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   Diag 3 weeks ago - crippling fatigue is scaring me (Multiple Sclerosis board)

19th March 2008
[QUOTE=traci0211;3493725]Thank you so much for the quick reply. I have not had a study done. I will definitely look into this.

In you response you have never used "DMDs" - not sure what that means?

Do your exacerbations include this MS type fatigue?

DMDs = Disease Modifying Drugs = Betaseron, Avonex, Rebif, Copaxone, Tysabri.

I can have pretty bad fatigue with an exacerbation but not to the extent your describing.

However, your description of your fatigue and the fact the meds are not helping makes me wonder about a sleep disorder.

The reason: I went about 2 years with the kind of fatigue you seem to be having. The fatigue became a quality of life issue (I had no life, all I did was sleep) when I finally mentioned it to my PCP. He immediately schedualed a sleep study - I have sleep apnea and use a CPAP machine.

I have since found the sleep apnea was causing cognitive problems and other problems I just blamed on the MS.
19th March 2008
[QUOTE=Snoopy61;3493775]DMDs = Disease Modifying Drugs = Betaseron, Avonex, Rebif, Copaxone, Tysabri.

I can have pretty bad fatigue with an exacerbation but not to the extent your describing.

However, your description of your fatigue and the fact the meds are not helping makes me wonder about a sleep disorder.

The reason: I went about 2 years with the kind of fatigue you seem to be having. The fatigue became a quality of life issue (I had no life, all I did was sleep) when I finally mentioned it to my PCP. He immediately schedualed a sleep study - I have sleep apnea and use a CPAP machine.

I have since found the sleep apnea was causing cognitive problems and other problems I just blamed on the MS.
 
 

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