LLMD said he tries to reserve IVs for those with mostly neurological symptoms, which mine were "mild", despite significant brain fog and memory issues...
My doc put me on Vit-D3 supplements (initially 2000IU, raised to 4000IU recently), along with 6g fish oil, Tindamax, Cefzil, and Benicar. It's been working out WELL so far, albiet slower than I like. In treatment with this regimen since late December '06. I'm at about 98% of normal, with some persistent minor symptoms. My CD-57 is rising, though it's not yet where we want it to be (that'll take some months).
My doc says that the low Vit-D test results are because I have so much inflammation in my body; the Lyme spirochetes apparently go into cyst form and create inflammation around themselves as protection from the antibiotics. You have to keep the Vit-D levels up, and the Benicar regimen seems to help with both reducing the inflammation and helps keep the die-off reactions down.