Hi my name is Rachel. I had a bronchoscopy on Halloween for a bronchial biopsy to rule out PCD. I've had recurrent bronchitis since January which grows only Haemophilus influenzae, Streptococcus pneumoniae, or both at times. I too have had quite a time trying to get rid of the Haemophilus. I've been on two different kinds of Augmentin (875mg and the big 1000mg), Biaxin/Zithromax (which does not help at all), and Vantin. I think Vantin helps the most. I've had CT scans done which ruled out situs invertus, so I may not have PCD, but we'll see. I don't have bronchiectasis, but I do have right middle lobe atelectasis and some other scarring. About how long did it take you to be diagnosed from a bronchoscopy? My doctor sent the biopsy to the Mayo Clinic.

Quote from swimfast989:

Hi my name is Rachel. I had a bronchoscopy on Halloween for a bronchial biopsy to rule out PCD. I've had recurrent bronchitis since January which grows only Haemophilus influenzae, Streptococcus pneumoniae, or both at times. I too have had quite a time trying to get rid of the Haemophilus. I've been on two different kinds of Augmentin (875mg and the big 1000mg), Biaxin/Zithromax (which does not help at all), and Vantin. I think Vantin helps the most. I've had CT scans done which ruled out situs invertus, so I may not have PCD, but we'll see. I don't have bronchiectasis, but I do have right middle lobe atelectasis and some other scarring. About how long did it take you to be diagnosed from a bronchoscopy? My doctor sent the biopsy to the Mayo Clinic.

Hi Rachael,

I'm just wondering how you made out with the biopsy? Did you get the results yet? I know it can take 6 weeks. Hope you're doing well.

Many Smiles
Lynn

Hi, this is Rachel again. I'm probably under a different name because I was banned or something on my other one. Maybe it's the same name though. Haha.

I haven't gotten the PCD biopsy results back yet. The dr. said they take a long while to come back. I have had some sinus problems: chronic maxillary and ethmoid sinusitis. I'm seeing an ENT for that. I have been tested for CF twice, one came back at 28 and the other at 11. (must be those potato chips :p )Not a whole lot of ear problems though. Just a rare case of swimmer's ear...but I swim 5 days a week, so I guess that'll do it.

I've had asthma since I was about 8 years old, and I've been taking Advair 250 and a bunch of other things.

Right now, I'm STILL culturing the same old stuff. I had a fever two nights ago at about 102 and I'm taking Augmentin yet again. That's after stopping Ceftin and Rifampin for 6 days. (by the way, the Rifampin was to try and stop the growth of the bacteria, not for TB!!) I might also have some antibiotic resistance. :(

I've also been tested for GERD with a 24 hr. pH probe, which showed significant reflux. I go for some esophogram test or something soon to check for some anomaly.

One thing that I really don't like, is guaifenasin (sp?) Argh, I don't even want to mention that stuff.

My dr. recommended chest pt a few times a day, and that seems to help. Do you use the Vest? Is it real expensive? I'd like to get something like that so my mom doesn't have to pound on my back. :eek:

I'll let you know when the results come back. Meanwhile, take care!

Hi:)

The generator part of the vest is heavy. Every time they make a new model it seems to get a bit smaller. The newest one is really small. I checked it out at the PCD Family day last year. One thing that is fun that gets you coughing up stuff is jumping on a trampoline. It would be fun to get one.

For the lung stuff I took 10 days of Augmentin, 10 days of Levaquin, 1 dose of Augmentin which I ended up being allergic to (the hives where hysterical :jester: ) and 30 days of doxycycline. After that I took 20 days of Levaquin for the sinuses.

I sure hope the sinus surgery works. It will be my first one. I'm having endoscopic surgery with 3-D guided imagery. I had to wear a headset to the CT scan that they use for the 3-D images. It's kinda cool. The sinuneb is really awesome. It's a nebulizer for your nose so to speak. It's for inhaled antibiotics. The idea is to get the antibiotics to the areas you need them as opposed to orals that have to go through your body. I have several friends that use it. My ENT suggests it for use after surgery. I have too much blocked- in there right now for it to work.

I hope you get a definite answer on your biopsy. Do you know where they sent your biopsy to?


Stay warm and keep in touch :)