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   Meghan...... (Fibromyalgia board)

9th November 2006
:wave: [COLOR="SeaGreen"]Well Hi Stranger! Nice to see you are back on board!!

Say the same thing happened to me...I went and my dumb EBV..CMV were all flared up...I knew something was up....Doctor Powell put me on the same as you ...and I can breathe today...and I went for a nice long walk yesterday....head is clearing up with that croggie feeling...YEAH!! Dumb virus's. and also started the Ursodal...not having any problem with it...and m/w/f taking azithromycin...(zith)....

I know two other's that are seeing Doctor Powell....they will get their results of their blood test this month....I am excited to see what they have and how they do on the protocol....they both say like I felt and times now still do...Wow this is overwhelming...all the info and supplements ....hahaha...BUT I feel soooooo lucky that I found him....so so lucky...

I most likely talked to you about these goose eggs I have on my head...back in 1999 when I first was starting treatment for lyme....these things would swell up on my head in different areas then go down...Full moon and my period...last a few weeks then go down...and back then they would literally do something to my thinking ...CRAZY....Then went with them all those years they put it in my record that I was not mentally unbalanced that my problem stemed from my disease....well when I did Doctor Powell's protocoll the last time for a year...oh my gosh....THEY MOVED TO THE BACK OF MY SOFT SPOT and now are still sitting there...this last time I got to talk to Dr. P. and he agreed they have to be either virus (s). bacteria (s) or microbacterium (s)....either one or a combination or all 3....it is in the tissue...beings I had a doctor couple years back put a needle in there and nothing came out...I AM JUST SOOOOOO THRILLED THAT HE AGREES AND SAID YES THAT IS MOST LIKELY WHAT IT IS...doesn't make the aggrevation of having them any better...but now I have someone to work with me on it...:)

The way I feel about this whole protocol is yes I truly feel these research doctors know what they are doing...more than anyone I have EVER gone to...and I have been going here and there and even mayo always got slammed....they are just complicated bacterias to kill...like the lyme bacteria...so it takes years...no quick fix...but I feel the source of all the pain and crap are being whittled away...

Meme just stick to it...as best as you can....he is an awesome doctor....
Let him know when something isn't agreeng with you....like with herx's...just either wait them out a few days...or cut back and try again....

So glad to see you back on here...and I am really happy to hear you found some relief with your neck....when I was real sick I was wearing a neck brace and the possiblity of surgery....to fuse vertrabes together...well glad it never went that far...now killing off bacterias...MY NECK NEVER HURTS ME ANYMORE....:)

Keep in touch okay...happy to see a fellow vanderbilt follower on here...haha...

Hugs to you.....
Jodie
:D
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