7th July 2006
Good evening. I'm searching for information concerning Remicaid and its use with Crohns disease. My 10 year old daughter was diagnosed with Crohns Disease, Ulcerative Colitis and Duodenum (sp?) disease a year ago next month. Last February she developed an anal fistula and had a fistulotomy in April. Although the fistula was basically a surface one it is very slow to heal. The surgeon (who also works for Childrens Hospital of the Kings Daughter) wanted us to lower her Azathioprine dosage to allow for the fistula site to heal quicker. However her GI doctor is afraid that this will allow the Crohns to flare up again (she's not had any problems in a long while now from the Crohns itself) and wants to start her on Remicaid. He suggested I do a search on it as he knows that I am skeptical about it. I've heard that once started if stopped it may not be started again if the body has developed antibodies against it. Plus it is also extremely expensive and I do not wish my daughter to have to worry about, what $8000 every 2 months or whatever it is once she grows up and leaves the house if she can't get insured due to the pre-existing condition. Any thoughts or suggestions?? Thank you!
