was diagnosed with dermatomyositis about a year ago. Just started having muscle problems - waiting to go on azathioprine for the second time . See my specialist every 4 weeks but don't seem any closer to a suitable treatment.

HI...hopefully you are still reading this post. My cocktail that worked was/is 150mg. of azathioprine (Imuran) and 3 shots of ENBREL (25mgs.ea.) a week. My Ck level is down in the 200's last bloodwork..which is lower than ever; usually its been in the 1000..or higher. really seems like you've had some terrible docs. I hope you find the right one soon. Take care...
Prednisone is literally the drug from hell...not something that should be taken long term...it literally makes you crazy. never go cold turkey tho. ween off of it.