I've had MS since 1990 and it has slowly gotten worse. I was first on Avonex, then moved to Rebif. After having some minor thyroid issues (and still getting worse...slowly) I took myself off Rebif. Also because it was never tested on Secondary Progressive MS, only Relapsing Remitting MS. What are people who have Secondary Progressive MS using successfully?
Thanks,
T

HI Luv2Dance.
Are you positive you have SPMS?? And how long were you on Rebif and Avonex for? The reason I ask is that my first 5 months on Rebif, I had 2 major relapses and could have SWORN that it wasnt working. I was positive my MS was progressing and that the docs were going to find numerous NEW lesions on my 6 month MRI.
Turned out, nothing new showed and once I hit the 6 month mark on Rebif, I stopped feeling like I was progressing and started feeling more like myself. Now, after 14 months on Rebif, I feel 95% okay most of the time..my only symtoms are the original ones which led me to my dx and never actually went away (mainly tingling, burning parastastia in my left hand and fingers).

Its not likely that they will put you on any drugs if they have dx you with SPMS.....however, it is still very possible that you just arent cut out for interferons, which Avonex and Rebif are and might be a candidate for Tysabri..
Why did you wean yourself off Rebif? Its not a drug you wean off of...it IS definately a drug which should be monitored at least every 6 months...what does your Neuro say about this?