12th September 2003
Chacha,
Yeh she had an allergy to Ceftin and the Lorabid is in the same family. But thank gosh she is not allergic to it. She started it on Monday and now she has her cough back. It is this god awful wet bubbly cough. So I am not sure who to call the ENT or the Ped. She also has been so dang crabby and had low grade fever tuesday night. UGH! I am comfortable with the ENT that we are seeing. She works out of Joe Diamggio's Children's Hospital which is a very good hospital down here. She said it seems Emily can't fight anything on her own, so she asked if we ever had her tested for an immune defiency. I told her no and she said she would like to but feels she would not get the proper results due to her age. We go back to see her on the 23rd. I am not sure if she is the one I should ask to test Emily for CF or if I should go to her ped. But too many things lead me to think of that, even though my boyfriend and I do not have it. Like the chronic diarrhea, at 6 weeks they determined that she could not asorb the fat from her formula, she has always battled the weight gain problem and she eats like an adult. She had GERD, which I read can be associated with CF and she had Esophagitis at 4 months. So yeh we will figure it out, but I am so impatient now, it as been so long of her being sick. I understand that there are processes but man oh man so hard to grasp that when it is your child.
I will keep you updated though.
ANd thank you for all your support, help and advice.
Yeh she had an allergy to Ceftin and the Lorabid is in the same family. But thank gosh she is not allergic to it. She started it on Monday and now she has her cough back. It is this god awful wet bubbly cough. So I am not sure who to call the ENT or the Ped. She also has been so dang crabby and had low grade fever tuesday night. UGH! I am comfortable with the ENT that we are seeing. She works out of Joe Diamggio's Children's Hospital which is a very good hospital down here. She said it seems Emily can't fight anything on her own, so she asked if we ever had her tested for an immune defiency. I told her no and she said she would like to but feels she would not get the proper results due to her age. We go back to see her on the 23rd. I am not sure if she is the one I should ask to test Emily for CF or if I should go to her ped. But too many things lead me to think of that, even though my boyfriend and I do not have it. Like the chronic diarrhea, at 6 weeks they determined that she could not asorb the fat from her formula, she has always battled the weight gain problem and she eats like an adult. She had GERD, which I read can be associated with CF and she had Esophagitis at 4 months. So yeh we will figure it out, but I am so impatient now, it as been so long of her being sick. I understand that there are processes but man oh man so hard to grasp that when it is your child.
I will keep you updated though.
ANd thank you for all your support, help and advice.