23rd September 2004
I am surprised that your doctor would diagnose you with RLS and then pescribe Benadryl. My specialist told me Benadryl is a no-no. I had tried it on my own, in both over the counter "Benadryl" and Tylenol PM which has 25-50mg of benadryl, which is the sleep agent. They both made me climb the walls for the entire night. Benadryl literally makes me feel like my legs are going to get up and walk away without me. :bouncing:
I was tried on Neurontin and Pergolide, and several other meds and none worked for me. (Except for Neurontin, which only worked for a few months at the highest dose.) She exhausted all non narcotic medications before she put me on Percocet 10mg and Flexeril 10mg. It took me a few weeks to get used to it, without feeling like I was going to drop on the floor and sleep for a month, but the relief was immediate. (I have severe RLS 24 hours a day at the ripe old age of 38, along with Lupus, and RA). Although I hate being on an opiate, and knowing I will have to stay on it unless something new comes out that works, I have been symptom free for months now. I would suggest you see a doctor that specializes in RLS. They will run the appropriate tests to make sure it is not iron def., or endocrine caused, and will try you on all the meds until they find a regimine that works. I delt with general practice and family practice docs for years until the specialist was suggested, who finally diagnosed me with all the above. :rolleyes:
Good luck, and I hope you can find something that works for you. This disease is pure agony, and no one can truly understand and sympathize with what you are feeling until they have suffered through it.