14th March 2007
Hi Paris,
I was dx in 1992 with fibro and in 1993 was disabled. In was dx in 1994 with ME/CFS with TMJ (dx in 1992), balance problems, dizzy, chemical sensitivies, food intolerances, all types of allegries stuff I never had before. In Dec 2006 I was dx with MS. It was a shock to me because I would have never expected it. I saw my neuro after I didn't recognize my own son. He did a MRI looking for stroke or whatever. When it came back clear, I did a walking EEG test. It wasn't conclusive and was scheduled for another one but I told him about the double vision. From there it was a short two month journey to my MS dx. I had a lot of blood tests done, evoked potentials and spinal tap(LP).
[Note: In 1993 seeing my GP doctor my blood test came back with low white count and low phosperous level (rare). It causes bad muscle cramps. I had to take RX for it and it brought the levels back to normal. ]
My neuro didn't think it was it either but my tests and exams proved it. I was having over the years feet felt like they were burning, muscle cramps, burning, tingling, ankles swelling, leg weakness that I thought was just fatigue. I also have double vision and loss of vision that happened suddenly. I have bladder/bowel incont. I had some of these symptoms for years but never told my neuro because I assumed the were ME/CFS related.
I know I have still fibro and I still have symptoms of ME/CFS but now I have MS symptoms and sometimes it hard to tell which is which. I am now in physical therapy to help strengthen my muscles from probable progression.
I wished I told my doctor sooner about the bowel incont and double vision. But when you are told symptoms are from depression or it all in your head so many times, why bother. I might have been dx sooner and started treatment 8 years ago instead of Jan this year.
In MS, the nerves run to the muscles and if they are short-circuit, then the muscles doesn't respond right. MS isn't the only disease that does that. I am not saying you have MS or that you don't have MS. It is a hard disease to dx. If you aren't satisfied with your doctor, keep looking for answers. You know your body. Keep on pushing until you get the right dx. Keep a journal of your symptoms. Research your symptoms on the Internet.
I wish you the very best. I hope you find the right dx soon.
Bunni :)
dx 12/06 MS
Avonex, Klonopin, Flexeril
I was dx in 1992 with fibro and in 1993 was disabled. In was dx in 1994 with ME/CFS with TMJ (dx in 1992), balance problems, dizzy, chemical sensitivies, food intolerances, all types of allegries stuff I never had before. In Dec 2006 I was dx with MS. It was a shock to me because I would have never expected it. I saw my neuro after I didn't recognize my own son. He did a MRI looking for stroke or whatever. When it came back clear, I did a walking EEG test. It wasn't conclusive and was scheduled for another one but I told him about the double vision. From there it was a short two month journey to my MS dx. I had a lot of blood tests done, evoked potentials and spinal tap(LP).
[Note: In 1993 seeing my GP doctor my blood test came back with low white count and low phosperous level (rare). It causes bad muscle cramps. I had to take RX for it and it brought the levels back to normal. ]
My neuro didn't think it was it either but my tests and exams proved it. I was having over the years feet felt like they were burning, muscle cramps, burning, tingling, ankles swelling, leg weakness that I thought was just fatigue. I also have double vision and loss of vision that happened suddenly. I have bladder/bowel incont. I had some of these symptoms for years but never told my neuro because I assumed the were ME/CFS related.
I know I have still fibro and I still have symptoms of ME/CFS but now I have MS symptoms and sometimes it hard to tell which is which. I am now in physical therapy to help strengthen my muscles from probable progression.
I wished I told my doctor sooner about the bowel incont and double vision. But when you are told symptoms are from depression or it all in your head so many times, why bother. I might have been dx sooner and started treatment 8 years ago instead of Jan this year.
In MS, the nerves run to the muscles and if they are short-circuit, then the muscles doesn't respond right. MS isn't the only disease that does that. I am not saying you have MS or that you don't have MS. It is a hard disease to dx. If you aren't satisfied with your doctor, keep looking for answers. You know your body. Keep on pushing until you get the right dx. Keep a journal of your symptoms. Research your symptoms on the Internet.
I wish you the very best. I hope you find the right dx soon.
Bunni :)
dx 12/06 MS
Avonex, Klonopin, Flexeril