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   One of those Days (Multiple Sclerosis board)

9th February 2008
I'm having a lousy day and I just need to vent! Last nite I had my 13th injection of Avonex, and I'm still getting sick. My MS symptoms have worsened the past few days. My nurse said I'm probably having a relapse and recommended another round of solu-medrol, but I said no. Steroids turn me into someone I don't like, and I can't miss work anyway. I told her that I'll do that again when my symptoms are unbearable.

So this morning, this long-awaited weekend, I woke up with the side effects from the shot and these symptoms, the most bothersome one being the bad tremors. I keep waiting for that day when I wake up after an injection night and not be sick! I just had trouble doing things today, and I feel guilty and lazy. I used to be so productive on the week ends!

I did call my husband at work and asked him if he'd do the grocery shopping tomorrow, and clean up a little. He said yes, and was very sympathetic, which is unusual--but I'm not complaining. I just hate asking him for help. I told him that I'm not recovered from this week, and I need to rest up for the next, and he actually understood. He's going out tonight, which I encouraged him to do. I just don't feel like being around people today. My MS is usually invisible, but not today, and all week I got odd looks from others, because my tremors are so bad.

I can usually keep my spirits up when I'm feeling bad, but I just can't today. Everything has been so hard. My mother called this morning asking if I could run some errands for her, because she was tired from only getting three hours of sleep. Give me a break. I said no, I had to. I could barely move, let alone go out driving and shopping! I told her I was having a bad day, and reminded her that last nite was shot nite. She told me I use my injection side effects as an excuse to "get out" of things, and I can't say on this post how angry that made me. I have been on my knees praying to God to make the side effects go away ever since I started. I don't have the luxury of making excuses.

I know all of this sounds pathetic, but I had to write and vent. I'm sick and tired of being sick and tired, and I feel discouraged. The future seems bleak because I am 28 and I have decades of this kind of day to look forward to. I don't know where all my optimism went!

Thanks for listening.
10th February 2008
[QUOTE=april1848;3434297]I'm having a lousy day and I just need to vent! Last nite I had my 13th injection of Avonex, and I'm still getting sick. My MS symptoms have worsened the past few days. My nurse said I'm probably having a relapse and recommended another round of solu-medrol, but I said no. Steroids turn me into someone I don't like, and I can't miss work anyway. I told her that I'll do that again when my symptoms are unbearable.

So this morning, this long-awaited weekend, I woke up with the side effects from the shot and these symptoms, the most bothersome one being the bad tremors. I keep waiting for that day when I wake up after an injection night and not be sick! I just had trouble doing things today, and I feel guilty and lazy. I used to be so productive on the week ends!

I did call my husband at work and asked him if he'd do the grocery shopping tomorrow, and clean up a little. He said yes, and was very sympathetic, which is unusual--but I'm not complaining. I just hate asking him for help. I told him that I'm not recovered from this week, and I need to rest up for the next, and he actually understood. He's going out tonight, which I encouraged him to do. I just don't feel like being around people today. My MS is usually invisible, but not today, and all week I got odd looks from others, because my tremors are so bad.

I can usually keep my spirits up when I'm feeling bad, but I just can't today. Everything has been so hard. My mother called this morning asking if I could run some errands for her, because she was tired from only getting three hours of sleep. Give me a break. I said no, I had to. I could barely move, let alone go out driving and shopping! I told her I was having a bad day, and reminded her that last nite was shot nite. She told me I use my injection side effects as an excuse to "get out" of things, and I can't say on this post how angry that made me. I have been on my knees praying to God to make the side effects go away ever since I started. I don't have the luxury of making excuses.

I know all of this sounds pathetic, but I had to write and vent. I'm sick and tired of being sick and tired, and I feel discouraged. The future seems bleak because I am 28 and I have decades of this kind of day to look forward to. I don't know where all my optimism went!

Thanks for listening.
I was diagnosed Fall 06, and someone told me that there would come a time that I would actually go days that I didn't think about Multiple Sclerosis. I thought for sure this woman was crazy, and even though I am in a major relapse now, she was right. It takes a long time to deal with your diagnosis and the shots. I think everyone deals with this in their own way. It has been hard. Hang in there!
 
 

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