5th June 2005
tip,
Everything is fine. You have been a good honest and helpful person. The bad part about writing is people are with no sound or sight of others reactions. Without that sometimes misunderstandings happen. Thank you for your concern and support as well.
You know it is weird that I have had some of your symptoms as well. Some I don’t. I only have two allergies to things that I know of for sure and when tested for them I tested negative??? I never have been on anti-histamines until this disease was diagnosed. I asked why take the drugs if I have no positive allergies or serious seen damage to the organs yet? They said as a preventative in case or when it does. I am on nothing you mention. Famotidine (Pepcid) twice a day for stomach and intestines.
Allegra once a day for general.
Benadryl every other day just before I inject chemo.
Inteferon self injections every other day to try to reduce mast cells or keep at bay from spreading.
Areidia I.V. 3 ½ hour bag every 10 to 12 weeks to aggressively build new bone mass.
Assortment of many vitamins and minerals.
Benicar This is my newest one to counter all the new high blood pressure readings from all these other meds.
You do not want to know the cost of all this stuff.
Another thing I though strange is that my sister is waiting to see some specialists because she has been having a lot of strange unexplained problems as I did. Anyway she mentions that I have Masto. The Rheumy asks isn’t that a skin thing? She says no and explains what little she kind of knows about me and now he wants her to wait and see this new guy who will see her but he’s booked. Anyway she had some dizzy headaches and nausea and things a couple weeks ago. Then they run her in for an MRI and find she has Meniere’s disease. They explain something about a series of 4 shots and if they don’t work she would need surgery. Well she just had shot 3 and all looks good. When asking the doc about a cause for Meniere’s he said there are some studies that lead them to believe there is a possible auto-immunes cause for it. Strange Hu???
Anyway Tip, I was also unaware of rules about real first names because people have been leaving them for me anyway. That’s no big deal to me one way or another. I am just glad to find help and support or give it if I can to those in need. I appreciate your time. Good luck to you and your family.
Sincerely
John
Everything is fine. You have been a good honest and helpful person. The bad part about writing is people are with no sound or sight of others reactions. Without that sometimes misunderstandings happen. Thank you for your concern and support as well.
You know it is weird that I have had some of your symptoms as well. Some I don’t. I only have two allergies to things that I know of for sure and when tested for them I tested negative??? I never have been on anti-histamines until this disease was diagnosed. I asked why take the drugs if I have no positive allergies or serious seen damage to the organs yet? They said as a preventative in case or when it does. I am on nothing you mention. Famotidine (Pepcid) twice a day for stomach and intestines.
Allegra once a day for general.
Benadryl every other day just before I inject chemo.
Inteferon self injections every other day to try to reduce mast cells or keep at bay from spreading.
Areidia I.V. 3 ½ hour bag every 10 to 12 weeks to aggressively build new bone mass.
Assortment of many vitamins and minerals.
Benicar This is my newest one to counter all the new high blood pressure readings from all these other meds.
You do not want to know the cost of all this stuff.
Another thing I though strange is that my sister is waiting to see some specialists because she has been having a lot of strange unexplained problems as I did. Anyway she mentions that I have Masto. The Rheumy asks isn’t that a skin thing? She says no and explains what little she kind of knows about me and now he wants her to wait and see this new guy who will see her but he’s booked. Anyway she had some dizzy headaches and nausea and things a couple weeks ago. Then they run her in for an MRI and find she has Meniere’s disease. They explain something about a series of 4 shots and if they don’t work she would need surgery. Well she just had shot 3 and all looks good. When asking the doc about a cause for Meniere’s he said there are some studies that lead them to believe there is a possible auto-immunes cause for it. Strange Hu???
Anyway Tip, I was also unaware of rules about real first names because people have been leaving them for me anyway. That’s no big deal to me one way or another. I am just glad to find help and support or give it if I can to those in need. I appreciate your time. Good luck to you and your family.
Sincerely
John