22nd June 2005
Hi Beerzoids,
Thanks for your helpful reply.
Re sleeping. I cannot sleep with just one pillow. This is very recent..only about 2 weeks. I have to prop myself up on about 3 pillows, which I do not find very comfortable and affects my sleeping pattern.
I do have access to Nitro Glycerine, so will try it out when my breathing gets very bad.
I no longer take bendrofluazide, just the Frusemide.I find I can tolerate 20 mgs. each day..any more and my heart starts starts flying about and I feel hot and uncomfortable.
My cardiologist has written to my GP asking her to change the Zocor 10 mg. to Atorvastatin, 10 mg...I am not sure why.
I have an appointment with my GP on Friday PM and I am going to raise my concerns with her.
In UK, we do have a National Health Service, which is free at the point of delivery. I also get all my medication free, whch is very good. The problem is that the NHS is trying to cater for a large population and has too few doctors to do so. If I waited to see a cardiologist on the NHS, it could take up to 6-9 months on a waiting list. Therefore people with private health insurance are lucky in that they get seen very quickly.
The problem arises when all the tests are done. My cardio. did all these, decided on what his diagnosis was and wrote to my GP telling her what to prescribe...then my reactions to the drugs caused problems. Instead of being able to see the cardiologist, I had to send an email telling him about my reactions and getting an email back telling me to drop the Digoxin and keep on frusemide, taking it in the morning and delaying my other meds. for 12 hours.
So, now I am concentrating on getting the frusemide dose right. I cannot tolerate 40 mg, nor even 30mg..so am now on 20 a day and will see if that improves my condition.
Thanks for helping me and listening...it gives comfort to know you have the same problems.
I want to get it sorted out as we leave on a cruise next month and I want to enjoy it.
Thanks for your helpful reply.
Re sleeping. I cannot sleep with just one pillow. This is very recent..only about 2 weeks. I have to prop myself up on about 3 pillows, which I do not find very comfortable and affects my sleeping pattern.
I do have access to Nitro Glycerine, so will try it out when my breathing gets very bad.
I no longer take bendrofluazide, just the Frusemide.I find I can tolerate 20 mgs. each day..any more and my heart starts starts flying about and I feel hot and uncomfortable.
My cardiologist has written to my GP asking her to change the Zocor 10 mg. to Atorvastatin, 10 mg...I am not sure why.
I have an appointment with my GP on Friday PM and I am going to raise my concerns with her.
In UK, we do have a National Health Service, which is free at the point of delivery. I also get all my medication free, whch is very good. The problem is that the NHS is trying to cater for a large population and has too few doctors to do so. If I waited to see a cardiologist on the NHS, it could take up to 6-9 months on a waiting list. Therefore people with private health insurance are lucky in that they get seen very quickly.
The problem arises when all the tests are done. My cardio. did all these, decided on what his diagnosis was and wrote to my GP telling her what to prescribe...then my reactions to the drugs caused problems. Instead of being able to see the cardiologist, I had to send an email telling him about my reactions and getting an email back telling me to drop the Digoxin and keep on frusemide, taking it in the morning and delaying my other meds. for 12 hours.
So, now I am concentrating on getting the frusemide dose right. I cannot tolerate 40 mg, nor even 30mg..so am now on 20 a day and will see if that improves my condition.
Thanks for helping me and listening...it gives comfort to know you have the same problems.
I want to get it sorted out as we leave on a cruise next month and I want to enjoy it.
