Well i had a follow up appointment today with my consultant and it didnt go too well.

Im staying on the pentasa and steroids but he has now put me on azathioprine. Which im not happy about, but this is my only chance to see if they work before surgery. Also he is keeping me off all food for tow weeks and has put me on fortisip instead. He wants to rest my bowel.

They are keeping a close eye on me with me being on the azathioprine, having regular blood tests done. Got to go for a blood test next week and see the specailist nurse.

Im quite scared of the moment, scared of going on these tablets.


I was hoping for better news

Hi Sharon

Day by Day...

Hopefully the azathioprine will do the trick. Did he say how long he was going to let you try this regime before offering surgery as the next step??

Fortisip is supposed to be used in conjunction with food... not as a replacement (to my limited knowledge)... did he offer any other supplements to ensure you don't develop any deficiencies? or just to keep levels up?

I can only imagine how scared you must be. But it seems you are in good hands. Did he explain to you how quickly they will be able to detect any damages caused by the azathioprine? From what I have read, with regular screening you will be fine, they will be able to detect and alter the dose before any harm is done.

Is surgery becoming more of an option for you now?? I am assuming then that the stricture has still not responded.

Take each day, and it's symptoms, as they come. I'm sure you are going to be fine. :)

Sending out comforting hugs :)

Angela