23rd October 2007
was diagnosed about a year ago with the skin problems. Have recently developed muscle problems too. Being in the UK I guess treatment is slightly different. Have been on prednisolone twice and azathioprine once. Have also tried plaquenil .Have had various side effects from all the treatments, I am currently taking no medication at all and I am waiting to see the neurologist again . Find that I am very tired all the time and that I suffer from depression quite a lot . My muscle enzime tests keep coming back ok - I feel that my dermatologist is not taking my symptoms seriously but the more I read the more I discover that the tests are not always conclusive. Find my family is very supportive but I feel a lot of guilt for being such a burden to them .
