Well just wanted to update you on what has been going on.Got good news and bad news. I went to see another neurologist (my old boss). He felt on my first exam that i did have neuro issues going on unlike the other neurologist. He felt it was demyelating disease. He did a BEAR test which checks your brain wave function which came back abnormal for 2 of the my brain wave functions. He did an SEP of my lower extremeties (which is basicallly like put a tens unit on your nerve and seeing how long it takes to get to your brain) that also came back very abnormal. He then did a VEP (visual envoked potential) which came back very abnormal (you stare at a black box in a center of a tv screen and white and black checkered pattern of boxes flash around it, you have to concentrate on the center box), which came back abnormal and showed even with my glasses on i was having vision problems.Then he read my MRI report about the "two areas of white matter", fortunately i had gotten him the films and when he looked at them he called my husband and i up to look at them with him, which i knew wasn't good from my medical backround i had seen 5 areas there actually was 6 areas very fresh and specific areas of demyelination present. Which blew him away how the drs could of missed this and with my clinical signs to boot. He started me on Solu-medrol (nice strong steroid) which i have to give myself via iv once a day over a period of 3 days by bolus. Just finished that this morning and removed my iv, what a great learning experience. Just call me Nurse Jen. lol He is also starting me on Avonex injections which i have to give myself one injection every saturday evening for at least a year. So no baby for at least a year, very disappointed about that. He is hoping there is no permenant damage yet and we have caught it early enough and the Avonex will stop the progression or slow it down. He said my prognosis is good but nothing is a guarantee in life and only time will tell. If it does help and stop it then it most like we have caught it early enough if it does not or i relapse then i have MS. His PA told me he does not like to label it as MS but that is probably most likely what we are dealing with. It was probably in a bad exasterbation period when it triggered the POTS which has gotten better. My BP is alot more stable still get a tachy HR at times and chest pain. At least we know what caused it and now how to treat it. I start the Avonex this sat evening never gave my self an injection let alone intra-muscular , my husband volunteered if i chicken out. Told i should be fine besides he can pay me back for being so cranky over the last 9 months..lol not going to let that happen. Well only time will tell what is going to happen but i will definetly keep you updated on my progress.I'm trying not to let my diagnosis get me depressed and trying to stay very optimistic through this all.

I hope everything is going well with you both and have a wonderful 4th of July weekend and a safe one. You are both continually in my prayers.

Jen :)

Well here is the latest news on me..it has been confirmed i do have MS. We are hoping we have caught it in the early stages. I did get 3 iv bolus treatments of Solumedrol (nice steroid) which i infused myself at home. Just call me nurse Jen..lol.My husband was wonder if i was going to turn into ms. universal muscle bulging lol. I have also started on injections of Avonex which is one of the top intraferon beta 1a for the treatment of MS,which my husband so loving injects into my thigh every sat. Oh did i get sick from the first dose of that. My poor husband was ready to rush me to the hospital..i calmed him down and said let it take its course the phamplet and the dr said i would get flu like symptoms..man they weren't kidding that was an understatement. My vision is getting worse and still have the nasty dizzy spells and being off balance. Went to a pain management specialist monday,who was nice enough to clear up the fact that i do have MS in a very upfront and honest way..lol I have had such severe pain in my low back, legs and feet its been horrible. It has made it hard to even walk or sleep. They gave me darvocet and flexiril before i saw the pain management dr. that did nothing. I had an MRI of my lumbar spine done, which showed a herniated disc and mild spondylosis.He told me my pain is do to the MS and he strongly feels i have something wrong with my autonamic nervous system, some type of abnormality and wanted me to have a cortisol stress test done. he thinks the pain is a combination of those two things. He feels it has nothing to do with the herniation because of the severe cramping i get in my toes, feet and other muscles in my legs, which can start with my feet and go up my legs, also get numb areas and severe tingling. He started me on nortriptyline for the pain not doing to much at this point but will increase the dose next week. He also gave me amantadine for the severe fatigue. Don't care for that much makes me very anxious and gives me the shakes, makes my head feel weird, so we are going to pass on that, besides makes me even more tachy then normal lol like i need that. He told me everything will take time to work and hopefully there is no permanat damage done. We just pray that the Avonex stops the progression, or at least slows it down. But the drs think that the MS triggered the POTS which is slowly staightening out my bp usually 90/56 HR is still 90-140 give or take lol. Not running any marathons yet but maybe in a few months. The heat has really made things worse i go out mostly in the evening when it cools off ,if i go out during the day i need shade or get some serious headaches and just feel really bad. The headaches did start to get better but are slowly getting worse again. Who knows i try not to dwell on it and take it as it comes.

I hope you are doing well Lisa you may want to try the florinef it does help also with your BP thats why the dr had me on it and the midodrine together.

Goody i'm so happy for your brother he sounds like he is doing well, i'd love to be on that banana boat get tugged around sounds like alot of fun...lol

Jen